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Corticoid-sparing agents
Therapeutic Advances in Chronic Disease Update on the management of giant cell arteritis Janet Roberts, Alison Clifford First Published March 28, 2017 Review Article Review of corticoid-sparing agents.
Therapeutic Advances in Chronic Disease Update on the management of giant cell arteritis Janet Roberts, Alison Clifford First Published March 28, 2017 Review Article Review of corticoid-sparing agents.
LCHRISTOP10
in
PMRGCAuk
7 years ago
Thoughts on PV/ET
There are a lot of new posters here (I’ve been here 3 months and feel like an old hand!) who are understandably nervous and worried. The dreaded cancer word and for many of us, our first real brush with our own mortality. However, there are two really important factors we need to focus on. PV and especially
There are a lot of new posters here (I’ve been here 3 months and feel like an old hand!) who are understandably nervous and worried. The dreaded cancer word and for many of us, our first real brush with our own mortality. However, there are two really important factors we need to focus on. PV and especially
Paul123456
in
MPN Voice
7 years ago
stem cell transplantation
Did anyone try stem cell transplantation?
Did anyone try stem cell transplantation?
Anne_08
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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Back to the Middle ages
Earth is flat or bone marrow transplant. Sad stories.
Earth is flat or bone marrow transplant. Sad stories.
nikolahn
in
AMN EASIER
7 years ago
New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
viamonv
in
PMRGCAuk
7 years ago
Newly diagnosed – ET Jak2+ with added drama!
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Timjonze
in
MPN Voice
7 years ago
Multiple autoimmune conditions. Lupus too?
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
MissusTee
in
LUPUS UK
7 years ago
Advice for veno-occlusive/sinosoidal obstruction disease
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Beedee87
in
British Liver Trust
7 years ago
Looks like I need to watch what I say
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
JulianJ
in
PMRGCAuk
7 years ago
Hilarious
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
jojokarak
in
British Liver Trust
7 years ago
Hello From Nigel In Cornwall.
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
OwnedByCockerSpaniel
in
CLL Support
7 years ago
Websites - useful stuff, articles, resources
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
Insight329
in
PMRGCAuk
7 years ago
Chemotherapy, a Trusty Weapon Against Cancer, Falls Out of Favor
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
joann86
in
SHARE Breast Cancer Support
7 years ago
Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
lankisterguy
Volunteer
in
CLL Support
7 years ago
Losing my friends!
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
jo19
in
Sickle Cell Society
7 years ago
Steroid withdrawal symptoms
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Jcmcd
in
PMRGCAuk
7 years ago
High Homocysteine levels
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Jan87
in
Pernicious Anaemia Society
7 years ago
on prednisone since oct 2016 had pneumonia vaccine side affects
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
arvine
in
PMRGCAuk
7 years ago
SICKLE CELL NEWS (Jan-March 2018)
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
scnews
in
Sickle Cell Society
7 years ago
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
7 years ago
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