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Experiences with
Androgen deprivation therapy (ADT)
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If Pluvicto fails…what next?
Dxed March ‘18, and has gone through the gamut of standard of care (Docetaxal, Jevtana, Ra223, Lynparza,
ADT
) and now Pluvicto. He had one round about 4 weeks ago. Bloodwork a few days after round 1 showed an increase in PSA, but significant decrease in Alk Phos.
Dxed March ‘18, and has gone through the gamut of standard of care (Docetaxal, Jevtana, Ra223, Lynparza,
ADT
) and now Pluvicto. He had one round about 4 weeks ago. Bloodwork a few days after round 1 showed an increase in PSA, but significant decrease in Alk Phos.
Nettie8200
in
Advanced Prostate Cancer
1 year ago
LIFE GIVING STORE NDT
Has anyone tried the Grass Fed Beef Thyroid NDT supplements by the Life Giving Store? Not much info online... Tks
Has anyone tried the Grass Fed Beef Thyroid NDT supplements by the Life Giving Store? Not much info online... Tks
fattyribeye
in
Thyroid UK
7 months ago
ADT medication types and timing before Radiotherapy
I wonder what the experience and clinical view is about when to start radiotherapy for advance but contained (as far as can be known by a PMSA scan). I had an unusual path as my Gleason 6 and contained one side PCa with a PSA of 7 (3+4 <10% 4) suddenly jumped to Gleason 9 after 3 months following focal
I wonder what the experience and clinical view is about when to start radiotherapy for advance but contained (as far as can be known by a PMSA scan). I had an unusual path as my Gleason 6 and contained one side PCa with a PSA of 7 (3+4 <10% 4) suddenly jumped to Gleason 9 after 3 months following focal
SimMartin
in
Prostate Cancer Network
2 years ago
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Can I still get NDT/Thyroid S?
I had to stop taking NDT when COVID halted the supply. If anyone has information on how to obtain it now, can you please PM me. Levothyroxine is dire. Thanks. Xx
I had to stop taking NDT when COVID halted the supply. If anyone has information on how to obtain it now, can you please PM me. Levothyroxine is dire. Thanks. Xx
frenchmaid
in
Thyroid UK
7 months ago
Dosage timing
How do you time your dosage of NDT. Currently on 120mg/2 grains NDT a day. i tried taking 1 grain before bed, but woke up with a puffy face!
How do you time your dosage of NDT. Currently on 120mg/2 grains NDT a day. i tried taking 1 grain before bed, but woke up with a puffy face!
HypoGuy96
in
Thyroid UK
7 months ago
Possible histamine related allergy NDT
Hello A week ago had my prescription for NDT doubled from 1/4 grain to 1/2 grain twice a day. I've been on 1/4 grain for 6 months. In the last month I have noticed my anti-histamine reactions have become quite bad. Does anyone know if NDT is high histamine? it comes from pork which supposedly is
Hello A week ago had my prescription for NDT doubled from 1/4 grain to 1/2 grain twice a day. I've been on 1/4 grain for 6 months. In the last month I have noticed my anti-histamine reactions have become quite bad. Does anyone know if NDT is high histamine? it comes from pork which supposedly is
Crankyoldbag
in
Thyroid UK
7 months ago
thyroid / vitamin results
hello , Haven’t posted here for a while . I am on 2 grains of NDT and having hypothyroidism/ Hashimotos. Recently I have done thyroid test and vitamins . Could anyone give any suggestions ? My naturopath nutritionist told me to not skip my thyroid med before test as it would should show exact numbers
hello , Haven’t posted here for a while . I am on 2 grains of NDT and having hypothyroidism/ Hashimotos. Recently I have done thyroid test and vitamins . Could anyone give any suggestions ? My naturopath nutritionist told me to not skip my thyroid med before test as it would should show exact numbers
Ari3
in
Thyroid UK
7 months ago
NDT, nighttime/before bed dosing. Waking up with a swollen face.
Hi everybody, I’ve started taking my big dose (60mg) og NDT before bed. I’ve now begun to experience, waking up with a somewhat swollen face in the morning. Have anyone had this experience. My TSH was 97 (bad, I know)!, so I’m currently trying to dial my self in. Taking 60mg NDT before bed, 30mg
Hi everybody, I’ve started taking my big dose (60mg) og NDT before bed. I’ve now begun to experience, waking up with a somewhat swollen face in the morning. Have anyone had this experience. My TSH was 97 (bad, I know)!, so I’m currently trying to dial my self in. Taking 60mg NDT before bed, 30mg
HypoGuy96
in
Thyroid UK
7 months ago
Adrenal cortex thornes
Hi Has anyone had bad side effects to thornes adrenal cortex bovine 50mg I have just started to try it past few days with a new hypoallergenic ndt just 1 capsule in the morning with 2 NDT 1 pill am and pm. Today I tried a T3 5mg at lunch to see how I felt as I felt really strange and exhausted to see
Hi Has anyone had bad side effects to thornes adrenal cortex bovine 50mg I have just started to try it past few days with a new hypoallergenic ndt just 1 capsule in the morning with 2 NDT 1 pill am and pm. Today I tried a T3 5mg at lunch to see how I felt as I felt really strange and exhausted to see
Merlio18
in
Thyroid UK
7 months ago
Blood tests while on NDT
Hello, When doing blood tests while on NDT, when is the best time to do them? And when should the last dose of NDT should be the previous day? For reference, I take half a dose at 4 AM and half at 12 PM. I have the blood test scheduled at my GP at 8:15 AM.
