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Help Please regarding bloods
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Help Please Hi, I am still searching for a diagnosis after 5 years. I have been told possible Betchets, lupus, undifferentiated connective tissue disorder. I have a positive ANA, joint pain, scleritis in both eyes and ocular hypertension. My concern is I have been feeling unwell with fever, night
Suzywhizzo
in
Behçet's UK
3 years ago
Finally got to see a Rheumatologist.
I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended that I go see a Rheumatologist. When I made it to her she immediately told me that most of the tests done in a general practice office were false
I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended that I go see a Rheumatologist. When I made it to her she immediately told me that most of the tests done in a general practice office were false
_7810
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Can anyone help please
Ok so bear with me please this is a long story. So for the past 2 years I've had the following symptoms which flare up and then I feel great and the they come back with a vengeance. Nocturnal back pain where I can barely move my back when I wake up at say 3am in the morning to go to the toilet, like
Ok so bear with me please this is a long story. So for the past 2 years I've had the following symptoms which flare up and then I feel great and the they come back with a vengeance. Nocturnal back pain where I can barely move my back when I wake up at say 3am in the morning to go to the toilet, like
Babylove1111
in
LUPUS UK
3 years ago
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ANA test - Sjogrens, Lupus?
Hi, I'm a Hashi thyroid patient. I have been suffering with rashes which seem to be related to the sun. I was referred to Dermatology who performed an ANA test to rule out Lupus. My results show positive for ANA and anti-La antibodies but negative for ds-DNA. I have no clue what this may indicate - sjögren's
Hi, I'm a Hashi thyroid patient. I have been suffering with rashes which seem to be related to the sun. I was referred to Dermatology who performed an ANA test to rule out Lupus. My results show positive for ANA and anti-La antibodies but negative for ds-DNA. I have no clue what this may indicate - sjögren's
Minimouse1
in
Thyroid UK
3 years ago
Cytomegalovirus CMV positive- has anyone experienced this ?
Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver enzymes, enlarged liver on ultrasound. Rheumatologist nurse wasn’t familiar with it but on research it seems there is a link. I’m under investigations
Hi has anyone had a positive immune test for this virus CMV linked to autoimmune disorder or hepatitis? It’s come up in my blood tests with raised liver enzymes, enlarged liver on ultrasound. Rheumatologist nurse wasn’t familiar with it but on research it seems there is a link. I’m under investigations
Hidden
in
LUPUS UK
3 years ago
Borderline ANA
Hello, I have been ill on and off for several years. Tiredness, rash on face and chest, aches and pains all over, hair loss. Everytime I recover I just want to put it behind me and carry on living my life. Unfortunately, this last episode has really done me and enough us enough. So dr's, blood test and
Hello, I have been ill on and off for several years. Tiredness, rash on face and chest, aches and pains all over, hair loss. Everytime I recover I just want to put it behind me and carry on living my life. Unfortunately, this last episode has really done me and enough us enough. So dr's, blood test and
BonnyB
in
LUPUS UK
3 years ago
Taking Steroids before my first Rheumatology appointment?
Hello, I am being investigated for autoimmune disorders including lupus. I have a strong family history, rashes, history of low wbc, unexplained fever, G6PD anemia, nerve muscle and joint pain, fainting episodes, a positive ANA, (at this time, it is low at 1:40 homogeneous pattern and mytotic centrosome
Hello, I am being investigated for autoimmune disorders including lupus. I have a strong family history, rashes, history of low wbc, unexplained fever, G6PD anemia, nerve muscle and joint pain, fainting episodes, a positive ANA, (at this time, it is low at 1:40 homogeneous pattern and mytotic centrosome
ALJ780
in
LUPUS UK
3 years ago
Thyroid nodules and high TPO
Hi, I’ve been going through a lot this year and I still don’t know if I blame my liver or my thyroid or both. My liver came back as fatty and mildly enlarged in May but with a normal variation called Riedel’s lobe. My enzymes were all fine but just a tiny bit higher than the normal by like 3 points.
Hi, I’ve been going through a lot this year and I still don’t know if I blame my liver or my thyroid or both. My liver came back as fatty and mildly enlarged in May but with a normal variation called Riedel’s lobe. My enzymes were all fine but just a tiny bit higher than the normal by like 3 points.
Amethyst91
in
Thyroid UK
3 years ago
Recommend a lupus specialist.
Hi everyone. I haven't posted in a while....just haven't been in the right head space and didn't want to come on here and lay my self distructive self defeitest attitude at everyone's doorsteps as you are all going through enough yourselves. So I'll try to remain calm and logical as I type. Lol Does
Hi everyone. I haven't posted in a while....just haven't been in the right head space and didn't want to come on here and lay my self distructive self defeitest attitude at everyone's doorsteps as you are all going through enough yourselves. So I'll try to remain calm and logical as I type. Lol Does
Hidden
in
LUPUS UK
3 years ago
Does anyone recognize these symptoms? Any tips?
Having bloating, heartburn, pain in joints, weird small veins appearing on rib cage and on one leg, strange pin sized bruises looking like a rash of some type that comes and goes randomly. My eyes will go blood shot, vision will blur, I feel nauseous with headache. Some days I have diarrhea and some
Having bloating, heartburn, pain in joints, weird small veins appearing on rib cage and on one leg, strange pin sized bruises looking like a rash of some type that comes and goes randomly. My eyes will go blood shot, vision will blur, I feel nauseous with headache. Some days I have diarrhea and some
_7810
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Frustrating Rheumatology appointment
Just had my first long awaited hospital appointment and now feel totally deflated and frustrated after a patronising consultation . Ever get the feeling they have made their mind up before you go through the door, it didnt help when she asked where I worked and told her I am a nurse working in the hospital
Just had my first long awaited hospital appointment and now feel totally deflated and frustrated after a patronising consultation . Ever get the feeling they have made their mind up before you go through the door, it didnt help when she asked where I worked and told her I am a nurse working in the hospital
Kirbycreates
in
LUPUS UK
3 years ago
Initial consultation done - what expect now ??
