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Help with next appointment following loading doses
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
GW1000
in
Pernicious Anaemia Society
10 months ago
blood count results?
Hi everyone! 😊 I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested in… I am currently awaiting my yearly full vitamin panel blood test -
Hi everyone! 😊 I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested in… I am currently awaiting my yearly full vitamin panel blood test -
ThyroidObsessed
in
Thyroid UK
11 months ago
Advice
I was diagnosed with Pernicious
Anaemia
(currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been at around this mark since 2021 at least.
I was diagnosed with Pernicious
Anaemia
(currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been at around this mark since 2021 at least.
Mark2027
in
Thyroid UK
11 months ago
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folic acid
I have read that taking a Folic supplement can help with
anaemia
. I have prefibrotic myelofibrosis and on hydroxycarbomide 10 x 500mg a week - platelets hover between 600-800 and am anaemic. Anyone using folic?
I have read that taking a Folic supplement can help with
anaemia
. I have prefibrotic myelofibrosis and on hydroxycarbomide 10 x 500mg a week - platelets hover between 600-800 and am anaemic. Anyone using folic?
kiwitraveller
in
MPN Voice
1 year ago
Beta blockers
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
I'm 68, female with NASH/ Cirrhosis which is compensated. I have recently been prescribed 1.25 mg of Bisoprolol Fumarate (beta blocker) but I'm so anxious about taking it as my GP seemed unsure about any effect on my liver. I was wondering if any members take beta blockers with no ill effects? I'm also
Robert1220
in
British Liver Trust
5 months ago
Serum ferritin level & RBC count help please
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ‘could’ maybe be the reason I’m still feeling exhausted/heavy tired legs?? Thank you in advance
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ‘could’ maybe be the reason I’m still feeling exhausted/heavy tired legs?? Thank you in advance
CandiR
in
Pernicious Anaemia Society
11 months ago
MPN specialist Claire Harrison
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Wilbob
in
MPN Voice
11 months ago
Magnesium
I was finding magnesium helped my migraines, but now the doctors put me on ferrous sulphate for
anaemia
and I've been told, you can't take both, as they stop each others affectiveness. I'm very worried, as my migraines seem worse since I've stopped the magnesium thankyou
I was finding magnesium helped my migraines, but now the doctors put me on ferrous sulphate for
anaemia
and I've been told, you can't take both, as they stop each others affectiveness. I'm very worried, as my migraines seem worse since I've stopped the magnesium thankyou
Mary1959
in
National Migraine Centre
1 year ago
B12 very high with normal blood results?.
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
Jodie782
in
Pernicious Anaemia Society
8 months ago
Iron infusion flopped
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
tagaxel
in
Restless Legs Syndrome
5 months ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Hi, I am a 20 year old female who has recently been diagnosed with pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Ellamae2
in
Pernicious Anaemia Society
1 year ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
8 months ago
Heme vs Non-Heme Iron Supplements
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
ReallyWondering
in
Thyroid UK
5 months ago
Molecular remission of MF which is being treated with PEG
I started Peg nearly 4 years ago at 90ug weekly; this dose was reduced to its current level nearly 3 years ago since which my counts have pretty much been stable and the only issue which came up was
anaemia
, which was treated with Epo.
I started Peg nearly 4 years ago at 90ug weekly; this dose was reduced to its current level nearly 3 years ago since which my counts have pretty much been stable and the only issue which came up was
anaemia
, which was treated with Epo.
LucyAshtonGeering
in
MPN Voice
9 months ago
CRP raised. Does this affect ferritin result in iron panel?
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
Hello all, yesterday I had lots of bloods taken.Today, I have one result back, the Serum C Reactive Protein Level, results as follows 11mg/L 0-5mg/L abnormal When my recent iron was taken it was on the lowest number of normal. Serum Transferrin was normal. Does the abnormal CRP result affect
DandyButch
in
Thyroid UK
5 months ago
Iron blood test results are back, please could you take a look for me?
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
In a previous post I gave my Ferritin result from a blood test in March (this was 36.90) and I was recommended to check my other iron levels before taking iron supplements . I now have these results back and would be really grateful if you could let me know your thoughts please : Medichecks BLOOD TEST
Alternatively
in
Thyroid UK
5 months ago
cardiac thyroidology in the Uk?
POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of
anaemia
. I am in the Uk now an ddo not have an endocrinologist, i assume I need one to get both T4 and T3.
POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of
anaemia
. I am in the Uk now an ddo not have an endocrinologist, i assume I need one to get both T4 and T3.
Potsiegal
in
Thyroid UK
10 months ago
B12 and nerve regeneration
Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain, and similar involvements with leg nerves. In searching around for related B12 information in Google Scholar I came across this article: https:
Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain, and similar involvements with leg nerves. In searching around for related B12 information in Google Scholar I came across this article: https:
WiscGuy
in
Pernicious Anaemia Society
11 months ago
Platelets increase
My mun was diagnosed with thrombocytosis around 3 yrs ago. She has been on Hydresan for these years but during the past two blood tests she had to take her platelets went up to 600 in the first one and the second one was 700..We will contact her doctor but is this something to worry about? Ever since
My mun was diagnosed with thrombocytosis around 3 yrs ago. She has been on Hydresan for these years but during the past two blood tests she had to take her platelets went up to 600 in the first one and the second one was 700..We will contact her doctor but is this something to worry about? Ever since
PHGR
in
MPN Voice
11 months ago
B12 or something else?
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Justine_Case
in
Pernicious Anaemia Society
11 months ago
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