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Living with PBC for 16 years.
Still going strong after 16 years. First abnormal blood test in Australia in 2006 although not diagnosed until I returned to the U.K. in 2010. I have been on Ursodeoxycholic Acid since then. I get tired but try to go to bed early and as now retired have the benefit of being able to get up when I like
Still going strong after 16 years. First abnormal blood test in Australia in 2006 although not diagnosed until I returned to the U.K. in 2010. I have been on Ursodeoxycholic Acid since then. I get tired but try to go to bed early and as now retired have the benefit of being able to get up when I like
Gioielli5
in
PBC Foundation
2 years ago
Bleeding
Have been bleeding for 2 weeks doctor gave me mefenamic acid but not working what can I do
Have been bleeding for 2 weeks doctor gave me mefenamic acid but not working what can I do
Shazzer70
in
BASHH
2 years ago
Ursodeoxycholic acid
Does anyone have experience of ursodeoxycholic acid for treating itchiness due to cirrhosis
Does anyone have experience of ursodeoxycholic acid for treating itchiness due to cirrhosis
wilmawemyss
in
British Liver Trust
2 years ago
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Tall Allen ?
I read in 1 of your previous posts that you were prescribed a sleep aid. If you would be so kind, I’d love to know what it is and whether or not there are any negatives/contraindications to it. Btw, I greatly value your contributions to this forum.
I read in 1 of your previous posts that you were prescribed a sleep aid. If you would be so kind, I’d love to know what it is and whether or not there are any negatives/contraindications to it. Btw, I greatly value your contributions to this forum.
Scooter22
in
Prostate Cancer Network
2 years ago
Biopsy
Hello, I was diagnosed with primary biliary cholangitis (PBC) earlier this year. I am taking ursodeoxycholic acid and all seems to be under control for now. I had pancreatitis in February this year and had a follow up scan in October. The scan showed an increase in my pancreatic duct. I had an ultrasound
Hello, I was diagnosed with primary biliary cholangitis (PBC) earlier this year. I am taking ursodeoxycholic acid and all seems to be under control for now. I had pancreatitis in February this year and had a follow up scan in October. The scan showed an increase in my pancreatic duct. I had an ultrasound
Christinarose
in
British Liver Trust
2 years ago
Newly Diagnosed with PMR - and slightly bewildered!
Hello I have found your community and would like to join, please! I can see much information which I need to absorb but also have several questions which perhaps someone will be able to help me with..... After having pain, becoming more acute by the day along with fluctuating temperatures, painful
Hello I have found your community and would like to join, please! I can see much information which I need to absorb but also have several questions which perhaps someone will be able to help me with..... After having pain, becoming more acute by the day along with fluctuating temperatures, painful
Rostom
in
PMRGCAuk
2 years ago
New Medicines Atorvastatin and Propranaolol Bone Worries
I have had a barrage of blood tests done recently due to Osteoporosis, no blood test was left out, except for Magnesium that I am being tested for in the next lot of blood tests in January. My blood tests show high cholesterol so the doctor prescribed Atorvastatin 20mg. He also prescribed Propranaolol
I have had a barrage of blood tests done recently due to Osteoporosis, no blood test was left out, except for Magnesium that I am being tested for in the next lot of blood tests in January. My blood tests show high cholesterol so the doctor prescribed Atorvastatin 20mg. He also prescribed Propranaolol
Daisi124
in
Osteoporosis Support
2 years ago
Can you really reverse osteoporosis naturally?
I was diagnosed with osteoporosis at age 50. In hindsight, it should have been caught much earlier. Due to the horrible US healthcare system and several doctors who simply failed to steer me in the right direction, it was missed. I am looking for success stories from people who have actually been able
I was diagnosed with osteoporosis at age 50. In hindsight, it should have been caught much earlier. Due to the horrible US healthcare system and several doctors who simply failed to steer me in the right direction, it was missed. I am looking for success stories from people who have actually been able
FearFracture
in
Osteoporosis Support
2 years ago
GP care
I’ve just had a really upsetting consult and left feeling worse than when I went in. I have stage 3 endo and adenomyosis and have been undergoing IVF this year which has unfortunately not been successful. I was diagnosed in 2019 and was then immediately referred to gynae/fertility but I have never had
I’ve just had a really upsetting consult and left feeling worse than when I went in. I have stage 3 endo and adenomyosis and have been undergoing IVF this year which has unfortunately not been successful. I was diagnosed in 2019 and was then immediately referred to gynae/fertility but I have never had
Daisy0909
in
Endometriosis UK
2 years ago
Ox bile or TUDCA
Has anyone tried ox bile or TUDCA. Ursodiol causes acne weight gain and hair loss. I have been taking Urso for 9 years. I am taking 500 mg twice a day of ox bile.
Has anyone tried ox bile or TUDCA. Ursodiol causes acne weight gain and hair loss. I have been taking Urso for 9 years. I am taking 500 mg twice a day of ox bile.
Chrre
in
PBC Foundation
2 years ago
Teenager labour like period pains
My 13 year old daughter suffers from pain towards the end of her periods. Unbearable and I can only describe it as like watching someone in labour. The pain is beyond what she can manage and leaves her physically and mentally done in. GP has been trying her on various contraceptive pills. Since starting
My 13 year old daughter suffers from pain towards the end of her periods. Unbearable and I can only describe it as like watching someone in labour. The pain is beyond what she can manage and leaves her physically and mentally done in. GP has been trying her on various contraceptive pills. Since starting
Hidden
in
Endometriosis UK
2 years ago
Alendronic Acid or Teriperatide
Has anyone used Teriperatide to increase bone density? I thought it was supposed to be coming off patent and therefore getting cheaper. (In the UK at least.) I was told it was very expensive and not given to those with less than 3 fractures of the spine. I have refused Alendronic Acid.
