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Undiagnosed Hashimotos update.
They ran more bloods, including, for pernicious
anaemia
, celiacs, and rheumatoid indicators.
They ran more bloods, including, for pernicious
anaemia
, celiacs, and rheumatoid indicators.
Rosieunwell
in
Thyroid UK
10 months ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
3 months ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
10 months ago
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TMS/TBS, Buprenorphine tip
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
teakabeagle
in
Restless Legs Syndrome
3 months ago
Shot in the Dark
I had iron deficient
anaemia
in 2020. Feel like I’m going mad!
I had iron deficient
anaemia
in 2020. Feel like I’m going mad!
marillo
in
Thyroid UK
10 months ago
Sitagliptin
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
CORFUORBUST
in
Restless Legs Syndrome
10 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
10 months ago
Iron status, thyroid dysfunction and iron deficiency anemia: a two-sample Mendelian randomization study
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Iron deficiency problem? But told satisfactory . Please can anyone advise
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
PJDJ_08
in
Thyroid UK
10 months ago
Non-Functional B12 Cellular Activity.
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
High neutrophil count😱
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
jointpain
in
MPN Voice
10 months ago
low iron and tremor
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
MEguy
in
Thyroid UK
10 months ago
Rapid responses to recent BMJ article
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Sleepybunny
in
Pernicious Anaemia Society
10 months ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
4 months ago
autoimmune and Hashimotos
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious
Anaemia
, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis.
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious
Anaemia
, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis.
Filicatlasy
in
Thyroid UK
6 months ago
omeprazole and Lansoprazole
I understood that with pernicious
anaemia
we had very little gastric acid. Doctors always say oh just try them, and have no answer to my question. Can any of you good folk help.
I understood that with pernicious
anaemia
we had very little gastric acid. Doctors always say oh just try them, and have no answer to my question. Can any of you good folk help.
Yingtong22
in
Pernicious Anaemia Society
1 year ago
From oxy to buprenorphine
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didn’t want
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didn’t want
Marlayna67
in
Restless Legs Syndrome
10 months ago
scared again. Blood in urine.
The symptoms can be so many things, from B12 to prostate cancer, although all the latter I have previously been tested for and Dr Klein did say I have pernicious
anaemia
. I just want peoples thoughts. Very low.
The symptoms can be so many things, from B12 to prostate cancer, although all the latter I have previously been tested for and Dr Klein did say I have pernicious
anaemia
. I just want peoples thoughts. Very low.
Gobbozoid
in
Pernicious Anaemia Society
3 months ago
EPO and IV iron infusion
She is getting EPO injection once in two weeks to treat
anaemia
. She was given iron infusion shots (500 mg)two months back. She was feeling very energetic just after two weeks. Now her haemoglobin has again came down again.
She is getting EPO injection once in two weeks to treat
anaemia
. She was given iron infusion shots (500 mg)two months back. She was feeling very energetic just after two weeks. Now her haemoglobin has again came down again.
Mentoslfc
in
Kidney Disease
11 months ago
Iron infusion
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
davina70
in
Pernicious Anaemia Society
10 months ago
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