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Is there such a thing as ‘slow AFib?’
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Hello all! St Barts in London have offered me an ablation! Taunton referred me to Bristol but they were unwilling because I also have hypertrophic cardiomyopathy and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Slidingdoors99
in
Atrial Fibrillation Support
2 years ago
Update from Norwich - Sub Chondral Insufficiency Fracture
I was about to do a general update just to encourage people on the PMR journey as I think it helps to compare. So I will start with that. I have now seen my rheumatologist 3 times (Max Yates at NNUH) wh has been great. The first tme referred me for a biologic clinical trial but I wasn't accepted as not
I was about to do a general update just to encourage people on the PMR journey as I think it helps to compare. So I will start with that. I have now seen my rheumatologist 3 times (Max Yates at NNUH) wh has been great. The first tme referred me for a biologic clinical trial but I wasn't accepted as not
marionofnorwich
in
PMRGCAuk
2 years ago
B12 tablets better than injection!
Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 12 days I decided to switch to tablets. Having been put on an anticoagulant for Afib I was suffering from pain and bruising at the injection sites. I started taking 1000ug Methylcobalamin standard tablets each day and within
Hi, after taking Hydroxocobalaminacetat 1000ug I.M. for over a year once every 12 days I decided to switch to tablets. Having been put on an anticoagulant for Afib I was suffering from pain and bruising at the injection sites. I started taking 1000ug Methylcobalamin standard tablets each day and within
john159
in
Pernicious Anaemia Society
2 years ago
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Ectopic beats , 7yrs after rf ablation
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Hi all , I've been good now for around 7yrs after rf ablation , got on with life running, gym , all good , so this week I felt tight in my chest with a few thumps checked my pulse and there's ectopic beats , pulse is fine , blood pressure fine , attended a&e they picked up the ectopic on ecg , did bloods
Runcrans
in
AF Association
2 years ago
Bayer subsidiary BlueRock taps Rune Labs for Parkinson's study software
Bayer subsidiary BlueRock Therapeutics has signed with Rune Labs to use the neurology software and data platform company’s clinical trial tech to get a sharper picture of Parkinson’s disease patient activity and encourage better engagement in its cell therapy study. https://www.fiercebiotech.com/cro/
Bayer subsidiary BlueRock Therapeutics has signed with Rune Labs to use the neurology software and data platform company’s clinical trial tech to get a sharper picture of Parkinson’s disease patient activity and encourage better engagement in its cell therapy study. https://www.fiercebiotech.com/cro/
Farooqji
in
Cure Parkinson's
2 years ago
Walking in rhythm
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
diminished7th
in
Atrial Fibrillation Support
2 years ago
Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
Atrial Fibrillation Support
2 years ago
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
Debbie_kinsey
Administrator
in
LUPUS UK
2 years ago
clinical trials with Olaparib as a mono therapy in hormone sensitive prostate cancer?
does anyone know if this is happening anywhere at all Regards
does anyone know if this is happening anywhere at all Regards
Brysonal
in
Fight Prostate Cancer
2 years ago
Besremi trial
Two New Trials Testing Ropeginterferon (Besremi) in PV and ETMar 3, 2023John Mascarenhas, MDAssociate Professor & Director of the Adult Leukemia Program0 seconds of 8 minutes, 40 secondsDESCRIPTIONTRANSCRIPTDr. Mascarenhas: Hi, I'm John Mascarenhas, a professor of medicine at the Icahn School of Medicine
Two New Trials Testing Ropeginterferon (Besremi) in PV and ETMar 3, 2023John Mascarenhas, MDAssociate Professor & Director of the Adult Leukemia Program0 seconds of 8 minutes, 40 secondsDESCRIPTIONTRANSCRIPTDr. Mascarenhas: Hi, I'm John Mascarenhas, a professor of medicine at the Icahn School of Medicine
wateron
in
MPN Voice
2 years ago
BAT question. A little worried about results.
