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Hi, can anyone offer any ideas as to why ferritin has jumped from 37(mid-June) to 85.4 this wk aside from infection please?
Hi Wonder if I can pick your brains again please? My ferritin was 48 prior to loading dose March/April, then lowered to 37 which I understand is normal thing to happen on the 8wk check. I’ve just completed a yearly pinprick test(I know maybe not as reliable, but sale on &needs must!) and ferritin has
Hi Wonder if I can pick your brains again please? My ferritin was 48 prior to loading dose March/April, then lowered to 37 which I understand is normal thing to happen on the 8wk check. I’ve just completed a yearly pinprick test(I know maybe not as reliable, but sale on &needs must!) and ferritin has
Jo5454
in
Pernicious Anaemia Society
2 months ago
Hashimotos blood test results - Iron supplementation advice needed! Thank you
Hi again, This forum has been the most helpful support. Could you support me in understanding next steps following the below test results? In particular, my iron panel results seem to be very low, and I am not sure how to correct that. How should I start to supplement? I was diagnosed with hashimotos
Hi again, This forum has been the most helpful support. Could you support me in understanding next steps following the below test results? In particular, my iron panel results seem to be very low, and I am not sure how to correct that. How should I start to supplement? I was diagnosed with hashimotos
LukeFitz
in
Thyroid UK
2 months ago
Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
Madman070578
in
Pernicious Anaemia Society
10 months ago
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TSH 50.5
I have congenital haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
I have congenital haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
Porcelet
in
Thyroid UK
11 months ago
Advice please on blood results especially possible iron issues.
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
Eton
in
Thyroid UK
2 months ago
Is iron spray any good for night-time dosing?
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
SunnyJim100
in
Restless Legs Syndrome
2 months ago
Had a call from Guys
The doctor I spoke to was very nice and explained that the trial is for people on Rux but suffering from
anaemia
. Also said changing to Momolitinib was a possibility.
The doctor I spoke to was very nice and explained that the trial is for people on Rux but suffering from
anaemia
. Also said changing to Momolitinib was a possibility.
lizzziep
in
MPN Voice
10 months ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
2 months ago
PAS SEMINAR 14 October 2023
The three speakers are experts in research into Pernicious
Anaemia
and B12 and will be updating us on current ongoing research. If you are already a member you will have been sent an email to sign up. Check Spam if you havent looked at pas emails for a while.
The three speakers are experts in research into Pernicious
Anaemia
and B12 and will be updating us on current ongoing research. If you are already a member you will have been sent an email to sign up. Check Spam if you havent looked at pas emails for a while.
PAScomms
in
Pernicious Anaemia Society
1 year ago
Stopping Injections After 3 Loading Doses
As an aside, I’ve been diagnosed with non alcoholic liver disease early stages, and I had iron deficiency
anaemia
last year which was treated, and I’m under neurology and endocrinology too so as you can imagine it’s a lot to try and work through especially with being so fatigued! Thank you!
As an aside, I’ve been diagnosed with non alcoholic liver disease early stages, and I had iron deficiency
anaemia
last year which was treated, and I’m under neurology and endocrinology too so as you can imagine it’s a lot to try and work through especially with being so fatigued! Thank you!
Hidden
in
Pernicious Anaemia Society
6 months ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
2 months ago
B12 deficiency and night sweats query
Early on doctors would question it and because of a family history of pernicious
anaemia
I've had a couple of B12 tests. The last was in 2021 and was 263 (ref range 180-999) so no action. Now they just ignore the MCV as it's always abnormal.
Early on doctors would question it and because of a family history of pernicious
anaemia
I've had a couple of B12 tests. The last was in 2021 and was 263 (ref range 180-999) so no action. Now they just ignore the MCV as it's always abnormal.
rmros
in
Pernicious Anaemia Society
4 months ago
Help with timing, drinks etc for MonitorMyHealth Test
I am doing the full panel of tests for Thyroid, TPO Antibodies, Diabetes, Vitamin D, Total Cholesterol, and
Anaemia
. I have stopped biotin. Can all other supplements be continued?
I am doing the full panel of tests for Thyroid, TPO Antibodies, Diabetes, Vitamin D, Total Cholesterol, and
Anaemia
. I have stopped biotin. Can all other supplements be continued?
Carrie234
in
Thyroid UK
8 months ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
3 months ago
Vitamin b12/Folate deficiency
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Madman070578
in
Pernicious Anaemia Society
10 months ago
Blood work
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
Tbone87
in
Restless Legs Syndrome
10 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
7 months ago
How much folate is everyone taking?
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
qwertystar
in
Pernicious Anaemia Society
10 months ago
Panpharma B12 Depot out of stock at Apohealth - now what do I do?
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
FancyPants54
in
Pernicious Anaemia Society
10 months ago
online PAS seminar 14th October
It was mentioned at the AGM but I hadn’t seen anything about it, anyway hopefully this helps others find it too https://pernicious-
anaemia
-society.org/memberhomepage/ Looks like there is some interesting content😊
It was mentioned at the AGM but I hadn’t seen anything about it, anyway hopefully this helps others find it too https://pernicious-
anaemia
-society.org/memberhomepage/ Looks like there is some interesting content😊
Loupharm
in
Pernicious Anaemia Society
1 year ago
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