Search
Search
About
Log in
Join
Experiences with
Arteritis
Posts
Communities
5,256 public posts
Filter results
Immune system
Hi I was finally diagnosed last year with psoriatic arthritis after years of misdiagnoses. Had to stop methotrexate owing to liver and being unwell. Got better now had to stop leflunomide as unwell again. Groan Trying to hold down full time job and struggling. Any ideas on how to stay well
Hi I was finally diagnosed last year with psoriatic arthritis after years of misdiagnoses. Had to stop methotrexate owing to liver and being unwell. Got better now had to stop leflunomide as unwell again. Groan Trying to hold down full time job and struggling. Any ideas on how to stay well
Yetimarie
in
NRAS
5 years ago
Applying for PIP
Hi I have sent for the PIP forms. Looking at them half the questions I can’t answer, as I don’t need help to eat or prepare food. I can shower myself. I am in constant pain, and am always tired. I have a cleaner to help once a week and I have to pay someone to do my garden. Has anyone applied for PIP
Hi I have sent for the PIP forms. Looking at them half the questions I can’t answer, as I don’t need help to eat or prepare food. I can shower myself. I am in constant pain, and am always tired. I have a cleaner to help once a week and I have to pay someone to do my garden. Has anyone applied for PIP
annie1954
in
NRAS
5 years ago
Rhumatoid arthritis
High has any one had hives with Ra and what other symptoms raised platelets as well
High has any one had hives with Ra and what other symptoms raised platelets as well
starlight123
in
NRAS
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
3”Polys”
I have PMR, Seronegative Poly Arthritis and now Poly Neuropathy. Because of severe pain my doctor has suggested I take Tramadol. I’ve read the side effects and they don’t sound pleasant!! Anyone had experience with this drug?
I have PMR, Seronegative Poly Arthritis and now Poly Neuropathy. Because of severe pain my doctor has suggested I take Tramadol. I’ve read the side effects and they don’t sound pleasant!! Anyone had experience with this drug?
Constance13
in
PMRGCAuk
5 years ago
New here.
Hello, I’ve recently been diagnosed with rheumatoid arthritis and I am due to start taking Enbrel in a couple of weeks. Can anyone tell me how quickly the medication started helping?
Hello, I’ve recently been diagnosed with rheumatoid arthritis and I am due to start taking Enbrel in a couple of weeks. Can anyone tell me how quickly the medication started helping?
bjones1888
in
Cure Arthritis Community
5 years ago
Rheumy visit today.
Learnt something new today at my appointment. I didn't know (or hadn't taken in) that as someone who is morbidly obese, I should not expect my CRP to get down to what is shown as normal levels. My CRP is at it's lowest in 3 years currently, I am feeling well, able to do more and down to 9mg. I am
Learnt something new today at my appointment. I didn't know (or hadn't taken in) that as someone who is morbidly obese, I should not expect my CRP to get down to what is shown as normal levels. My CRP is at it's lowest in 3 years currently, I am feeling well, able to do more and down to 9mg. I am
IdasMum
in
PMRGCAuk
5 years ago
Psoriatic arthritis
Hello all... hope everyone is well / coping / happy.. I’ve been dipping in and out reading post and this is the first place I turn too for friendly advice as I find my self with yet another challenge .. how we all love a challenge! After vindication from fibromyalgia last year - only took 8 years 😜
Hello all... hope everyone is well / coping / happy.. I’ve been dipping in and out reading post and this is the first place I turn too for friendly advice as I find my self with yet another challenge .. how we all love a challenge! After vindication from fibromyalgia last year - only took 8 years 😜
kathyD64
in
Hughes Syndrome APS Forum
5 years ago
Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
5 years ago
Pain at 3months,doctor acts like I should be healed.
