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GENTLEMAN IN STAGE 4, LITTLE SCARED, ASKING FOR IDEAS/INPUT
Hi, I was the one who offered the PBCers Organization also in addition to HealthUnlocked. I write to a PBCer in Kentucky, 80 year old female, great, great shape for not even ever using Urso/Ursodiol! She is a "naturalist" (I call her that/might be a wrong term) so to speak, and offered me this to pass
Hi, I was the one who offered the PBCers Organization also in addition to HealthUnlocked. I write to a PBCer in Kentucky, 80 year old female, great, great shape for not even ever using Urso/Ursodiol! She is a "naturalist" (I call her that/might be a wrong term) so to speak, and offered me this to pass
kehello
in
PBC Foundation
6 years ago
Biphosonates ( Alendronic acid etc )
Came across this on Twitter http://bjr.boneandjoint.org.uk/content/6/10/602 It's some new research on the effect of Biphosonates on bone and whether they actually make a difference to fracture risk. High dose prednisolone can cause oesteoporosis ( a weakening of the bone making fractures more likely
Came across this on Twitter http://bjr.boneandjoint.org.uk/content/6/10/602 It's some new research on the effect of Biphosonates on bone and whether they actually make a difference to fracture risk. High dose prednisolone can cause oesteoporosis ( a weakening of the bone making fractures more likely
Hidden
in
Vasculitis UK
6 years ago
Advice needed
I have Rheumy appointment Tuesday and need some advice. Diagnosed PMR June this year. 15mgs miracle. Tapering has been a problem. Since diagnosis Osteoporosis -2.5 T score on one vertebrae in spine, Osteoarthritis in knees, borderline diabetes type 2. Rheumy wanted me to go on Alendronic acid I refused
I have Rheumy appointment Tuesday and need some advice. Diagnosed PMR June this year. 15mgs miracle. Tapering has been a problem. Since diagnosis Osteoporosis -2.5 T score on one vertebrae in spine, Osteoarthritis in knees, borderline diabetes type 2. Rheumy wanted me to go on Alendronic acid I refused
Marilyn1959
in
PMRGCAuk
6 years ago
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FAQ POST........HOW TO RUN C25K
So, You are wanting to know how to do the Couch to 5k training plan for non runners and have loads of questions. This forum is designed to enable you to ask for advice from the welcoming, supportive and incredibly nice bunch of folk who make up our membership, so feel free to do that, but a quick browse
So, You are wanting to know how to do the Couch to 5k training plan for non runners and have loads of questions. This forum is designed to enable you to ask for advice from the welcoming, supportive and incredibly nice bunch of folk who make up our membership, so feel free to do that, but a quick browse
Hidden
Mentor
in
Couch to 5K
6 years ago
Newbie
Hi all, just diagnosed with PMR. quite a shock. Now on pred but also have Barrett’s Oesophagus. Been prescribed Alendronic Acid as in the past 18 months I have had 2 fractures in left foot. Have also had several fractures during the last 40 years. I am now nearly 74 and used to a fairly active life being
Hi all, just diagnosed with PMR. quite a shock. Now on pred but also have Barrett’s Oesophagus. Been prescribed Alendronic Acid as in the past 18 months I have had 2 fractures in left foot. Have also had several fractures during the last 40 years. I am now nearly 74 and used to a fairly active life being
AmberAliona
in
PMRGCAuk
6 years ago
Booked my own Dexa scan
Hi everyone, after trying 1 tablet of Alendronic Acid and feeling awful, my doctor agreed to refer me for a Dexa scan (at my request) to see if I needed it. My local hospital has a waiting list to get onto the waiting list!!!! and the next nearest hospital is an average of 18 weeks to be seen. I have
Hi everyone, after trying 1 tablet of Alendronic Acid and feeling awful, my doctor agreed to refer me for a Dexa scan (at my request) to see if I needed it. My local hospital has a waiting list to get onto the waiting list!!!! and the next nearest hospital is an average of 18 weeks to be seen. I have
Jo1947
in
PMRGCAuk
6 years ago
BONES Calcium Vit D magnesium Vit k2
I have decided definitely not to take Alendronate (fosomax) or any of the Bone "strengthening" prescriptions. That being said I am wondering if anyone out there saw an improvement in Dexa scan with the above mentioned vitamins. I am beginning weight lifting (tiny weights) and have always walked a lot
I have decided definitely not to take Alendronate (fosomax) or any of the Bone "strengthening" prescriptions. That being said I am wondering if anyone out there saw an improvement in Dexa scan with the above mentioned vitamins. I am beginning weight lifting (tiny weights) and have always walked a lot
yogabonnie
in
PMRGCAuk
6 years ago
Introducing myself
Hi. I'm new to this site but grateful to have found the enormous amount of useful info. PMR took ages to diagnose due to hip fracture and dynamic screws op at beginning of year - everything was put down to that. Osteoporosis (DEXA scan) diagnosed and AA prescribed. Bouncing round on steroids (not complaining
Hi. I'm new to this site but grateful to have found the enormous amount of useful info. PMR took ages to diagnose due to hip fracture and dynamic screws op at beginning of year - everything was put down to that. Osteoporosis (DEXA scan) diagnosed and AA prescribed. Bouncing round on steroids (not complaining
Pongo13
in
PMRGCAuk
6 years ago
Zoledronic acid and RA flare?