I was on Xtandi as part of a clinical trial at NIH and after 2 years my PSA started climbing and PSMA scan showed metastasis in abdominal lymph nodes and supraclavicular node. Biopsy of the abdominal nodes wasn’t possible but biopsy of the supraclavicular node was inconclusive. However , this knocked
I was on Xtandi as part of a clinical trial at NIH and after 2 years my PSA started climbing and PSMA scan showed metastasis in abdominal lymph nodes and supraclavicular node. Biopsy of the abdominal nodes wasn’t possible but biopsy of the supraclavicular node was inconclusive. However , this knocked
AllenMarco
in
Advanced Prostate Cancer
2 years ago
DOACs
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
I have just read a 'Healthline' publication dated January 2023 about the long term effects of blood thinners and anticoagulants. I am a bit concerned with the content of this article and would like members of our group opinions. The article stated that there was no reversal agent for Riveroxaban and
Karendeena
in
AF Association
2 years ago
Stroke Prevention Day
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
The Stroke Association are highlighting the link between AF and the possibility of a stroke. I can echo that, as I was cardio fit with none of the other risks from weight, smoking, drinking, but I had AF and I was not prescribed an anticoagulant. On 6 July 2016 I had a stroke. The following words
john-boy-92
in
Atrial Fibrillation Support
2 years ago
why a stress test?
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Been a while cause all has been “quiet.” I have been taking Flecainide 50 twice a day, Eliquis 5 twice a day, metoprolol 15 in am and 12.5 in evening. It’s been a year. Occasional blip but nothing to talk about really. I’m 66, female, and exercise aerobically 4-5 times a week. Sleep and eat well, work
Cos56
in
AF Association
2 years ago
📚 Research 101: Patient panels/ advisory boards
Both within and across condition areas, no two experiences are the same. Patient panels or advisory boards allow patients to discuss a much wider range of thoughts, feelings and opinions that provide the biopharmaceutical industry with rich, contextual insights. These insights can then be used to inform
Both within and across condition areas, no two experiences are the same. Patient panels or advisory boards allow patients to discuss a much wider range of thoughts, feelings and opinions that provide the biopharmaceutical industry with rich, contextual insights. These insights can then be used to inform
AnnaHU
HealthUnlocked
in
Research Opportunities
2 years ago
Hope bioscience is enrolling in 2 clinical trials
Participation is free. Location is Sugarland Texas. Check this link for more information. This company is doing some amazing work.https://www.hope.bio/amp/two-clinical-trials-85-billion-stem-cells-and-a-whole-lot-of-hope-in-the-fight-against-parkinson-s#amp_tf=From%20%251%24s&aoh=16787382075972&referrer
Participation is free. Location is Sugarland Texas. Check this link for more information. This company is doing some amazing work.https://www.hope.bio/amp/two-clinical-trials-85-billion-stem-cells-and-a-whole-lot-of-hope-in-the-fight-against-parkinson-s#amp_tf=From%20%251%24s&aoh=16787382075972&referrer
7springshollow
in
Cure Parkinson's
2 years ago
Sleeping aid with Afib.
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
Just curious to see what you folks that have problems going to sleep have been prescribed to help and not affect your Afib. I've tried, Benadryl, valarian, clemastine, and meletonin and they either aggravate my afib or just don't work. I might need to have a doctor call in a prescription as the over
riffjack846
in
AF Association
2 years ago
Five Common Supplements That Have Shown Benefit In Glioblastoma Studies
Hello, my name is Art. I joined this forum recently to share information about five supplements that have shown benefit for glioblastoma in studies. I hope this information will be useful in helping to deal with glioblastoma. I only discussed two of the supplements in this original post and the
Hello, my name is Art. I joined this forum recently to share information about five supplements that have shown benefit for glioblastoma in studies. I hope this information will be useful in helping to deal with glioblastoma. I only discussed two of the supplements in this original post and the
chartist
in
Glioblastoma Support
2 years ago
Benadryl and afib
Hello everyone, just want to clear something up in case there were any with doubts. Just got back from the ER at local VA Hospital due to a blood pressure of 180/99, called 911 they sent paramedics, just before they got here took blood pressure it was 199/103. They came in the house did an ekg and blood
Hello everyone, just want to clear something up in case there were any with doubts. Just got back from the ER at local VA Hospital due to a blood pressure of 180/99, called 911 they sent paramedics, just before they got here took blood pressure it was 199/103. They came in the house did an ekg and blood
kocoach
in
Atrial Fibrillation Support
2 years ago
recurring problem to ablate or not
a couple of months ago i wrote asking for advice should itake up offer of ablation if it was made near to my travel to australia. for christmas. had lots of really helpful replies Bob, Buffafly and lotsmore. I felt reassured about the whole ablation thing (previous very undecided) gave myself a cut
a couple of months ago i wrote asking for advice should itake up offer of ablation if it was made near to my travel to australia. for christmas. had lots of really helpful replies Bob, Buffafly and lotsmore. I felt reassured about the whole ablation thing (previous very undecided) gave myself a cut
foxglove1
in
Atrial Fibrillation Support
2 years ago
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