I'm at 3 mos, total knee replacement, I hurt. My doctor says I should be healed. The ibuprofen nor the tylenol works. I've been working out with a recumbent bike and treadmill. I feel better when I'm moving, after I sit,,,my knee is swollen red/blackish. I put ice on it, only thing that helps. Then
I'm at 3 mos, total knee replacement, I hurt. My doctor says I should be healed. The ibuprofen nor the tylenol works. I've been working out with a recumbent bike and treadmill. I feel better when I'm moving, after I sit,,,my knee is swollen red/blackish. I put ice on it, only thing that helps. Then
TrueS
in
Pain Concern
5 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
5 years ago
Airing Pain 109: Fibromyalgia
Fibromyalgia management’s revised recommendations, walking as self-management, and one person’s journey living with FM Programme link: https://audioboom.com/posts/7133376-fibromyalgia Fibromyalgia (FM) affects around 2% of the UK population, with 80-90% of those being women, and being a widely misunderstood
Fibromyalgia management’s revised recommendations, walking as self-management, and one person’s journey living with FM Programme link: https://audioboom.com/posts/7133376-fibromyalgia Fibromyalgia (FM) affects around 2% of the UK population, with 80-90% of those being women, and being a widely misunderstood
PainConcernProjects
Pain Concern
in
Pain Concern
5 years ago
Antibiotics in RA
I have been prescribed Minocycline for three months to see if it will be helpful in reducing the swelling in my joints. If it does not help I may start anti tnf therapy. I would be interested to hear from anyone who has had experience of this treatment. Fingers crossed for success I have tried many
I have been prescribed Minocycline for three months to see if it will be helpful in reducing the swelling in my joints. If it does not help I may start anti tnf therapy. I would be interested to hear from anyone who has had experience of this treatment. Fingers crossed for success I have tried many
Pastels
in
NRAS
5 years ago
CBD oil with AF and blood thinners
My mum has painful arthritis and we are considering using CBD oil to manage it, leaving a 4 hour gap between medicine. Just wondering what people's experience has been ???
My mum has painful arthritis and we are considering using CBD oil to manage it, leaving a 4 hour gap between medicine. Just wondering what people's experience has been ???
JoanneG45
in
AF Association
5 years ago
Pain relief
Waiting to start on my medication but wondering if anyone can recommended any medication/ointments/creams/herbal medication that eases the pain of psa. Even if it’s just to get some sleep. Thanks in advance.
Waiting to start on my medication but wondering if anyone can recommended any medication/ointments/creams/herbal medication that eases the pain of psa. Even if it’s just to get some sleep. Thanks in advance.
cba84
in
NRAS
5 years ago
Pain relief
Waiting to start on my medication but wondering if anyone can recommended any medication/ointments/creams/herbal medication that eases the pain of psa. Even if it’s just to get some sleep. Thanks in advance.
Waiting to start on my medication but wondering if anyone can recommended any medication/ointments/creams/herbal medication that eases the pain of psa. Even if it’s just to get some sleep. Thanks in advance.
cba84
in
Arthritis Action
5 years ago
Arthritis Pain
What is the best pain killer to combat arthritis, its a long term condition because of my age (72) Thanks.
What is the best pain killer to combat arthritis, its a long term condition because of my age (72) Thanks.
Alanjones
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
arthritis
I think I know why my rheumy is so dismissive of my arthritis, I have the wrong type. Apparently it is rheumatoid arthritis that goes with autoimmune issues and I have osteoarthritis. I am just "wear and tear" despite being ill for most of my life and probably having used my joints less than other healthy
I think I know why my rheumy is so dismissive of my arthritis, I have the wrong type. Apparently it is rheumatoid arthritis that goes with autoimmune issues and I have osteoarthritis. I am just "wear and tear" despite being ill for most of my life and probably having used my joints less than other healthy
suzannah16
in
LUPUS UK
5 years ago
Week 3 so far so good
I’m on week 3 enjoying it so far. I am doing this to help lose weight and get fit. I have rheumatoid arthritis so need to build up my exercise slowly this app is helping me to do this. I’m so pleased as I always loved running.
I’m on week 3 enjoying it so far. I am doing this to help lose weight and get fit. I have rheumatoid arthritis so need to build up my exercise slowly this app is helping me to do this. I’m so pleased as I always loved running.
Chelle70
in
Couch to 5K
5 years ago
Apology
Most of the folks on this forum have a wonderful, empathetic spirit that is quite comforting and makes me wish I could say things in such a way. Forgive me for being such a 'redneck' and blunt, and sometimes sarcastic person in words. I try to remember that sarcasm is like sulfuric acid to relationships
Most of the folks on this forum have a wonderful, empathetic spirit that is quite comforting and makes me wish I could say things in such a way. Forgive me for being such a 'redneck' and blunt, and sometimes sarcastic person in words. I try to remember that sarcasm is like sulfuric acid to relationships
Nanna71
in
NRAS
5 years ago
suffering in silence
i suffer from what my consultant has told me is "aggressive rheumatoid arthritis" also diagnosed with bronchiectasis and a recent Myocardio gram had come back as abnormal! i struggle to bear weight on hips knees feet, cant use crutches due to painfull hands elbows and shoulders at the moment im struggling
i suffer from what my consultant has told me is "aggressive rheumatoid arthritis" also diagnosed with bronchiectasis and a recent Myocardio gram had come back as abnormal! i struggle to bear weight on hips knees feet, cant use crutches due to painfull hands elbows and shoulders at the moment im struggling
united61
in
NRAS
5 years ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
NRAS
1872 results
PMRGCAuk
821 results
Arthritis Action
507 results
View top 10 communities
Sort by
Most Relevant
Newest