Hi 👋 so I had initial appointment by telephone with the Rheumatologist. He was very pleasant. So he took brief history and then asked specific questions directed at some symptoms. He addressed blood results - positive ANA 1/160 ( 3 times over 7 years) He wants to run more tests bloods etc in next few
Hi 👋 so I had initial appointment by telephone with the Rheumatologist. He was very pleasant. So he took brief history and then asked specific questions directed at some symptoms. He addressed blood results - positive ANA 1/160 ( 3 times over 7 years) He wants to run more tests bloods etc in next few
Hidden
in
LUPUS UK
3 years ago
Recent blood test advice please
Hi and sorry I know this has been asked but I can’t find the pathology links - I’ve just had private blood test results. ANA positive, was in January when had GBS and was 6 years ago too with symptoms. Anti Ss A 2.48 so positive? And was before too. Various others indicated high red blood cell and lymph
Hi and sorry I know this has been asked but I can’t find the pathology links - I’ve just had private blood test results. ANA positive, was in January when had GBS and was 6 years ago too with symptoms. Anti Ss A 2.48 so positive? And was before too. Various others indicated high red blood cell and lymph
Hidden
in
LUPUS UK
4 years ago
Does this look like a lupus rash?
Hello, I hope everyone is doing great! I've never had any symptoms (no hair loss, joint pains, fever, fatigue etc.) and I only showed positive ANA after a neurological irelevant blood test. My neurologist ordered ALL the antibodies (ENA, b2, ANCA, AMA etc.) and they are all negative. But he said I should
Hello, I hope everyone is doing great! I've never had any symptoms (no hair loss, joint pains, fever, fatigue etc.) and I only showed positive ANA after a neurological irelevant blood test. My neurologist ordered ALL the antibodies (ENA, b2, ANCA, AMA etc.) and they are all negative. But he said I should
FF96
in
LUPUS UK
4 years ago
Hello
Hello. I'm new here, after almost 2 years I finally saw Rheumatologist today. My ANA test is negative, but the doctor says I have all signs of Lupus. Raised CRP and ESR levels, hair loss, skin rashes, joint pain, fatigue etc. Have had cortsteroid injection today with a review in a few months to start
Hello. I'm new here, after almost 2 years I finally saw Rheumatologist today. My ANA test is negative, but the doctor says I have all signs of Lupus. Raised CRP and ESR levels, hair loss, skin rashes, joint pain, fatigue etc. Have had cortsteroid injection today with a review in a few months to start
ad397
in
LUPUS UK
4 years ago
DS dna antibody or ANA antibody
Has anyone had a positive ANA or a positive DS dna titer?
Has anyone had a positive ANA or a positive DS dna titer?
Dotie
in
Thyroid UK
4 years ago
Lupus diagnosis Incorrect???
Hi guys, i came on here back in june to talk about how i was diagnosed with SLE with only a positive ana and clinical symptoms, my rheumatologist at the time said even if my further blood tests came back positive this is most likely the diagnosis since lupus can take forever to show in the blood work
Hi guys, i came on here back in june to talk about how i was diagnosed with SLE with only a positive ana and clinical symptoms, my rheumatologist at the time said even if my further blood tests came back positive this is most likely the diagnosis since lupus can take forever to show in the blood work
aimenkhattak27
in
LUPUS UK
4 years ago
New to lupus
I have been diagnosed with lupus Positive ANA double stranded DNA. Reading the posts on the site has scared me and I feel more anxious. Do you get better? It’s all seems so bad and frightening.
I have been diagnosed with lupus Positive ANA double stranded DNA. Reading the posts on the site has scared me and I feel more anxious. Do you get better? It’s all seems so bad and frightening.
Lottie12345
in
LUPUS UK
4 years ago
Hi everyone, I haven't been here for a while!
I've got about a year or so history of blood tests showing my thyroid levels not being quite right; I have been discharged by the endocrinology department and my GP has said she is unable to get me medication as it goes against NHS guidelines. My latest blood tests were: TSH 1.18 (range 0.27 - 4.2) T4
I've got about a year or so history of blood tests showing my thyroid levels not being quite right; I have been discharged by the endocrinology department and my GP has said she is unable to get me medication as it goes against NHS guidelines. My latest blood tests were: TSH 1.18 (range 0.27 - 4.2) T4
saltylu
in
Thyroid UK
4 years ago
Hypo to Hyper Thyroid readings - what’s happening ?
Hi guys , I’m a 46 year old female, very over weight and on Amlodipine 10mg and Thyroxine 75mg for hypertension / hashimotos. I’ve been feeling awful lately : Nausea / vomiting , Very swollen feet, ankles & shins, cellulitis type rash all over my lower legs, conjunctivitis, blepharitis and orbital
Hi guys , I’m a 46 year old female, very over weight and on Amlodipine 10mg and Thyroxine 75mg for hypertension / hashimotos. I’ve been feeling awful lately : Nausea / vomiting , Very swollen feet, ankles & shins, cellulitis type rash all over my lower legs, conjunctivitis, blepharitis and orbital
Ex111
in
Thyroid UK
4 years ago
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