Hi I had a ZA IV two weeks ago, since then some bone pain which I was told could happen, but my wrists/thumb have really flared, has anyone experienced this? I have OI/RA and osteonecrosis in the knee. Caroline
Hi I had a ZA IV two weeks ago, since then some bone pain which I was told could happen, but my wrists/thumb have really flared, has anyone experienced this? I have OI/RA and osteonecrosis in the knee. Caroline
CAROLINE23RED
in
NRAS
6 years ago
Thyroxine, alendronic acid and ibs
I'm new here and desperately need some help, please. I have to take Levothyroxine and Lanzoprazole daily, plus alendronic acid once a week. Fitting them in is a nightmare and I am having so many digestive problems due to my IBS coupled with a very restricted diet, especially in the last few months.
I'm new here and desperately need some help, please. I have to take Levothyroxine and Lanzoprazole daily, plus alendronic acid once a week. Fitting them in is a nightmare and I am having so many digestive problems due to my IBS coupled with a very restricted diet, especially in the last few months.
Hidden
in
Thyroid UK
6 years ago
Current Labs and starting "real" URSO Forte Dec. 11th.
Hi PBCers, So my Alk-phos has been slowly climbing. Went from 134 to 174 in 3 months😕. Been on generic Ursodiol for 9 months. Many of you posted encouraging words and sent important information for me to read. Thank you! ❤❤ I decided to up the dosage of my generic Ursodiol **(With my doctors approval
Hi PBCers, So my Alk-phos has been slowly climbing. Went from 134 to 174 in 3 months😕. Been on generic Ursodiol for 9 months. Many of you posted encouraging words and sent important information for me to read. Thank you! ❤❤ I decided to up the dosage of my generic Ursodiol **(With my doctors approval
Ktltel
in
PBC Foundation
6 years ago
Zoladex
Hi I'm 20 and have severe pain and bleeding most of the time have tried mefenamic acid and tranexamic with no joy have just had first injection of zoladex and tibolone tablets , I feel so sick and my stomach is huge and painful has anyone else experienced this
Hi I'm 20 and have severe pain and bleeding most of the time have tried mefenamic acid and tranexamic with no joy have just had first injection of zoladex and tibolone tablets , I feel so sick and my stomach is huge and painful has anyone else experienced this
Donnabaldwin
in
Endometriosis UK
6 years ago
UV lamp for Osteoporosis?
Hi, I’ve just started taking alendronic acid after being diagnosed with OP. I have been taking Adcal for years for osteopenia but fell whilst cycling fracturing both wrists hence a dexa & the resultant diagnosis. Does anyone have any experience of using a UV lamp?
Hi, I’ve just started taking alendronic acid after being diagnosed with OP. I have been taking Adcal for years for osteopenia but fell whilst cycling fracturing both wrists hence a dexa & the resultant diagnosis. Does anyone have any experience of using a UV lamp?