Has anyone used Teriperatide to increase bone density? I thought it was supposed to be coming off patent and therefore getting cheaper. (In the UK at least.) I was told it was very expensive and not given to those with less than 3 fractures of the spine. I have refused Alendronic Acid.
Pheewills
in
Bone Health and Osteoporosis UK
2 years ago
Mirena removal and bleeding
Hi, just wondering what your experiences are of mirena removal and instant bleeding? I had mine removed Monday, Tuesday spotting and heavy bleeding yesterday and today. Just wondering wondering how long this may last and if I need to take Tranexamic acid prescribed by Dr. Thank you
Hi, just wondering what your experiences are of mirena removal and instant bleeding? I had mine removed Monday, Tuesday spotting and heavy bleeding yesterday and today. Just wondering wondering how long this may last and if I need to take Tranexamic acid prescribed by Dr. Thank you
0Jasmine
in
Endometriosis UK
2 years ago
Exrutiating Back Pain
I fractured my L2 eight weeks ago washing up. I was sent for an x-ray which showed the fracture and also scelerosis in L5 -S1. I had a Dexa scan which showed T scores - 2.7 in hip and -4.8 in spine. I started on Alendronic Acid one a week three weeks ago. After the intial shock I knuckled down,
I fractured my L2 eight weeks ago washing up. I was sent for an x-ray which showed the fracture and also scelerosis in L5 -S1. I had a Dexa scan which showed T scores - 2.7 in hip and -4.8 in spine. I started on Alendronic Acid one a week three weeks ago. After the intial shock I knuckled down,
Daisi124
in
Osteoporosis Support
2 years ago
Update on my PMR journey.
Hi everyone. I’m still struggling with various side effects of prednisolone, but still largely pain free from PMR at the moment. Down from 30mg to 20mg now. My blood sugar is up to 48 and my kidney function is down to 54 (CKD Stage 3) my ~bp is up and so are my ankles! I can’t climb the stairs without
Hi everyone. I’m still struggling with various side effects of prednisolone, but still largely pain free from PMR at the moment. Down from 30mg to 20mg now. My blood sugar is up to 48 and my kidney function is down to 54 (CKD Stage 3) my ~bp is up and so are my ankles! I can’t climb the stairs without
Daisymaud
in
PMRGCAuk
2 years ago
Help With Results Please
New here so forgive me if I post in the wrong place! I was recently diagnosed with severe osteporosis out of the blue after fracturing my L2 whilst stood at the kitchen sink washing up. A dexa scan show T scores of -2.7 in hips and -4.8 in spine. I have started on Alendronic Acid two weeks ago. After
New here so forgive me if I post in the wrong place! I was recently diagnosed with severe osteporosis out of the blue after fracturing my L2 whilst stood at the kitchen sink washing up. A dexa scan show T scores of -2.7 in hips and -4.8 in spine. I have started on Alendronic Acid two weeks ago. After
Daisi124
in
Thyroid UK
2 years ago
Excessive menstrual bleeding
Hi, I'm new here after discovering I had a tight stenosis of my LAD artery last month. A big shock at 46. I had a stent inserted on 26/10/21 and am now on aspirin for life and Clopidogrel for 6 months. My last period was awful - on day 2, I leaked through super plus tampons and a sanitary towel plus
Hi, I'm new here after discovering I had a tight stenosis of my LAD artery last month. A big shock at 46. I had a stent inserted on 26/10/21 and am now on aspirin for life and Clopidogrel for 6 months. My last period was awful - on day 2, I leaked through super plus tampons and a sanitary towel plus
LucyBoo21
in
British Heart Foundation
2 years ago
Feeling very emotional
Any one on here had diverticulitis ? I’m taking sulphasalazine for RA, neutrophils low because of that. Felt unwell saw GP CRP showing 99 sent to A&E had intravenous antibiotics, now home bed resting with a weeks course of strong antibiotics. Have to go back to A&E on Monday to check CRP . Decided to
Any one on here had diverticulitis ? I’m taking sulphasalazine for RA, neutrophils low because of that. Felt unwell saw GP CRP showing 99 sent to A&E had intravenous antibiotics, now home bed resting with a weeks course of strong antibiotics. Have to go back to A&E on Monday to check CRP . Decided to
Doughnut61
in
NRAS
2 years ago
Pill and treatment Endo?
Hi all, hoping for some advice. I was diagnosed with Endo in Jan 19 after having a large cyst removal, which resulted in my ovary and tube also being removed (left side). I was discharged from Gynae care after being given the pill. I stopped taking the pill and tried to carry on as normal (due to continuous
Hi all, hoping for some advice. I was diagnosed with Endo in Jan 19 after having a large cyst removal, which resulted in my ovary and tube also being removed (left side). I was discharged from Gynae care after being given the pill. I stopped taking the pill and tried to carry on as normal (due to continuous
AMJ88
in
Endometriosis UK
2 years ago
Omeprazole
Omeprazole has been added to my prescription - so far I haven't taken it as I'd rather take as few medications as possible. It seems to be recommended with steroids and alendronic acid - is it necessary? I have been encouraged to take AA due to osteopenia but, again, not entirely sure if I need it.
Omeprazole has been added to my prescription - so far I haven't taken it as I'd rather take as few medications as possible. It seems to be recommended with steroids and alendronic acid - is it necessary? I have been encouraged to take AA due to osteopenia but, again, not entirely sure if I need it.
Miserere
in
PMRGCAuk
2 years ago
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