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Hi All,I suffer from Fibromyalgia, Lupus sle. It is my first time on your community so am asking the question below.
I was referred to a neurologist as I have been suffering with burning and painful fingertips, which also affects my arms , also my toes and calfs. Although my fingers and arms are the worst affected. They have steadily got worse over the last few years, in fact unbearable.It used to be mainly in the
I was referred to a neurologist as I have been suffering with burning and painful fingertips, which also affects my arms , also my toes and calfs. Although my fingers and arms are the worst affected. They have steadily got worse over the last few years, in fact unbearable.It used to be mainly in the
Loopy-loo
in
Restless Legs Syndrome
12 years ago
oh my goodness!!
hi all,just a quick update,i had complained to ATOS about the fabricated medical report,i have a new date for 2nd tribunal this friday,was getting itchy as i hadnt heard from them...then low and behold i recieved an email today..they admitted that there was descrepancies in the atos dr report,and have
hi all,just a quick update,i had complained to ATOS about the fabricated medical report,i have a new date for 2nd tribunal this friday,was getting itchy as i hadnt heard from them...then low and behold i recieved an email today..they admitted that there was descrepancies in the atos dr report,and have
pondminstrel
in
Fibromyalgia Action UK
12 years ago
Update 3rd week of mtx.
Hi everyone,I hope you are all well,well you know wot I mean :))).just a quick update for you all,I hav just taken my 3rd lot of mtx,and so far so good with this tablet,just a niggly couple of side effects so far but manageable.im not sure when and if I will start to feel benefit,but going with the flow.we
Hi everyone,I hope you are all well,well you know wot I mean :))).just a quick update for you all,I hav just taken my 3rd lot of mtx,and so far so good with this tablet,just a niggly couple of side effects so far but manageable.im not sure when and if I will start to feel benefit,but going with the flow.we
Shell1967
in
NRAS
12 years ago
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Any thoughts? please
hi all,i sent a complaint to DWP about my ATOS report for DLA i recieved a letter this morning saying ..thank you, my complaint has now been forwarded to ATOS offices,and they will write to me...any thoughts? is this a possitive sign...or not? xx
hi all,i sent a complaint to DWP about my ATOS report for DLA i recieved a letter this morning saying ..thank you, my complaint has now been forwarded to ATOS offices,and they will write to me...any thoughts? is this a possitive sign...or not? xx
pondminstrel
in
Fibromyalgia Action UK
12 years ago
HI all,I have been on 40mg Citalopram for 5 weeks & had lots of stomach discomfort.Anybody else had anything like this?
Gretch
in
Anxiety Support
12 years ago
Round 3 its back!!!!
Hello everyone, I hav'nt been blogging for a while as i have been just so overwhelmed by this all.i had 2nd line chemo starting in dec 2011 plaxital and gemcetobine. I was extreamely poorly with low blood counts, liver function problems etc they stopped my treatment after 5 cycles. My ca125 went down
Hello everyone, I hav'nt been blogging for a while as i have been just so overwhelmed by this all.i had 2nd line chemo starting in dec 2011 plaxital and gemcetobine. I was extreamely poorly with low blood counts, liver function problems etc they stopped my treatment after 5 cycles. My ca125 went down
parvinc
in
My Ovacome
12 years ago
WILL THIS EVER END ?????
Hi all.....I was new some months ago but havnt posted much as sooo fed up with my constant complaints and due to loosing my business of 25yrs in 2010 was told to do claim for DLA altho am officially still trying to be self-employed but have been very down after my gp filled in her part of the form as
Hi all.....I was new some months ago but havnt posted much as sooo fed up with my constant complaints and due to loosing my business of 25yrs in 2010 was told to do claim for DLA altho am officially still trying to be self-employed but have been very down after my gp filled in her part of the form as
lavenderheart
in
Fibromyalgia Action UK
12 years ago
Surely this can't be good for you!!!!!
Hi all,I just wondered what you all thought? My daughter is at the moment being treated for systemic lupus ,and has been for about 10 months,she is on many meds including antibiotics,plaquil,methotrexate ,steroids etc. In the last 6 weeks she has had pneumonia,a bad skin infection all over now a sinus
Hi all,I just wondered what you all thought? My daughter is at the moment being treated for systemic lupus ,and has been for about 10 months,she is on many meds including antibiotics,plaquil,methotrexate ,steroids etc. In the last 6 weeks she has had pneumonia,a bad skin infection all over now a sinus
nanny4
in
LUPUS UK
12 years ago
Good morning all you early risers......