Hello, When doing blood tests while on NDT, when is the best time to do them? And when should the last dose of NDT should be the previous day? For reference, I take half a dose at 4 AM and half at 12 PM. I have the blood test scheduled at my GP at 8:15 AM.
Alex_p
in
Thyroid UK
7 months ago
NDT, bedtime. Heart ectopics.
Hi everyone, I was wondering if anyone in here with Hashimoto’s has been dealing with heart ectopics? I’m been trying to get rid of them for many years. 6 months ago, I started taking NDT instead of Euthyrox and after three days the ectopics almost disappeared. But! Now they have returned after
Hi everyone, I was wondering if anyone in here with Hashimoto’s has been dealing with heart ectopics? I’m been trying to get rid of them for many years. 6 months ago, I started taking NDT instead of Euthyrox and after three days the ectopics almost disappeared. But! Now they have returned after
HypoGuy96
in
Thyroid UK
7 months ago
Sleeping 12 hours per night and Low T4
I am taking NDT prescribed by my Endocrinologist. Having had unrelated surgery the hospital advised me that my blood tests showed T4 below range. I feel OK but I do sleep too much needing 12+ hours per night. Is it possible to add T4 to NDT? My Endo suggested it was not usual but advised eating 2 Brazil
I am taking NDT prescribed by my Endocrinologist. Having had unrelated surgery the hospital advised me that my blood tests showed T4 below range. I feel OK but I do sleep too much needing 12+ hours per night. Is it possible to add T4 to NDT? My Endo suggested it was not usual but advised eating 2 Brazil
Baggiebod
in
Thyroid UK
7 months ago
Reaching out to find the member who successfully did every other day hormone cycling
Anyone out there know? Someone 💯 mentioned they cycled choices with success. I believe it involved NDT. Or do you? **I fully realize this is a poor choice, just getting cornered due to price. It is not what I want. ** I just had my hormones increased yet again this week & the financial burden has
Anyone out there know? Someone 💯 mentioned they cycled choices with success. I believe it involved NDT. Or do you? **I fully realize this is a poor choice, just getting cornered due to price. It is not what I want. ** I just had my hormones increased yet again this week & the financial burden has
Litatamon
in
Thyroid UK
7 months ago
Completed the Mtn Pack of virtual hikes: Everest, Fuji, and Kilamanjaro
Just hiking them, not much of a runner after 7 1/2 years on
ADT
with anemia/Low Hgb! So grateful to be able to get outdoors and listen to Audible (On now - Conversations with Dick Winters of Easy Company from D-Day) and put miles in.
Just hiking them, not much of a runner after 7 1/2 years on
ADT
with anemia/Low Hgb! So grateful to be able to get outdoors and listen to Audible (On now - Conversations with Dick Winters of Easy Company from D-Day) and put miles in.
dockam
in
Advanced Prostate Cancer
2 years ago
Hiding head injury
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Four and a half years ago I had a concussion and I am still experiencing periods in which I have balance and coordination problems, fatigue, can't concentrate and am easily feeling overwhelmed. Since then I have picked up freelance work again, working outdoors and in educational contexts part-time.
Blackbird98
in
Headway
5 months ago
Purchase NDT?
Hello :) Please can someone private message me if they've experience with either being prescribed or buying NDT? Either UK or Spain Thanks! :)
Hello :) Please can someone private message me if they've experience with either being prescribed or buying NDT? Either UK or Spain Thanks! :)
Quesito2023
in
Thyroid UK
7 months ago
What PSA # indicates bio chemical re-occurrence in Stage4 metastatic patients who still have prostate and did not have radiation or chemo?
In my case I went straight to
adt
. what PSA values indicate BCR in a man with metastatic disease who still has a prostate? I'm having a difficult time finding this information. My MO just says that they look for trends (dblng) but does an increase albeit in a normal range indicate BCR?
In my case I went straight to
adt
. what PSA values indicate BCR in a man with metastatic disease who still has a prostate? I'm having a difficult time finding this information. My MO just says that they look for trends (dblng) but does an increase albeit in a normal range indicate BCR?
No_stone_unturned
in
Advanced Prostate Cancer
2 years ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
5 months ago
12 or 81 months ADT?
I had a recurrence last year in 1 pelvic lymph node.treated with 37 radiotherapy sessions ot all apelvis lymph nodes nplys prostate bed with
ADT
, zolodex every 3months,prescribed for 12 to 18 months.
ADT
went well early on but have some side effects as things progress.
I had a recurrence last year in 1 pelvic lymph node.treated with 37 radiotherapy sessions ot all apelvis lymph nodes nplys prostate bed with
ADT
, zolodex every 3months,prescribed for 12 to 18 months.
ADT
went well early on but have some side effects as things progress.
Runner1957
in
Prostate Cancer Network
2 years ago
Question about using synthroid and ndt
I was on synthroid for about 6 years I am at 100 mg I am having symptoms again. I asked my doctor about ndt and he gave me a prescription. I have lowered my dose of synthroid slowly to 50 mg and plan on adding in the ndt but I don't know what dose to start at. Any ideas from people that have had success
I was on synthroid for about 6 years I am at 100 mg I am having symptoms again. I asked my doctor about ndt and he gave me a prescription. I have lowered my dose of synthroid slowly to 50 mg and plan on adding in the ndt but I don't know what dose to start at. Any ideas from people that have had success
STANDY9188
in
Thyroid UK
7 months ago
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