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A good day today
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
Wanted to share some good news, having asked for help and advice so much over the last 5 years. Dad had initial PSA of 17 and it was believed localised (2c) and received surgery in June 2018. Failed with a low score of 0.08, upgrade to 3a and subsequently received radiation in January 2019. 37 sessions
k538
in
Prostate Cancer Network
7 months ago
Just been told I have two years to live.
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
ChristopherM123
in
Advanced Prostate Cancer
7 months ago
Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
7 months ago
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nubequa
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
JolleySprings
in
Advanced Prostate Cancer
7 months ago
lucrin injections v firmagon
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Brianne07
in
Advanced Prostate Cancer
7 months ago
Numb feet
Hi I have PSa and get very painful toes and other feet pain. My only question as I take all an sundry pills for all the issues I have is does anyone else get the numbness of their feet? it normally starts at the toes and then works back along the underside of my feet. Its most strange. Thanks Paul
Hi I have PSa and get very painful toes and other feet pain. My only question as I take all an sundry pills for all the issues I have is does anyone else get the numbness of their feet? it normally starts at the toes and then works back along the underside of my feet. Its most strange. Thanks Paul
Greenmil3
in
Beyond Psoriasis
7 months ago
Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
7 months ago
Any advice for a specialist in NYC to monitor my post-RP PSA?
I'm moving cross-country to a new job in New York City soon, so I am going to need someone to monitor my PSA. I had a RP a bit more than 3 years ago. My PSA was always <0.06 for the first two years, and over the last year or so the numbers have wavered between <0.06 and 0.03. So, still "undetectable"
I'm moving cross-country to a new job in New York City soon, so I am going to need someone to monitor my PSA. I had a RP a bit more than 3 years ago. My PSA was always <0.06 for the first two years, and over the last year or so the numbers have wavered between <0.06 and 0.03. So, still "undetectable"
Ribotom
in
Prostate Cancer Network
7 months ago
Thank you and more questions
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
Scorpio53
in
Prostate Cancer Network
7 months ago
jaw discomfort
stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started with firmagon every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone. Psma cat scans all good
stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started with firmagon every 28 days and exgiva. After about 2yrs got dead jaw syndrome and stopped exgiva. All healed up In about 9 months and never went back on exgiva . All is well 1.5 psa <3 testosterone. Psma cat scans all good
Dannyboy48
in
Advanced Prostate Cancer
7 months ago
No treatment. No faith. No hope.
I was diagnosed with prostate cancer 2 years ago at age 56. I have decided to not have treatment since my doctor said I would never be able to have an erection again, and as a gay man that would be a living hell to have much desire but no outlet. I have no faith in anything or anyone, much less a higher
I was diagnosed with prostate cancer 2 years ago at age 56. I have decided to not have treatment since my doctor said I would never be able to have an erection again, and as a gay man that would be a living hell to have much desire but no outlet. I have no faith in anything or anyone, much less a higher
crazysexyfun
in
Prostate Cancer And Gay Men
7 months ago
Continue on Eclipse Trial or not?
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
SViking
in
Advanced Prostate Cancer
7 months ago
Into the 4th year, updates and next step
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
• Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started abiraterone and Zoladex. • Feb 2020 PSA Nadir 0.01 minimum side effects from abi+ADT • April 2020: RT 25 sessions 79 Gy, covering prostate, lymph
Juliane314
in
Advanced Prostate Cancer
7 months ago
PSMA PET CT results
PSA 0.2. Would appreciate any comments on the results of my recent PSMA PET CT SCAN: EXAM: NUC PET PSMA PROSTATE, 07/21/2023 13:33 PM CLINICAL INDICATIONS: Carcinoma of prostate; , COMPARISON: Compared to prior outside PET/CT study dated October 11, 2022 CT DOSE: DLP: 689 mGy x cm kVp: 120
PSA 0.2. Would appreciate any comments on the results of my recent PSMA PET CT SCAN: EXAM: NUC PET PSMA PROSTATE, 07/21/2023 13:33 PM CLINICAL INDICATIONS: Carcinoma of prostate; , COMPARISON: Compared to prior outside PET/CT study dated October 11, 2022 CT DOSE: DLP: 689 mGy x cm kVp: 120
LowT
in
Active Surveillance - Prostate Cancer
7 months ago
Need help in understanding PSA level recurrence after treatment.
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During that treatment, my PSA fell to < 0.01 and remained there until the end of the treatment. I had a blood test taken last Friday and it shows that
Mascouche
in
Advanced Prostate Cancer
7 months ago
PSMA Pylarify Test
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the current PSA level it would appear there is an almost 90% chance of locating cancer somewhere. Also of some great interest to the doctor(s) is my status
Cancer2x
in
Advanced Prostate Cancer
7 months ago
Intermittent ADT
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3 month Lupron shot which reduces my PSA to 0.24 ug/l. I'm considering going on IADT....6 months of ADT followed by 6 months break and repeat. Anyone
John347
in
Advanced Prostate Cancer
7 months ago
Is creatine safe?
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Hi all after 37 radiation sessions I started back on weight training 3 times a week.I was also on ADT for 24 months.I’m 70 and my Gleason scale was 8 my PSA is now totally ok.I finished ADT 9 months ago and am only just feeling glimmerings of libido.Does anyone have any knowledge as to if it’s safe to
Coggeshall
in
Prostate Cancer Network
7 months ago
Living life after a prostatectomy
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
In 2021 was diagnosed with prostate cancer. I went through the operation and 2 months later lost my spouse of almost 50 years. Obviously, I had a lot put on my plate at one time. I'm on hormone therapy and it's dropped my PSA from 1 to .1. I would love to talk to someone who is going through the same
Studio1954
in
Prostate Cancer And Gay Men
7 months ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
7 months ago
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