Morning all,i am down here early not because of the knee that is well on the road to being mended,stil a way to go but news positive on that score. The reason i'm up so early is that the good old RA didn't want to enjoy my good news for too long and it wanted to get into mischief to spoil what
Morning all,i am down here early not because of the knee that is well on the road to being mended,stil a way to go but news positive on that score. The reason i'm up so early is that the good old RA didn't want to enjoy my good news for too long and it wanted to get into mischief to spoil what
sylvi
in
NRAS
12 years ago
Feel weak like my body is going to shut down
Does anyone else get this and how do you deal with it? I feel constantly drained of energy and really struggling to get through the day. It makes my anxiety worse because I have this fear I'll just collapse or shut down completely. It feels very much like I will collapse. I feel like I don't have the
Does anyone else get this and how do you deal with it? I feel constantly drained of energy and really struggling to get through the day. It makes my anxiety worse because I have this fear I'll just collapse or shut down completely. It feels very much like I will collapse. I feel like I don't have the
anxiousrecoverer
in
Anxiety Support
12 years ago
FMS and Dilated Cardiomyopathy
I have had FMS for many years now and had come to terms with the changes this had made to my life...recently after having a cardiac arrest I was diagnosed having cardiomyopathy DCM (Dilated). I had an ICD fitted whilst I was in hospital because of the high risk of me having sudden death attacks. I have
I have had FMS for many years now and had come to terms with the changes this had made to my life...recently after having a cardiac arrest I was diagnosed having cardiomyopathy DCM (Dilated). I had an ICD fitted whilst I was in hospital because of the high risk of me having sudden death attacks. I have
Bev95
in
Fibromyalgia Action UK
12 years ago
Rocking all round the garden........
Morning all,i hope you all slept well. I was down here at about 1.30am. I fell asleep by about 10am and slept well until midnight. I then tried to get back to sleep without success, so i came down here. I have since had 3hrs sleep. My ra was really giving me hell during the night,this is getting past
Morning all,i hope you all slept well. I was down here at about 1.30am. I fell asleep by about 10am and slept well until midnight. I then tried to get back to sleep without success, so i came down here. I have since had 3hrs sleep. My ra was really giving me hell during the night,this is getting past
sylvi
in
NRAS
12 years ago
Facebook page
Hi all, I have just launched a face book page which as well as shows my photography on it............. it also has information & links to Hughes Syndrome / Foundation on it too :) I wanted to start one for my photography ready for when I hopefully start my own business next year......so I thought
Hi all, I have just launched a face book page which as well as shows my photography on it............. it also has information & links to Hughes Syndrome / Foundation on it too :) I wanted to start one for my photography ready for when I hopefully start my own business next year......so I thought
Suzypawz
in
Hughes Syndrome APS Forum
12 years ago
Struggling with working!!
Hi all,I am currently struggling with my job at the mo.I work in a primary school in year 1,I have just been moved from year 4 and I am finding it so much more difficult to cope.In so much more pain on lots of meds including Butrans Patches but still hurting a lot.Frightened of losing my job as I am
Hi all,I am currently struggling with my job at the mo.I work in a primary school in year 1,I have just been moved from year 4 and I am finding it so much more difficult to cope.In so much more pain on lots of meds including Butrans Patches but still hurting a lot.Frightened of losing my job as I am
louise7
in
Fibromyalgia Action UK
12 years ago
Things are moving - literally!!
Hi all,I had a call out of the blue today from the senior nurse to the transplant team and I am going into hospital on sunday or monday (depending on bed availability) to have my 4-5 night stay to be assessed for suitability for transplant. I have had all these tests before but they have to be the most
Hi all,I had a call out of the blue today from the senior nurse to the transplant team and I am going into hospital on sunday or monday (depending on bed availability) to have my 4-5 night stay to be assessed for suitability for transplant. I have had all these tests before but they have to be the most
mrWheezy
in
Lung Conditions Community Forum
12 years ago
new julia
hi all this is my first contact, i phoned helpline today who were realy supportive and gave me info about this site. i have been diagnosed with copd waiting another c t scan on fri as i also have noduals on my lung, at this moment i am very scared carnt sleep and unable to come to terms with it all,
hi all this is my first contact, i phoned helpline today who were realy supportive and gave me info about this site. i have been diagnosed with copd waiting another c t scan on fri as i also have noduals on my lung, at this moment i am very scared carnt sleep and unable to come to terms with it all,
Posative
in
Lung Conditions Community Forum
12 years ago
do you think the media helps !!!!
I have health anxiety and I tell you what the media does not help me at all.I know we all need to be aware of symptoms etc but for health anxiety sufferers its a nightmare.I f I see an advert for anything I will have the symptoms ,my doc told me not to watch them or read the papers while Im like this
I have health anxiety and I tell you what the media does not help me at all.I know we all need to be aware of symptoms etc but for health anxiety sufferers its a nightmare.I f I see an advert for anything I will have the symptoms ,my doc told me not to watch them or read the papers while Im like this
Hidden
in
Anxiety Support
12 years ago
Blood tests
Hi all,I due to see rheumy on 9th July, I need to have lots of blood tests how long before seeing rheumy should I have these tests plz???
Hi all,I due to see rheumy on 9th July, I need to have lots of blood tests how long before seeing rheumy should I have these tests plz???
sheenerweener
in
NRAS
12 years ago
This is what knee looks like...
Morning all,i have posted a pic of how my knee looks now..
Morning all,i have posted a pic of how my knee looks now..
sylvi
in
NRAS
12 years ago
So sick of this
Well feeling really low at the moment dont seem to be having many good days.Im exhausted with it all.I try to concentrate on other things and do crosswords,read but my mind constantly goes back to worry about health anxiety.Any twinge strange feeling then Im off in sheer panic.When will this ever get
Well feeling really low at the moment dont seem to be having many good days.Im exhausted with it all.I try to concentrate on other things and do crosswords,read but my mind constantly goes back to worry about health anxiety.Any twinge strange feeling then Im off in sheer panic.When will this ever get
Hidden
in
Anxiety Support
12 years ago
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