Hidden
in
Bone Health and Osteoporosis UK
6 years ago
Just diagnosed
I've just been diagnosed with pbc, after a positive Ana blood test and liver biopsy and I collect the Ursodeoxycholic acid tomorrow, i just wondered if there was any advice you can give me, doctor was less helpful and I won't now see for 3 months Many thanks ann
I've just been diagnosed with pbc, after a positive Ana blood test and liver biopsy and I collect the Ursodeoxycholic acid tomorrow, i just wondered if there was any advice you can give me, doctor was less helpful and I won't now see for 3 months Many thanks ann
Pinkcrush
in
PBC Foundation
6 years ago
Vomitted blood
Hey guys! This is my first post. I have just been diagnosed with stage 4 severe/extensive deep infiltrating endometriosis with cysts and multiple bilateral endometriomas. (I had an MRI which showed this). I am waiting for my laparoscopy for the excision of the endo and the endometriomas and to check
Hey guys! This is my first post. I have just been diagnosed with stage 4 severe/extensive deep infiltrating endometriosis with cysts and multiple bilateral endometriomas. (I had an MRI which showed this). I am waiting for my laparoscopy for the excision of the endo and the endometriomas and to check
RB24
in
Endometriosis UK
6 years ago
Newbie!!
I am 71. Three years ago I started taking Atorvastatin as a precautionary measure, I'm assuming they are doing me some good. I broke my wrist Nov 11th 2016 and was sent for a dexascan. Results showed the onset of osteoporosis so I was prescribed a weekly Alendronic Acid tablet and Adcal-D3, to be taken
I am 71. Three years ago I started taking Atorvastatin as a precautionary measure, I'm assuming they are doing me some good. I broke my wrist Nov 11th 2016 and was sent for a dexascan. Results showed the onset of osteoporosis so I was prescribed a weekly Alendronic Acid tablet and Adcal-D3, to be taken
Hidden
in
PMRGCAuk
6 years ago
Have you taken bone strengthening meds since being on ADT?
I'm wondering how many of those who have bone mets, and are taking ADT have also taken or are taking bone strengthening meds such as Zolendronic Acid (Zometa) or Denosumab (Xgeva). I've taken one infusion of Zolendronic Acid so far, but will discuss continuing it with my doctor next week. On ADT, we
I'm wondering how many of those who have bone mets, and are taking ADT have also taken or are taking bone strengthening meds such as Zolendronic Acid (Zometa) or Denosumab (Xgeva). I've taken one infusion of Zolendronic Acid so far, but will discuss continuing it with my doctor next week. On ADT, we
Hidden
in
Advanced Prostate Cancer
6 years ago
want to start some supplement for health maintenance
I want to start some supplement besides my diet plan (i.e. LCHF ) as lately I am having pain in my shoulder off and on , though I set it right by exercise /stretches as advised by the physio. I am 67 yrs,diabetic since last 13 years.I take metformin 500mg +glimpride 1mg and cod liver oil caps.twice daily
I want to start some supplement besides my diet plan (i.e. LCHF ) as lately I am having pain in my shoulder off and on , though I set it right by exercise /stretches as advised by the physio. I am 67 yrs,diabetic since last 13 years.I take metformin 500mg +glimpride 1mg and cod liver oil caps.twice daily
osho1410
in
Diabetes India
6 years ago
***Revision at conclusion***ALT, AST, Alk-phos and their possible insignificance in monitoring PBC progression?
Hello friends, Ever since I was diagnosed with PBC last year I've been anxious everytime I have my labs drawn. I'm always anxious to know all about what my Liver Function Tests (LFT's) numbers are and if they're rising. When I joined this group many were concerned about elevated AST, ALT, and Alk-phos
Hello friends, Ever since I was diagnosed with PBC last year I've been anxious everytime I have my labs drawn. I'm always anxious to know all about what my Liver Function Tests (LFT's) numbers are and if they're rising. When I joined this group many were concerned about elevated AST, ALT, and Alk-phos
Ktltel
in
PBC Foundation
6 years ago
Fed up of pain from endometriosis and not finding a painkiller that actually helps
The pain is constant and I have not yet found a painkiller to help relieve the pain, nothing works. And pain is getting worse it now shoots round to my rectum which is extremely painful . I get agonising pain in my left abdominal/ovary and bowel it sometimes feels like something is pushing down on my
The pain is constant and I have not yet found a painkiller to help relieve the pain, nothing works. And pain is getting worse it now shoots round to my rectum which is extremely painful . I get agonising pain in my left abdominal/ovary and bowel it sometimes feels like something is pushing down on my
Sameerap
in
Endometriosis UK
6 years ago
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