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Buprenorphine side effects
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
davchar23
in
Restless Legs Syndrome
1 month ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Iron studies blood test results
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Scubaholic
in
Restless Legs Syndrome
1 month ago
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My mom just got diagnosed with CLL at 59 - we have questions - thank you for all the support on my previous post!
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
Chickenoodlesoup
in
CLL Support
1 month ago
new to RLS
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
Rosecup
in
Restless Legs Syndrome
1 month ago
folate dropping
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
MuppDog
in
Pernicious Anaemia Society
1 month ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
2 months ago
Blood results
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
MLJ2024
in
Pernicious Anaemia Society
2 months ago
vitamin B12 injection
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
sidneymark70
in
Thyroid UK
2 months ago
Confused about iron infusion and low ferritin.
Am I reading it wrong when Dr. Winkelmann recommends infusion if ferritin is 50 – 75 mcg/L but iron tablets if ferritin is below 50 mcg/L or lower? Gibbel
Am I reading it wrong when Dr. Winkelmann recommends infusion if ferritin is 50 – 75 mcg/L but iron tablets if ferritin is below 50 mcg/L or lower? Gibbel
Gibbel
in
Restless Legs Syndrome
2 months ago
late delivery of MMH bloods again
Last week there were problems delivering my bloods in a timely manner so the
anaemia
test could not be done. They did send me another pack out which I did Monday. Did the bloods posted them in priority post box as someone suggested.
Last week there were problems delivering my bloods in a timely manner so the
anaemia
test could not be done. They did send me another pack out which I did Monday. Did the bloods posted them in priority post box as someone suggested.
Auders
in
Thyroid UK
1 month ago
where to get b12 injections to self administer?
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
Popcornlover1
in
Pernicious Anaemia Society
2 months ago
folic acid
Is there a good resource showing the need for good folate levels alongside B12 injections? I’m on 4-weekly B12 injections but my latest serum folate blood test is at the very low end of the range, but technically in range according to the NHS so ‘no action required’. It’s gone down while I’ve been
Is there a good resource showing the need for good folate levels alongside B12 injections? I’m on 4-weekly B12 injections but my latest serum folate blood test is at the very low end of the range, but technically in range according to the NHS so ‘no action required’. It’s gone down while I’ve been
Pa234aw
in
Pernicious Anaemia Society
2 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
2 months ago
B12 defficiency
Could one of the administrators on this site please tell me if macrocytic
anaemia
is the same as Pernicious
Anaemia
. Thank you.
Could one of the administrators on this site please tell me if macrocytic
anaemia
is the same as Pernicious
Anaemia
. Thank you.
Meerkat1234
in
Pernicious Anaemia Society
10 months ago
yorkshiregirl4
I am thinking of arranging an appointment with a Neurologist but I am having great difficulty finding any Consultant who as an interest in Pernicious
Anaemia
.
I am thinking of arranging an appointment with a Neurologist but I am having great difficulty finding any Consultant who as an interest in Pernicious
Anaemia
.
yorkshiregirl4
in
Pernicious Anaemia Society
1 year ago
B12 Injections and Folic Acid question
Hi! I am starting my course of B12 injections on Monday and my GP also gave me a prescription for folic acid tablets too but said not to start them until my injections. I just wondered, did anyone else take folic acid with their injections and when did you start? On day one of the injections? My prescription
Hi! I am starting my course of B12 injections on Monday and my GP also gave me a prescription for folic acid tablets too but said not to start them until my injections. I just wondered, did anyone else take folic acid with their injections and when did you start? On day one of the injections? My prescription
Hidden
in
Pernicious Anaemia Society
2 months ago
Help sought with iron panel, please
I took an Advanced Thyroid panel with Medichecks on 9th February, and my ferritin came back much lower than optimal, to the point where their GP commented that it could be increased: Ferritin 51.4 (30-264) 9.15% through range I followed the advice I've seen posted here over the years and took a
I took an Advanced Thyroid panel with Medichecks on 9th February, and my ferritin came back much lower than optimal, to the point where their GP commented that it could be increased: Ferritin 51.4 (30-264) 9.15% through range I followed the advice I've seen posted here over the years and took a
Thalia56
in
Thyroid UK
2 months ago
Besremi
Is Besremi used for ET or just PV? I was thought to have PV due to being Jak2+ & having elevated hemoglobin/hematocrit levels. When I had a bone marrow biopsy it was pretty much normal so I was then said to be MPN-U. I am presently on HU 500mg every other day. My hematocrit & hemoglobin are now
Is Besremi used for ET or just PV? I was thought to have PV due to being Jak2+ & having elevated hemoglobin/hematocrit levels. When I had a bone marrow biopsy it was pretty much normal so I was then said to be MPN-U. I am presently on HU 500mg every other day. My hematocrit & hemoglobin are now
ERei
in
MPN Voice
2 months ago
PNH - blood test
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
I just received this PNH test result and was wondering if anyone knows what it was testing for. I don't see my doctor until next week and I am curious. Thanks, Jack INTERPRETATION Flow Cytometry analysis did not detect RBC and WBC with PNH-associated phenotype. RBC, Granulocytes and Monocytes show
rcusher
in
CLL Support
2 months ago
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