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Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
timd59
in
Headway
2 years ago
3 Peg injections later
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Wewo01
in
MPN Voice
2 years ago
A positive A&E experience
There has been so much comment about bad hospital experiences that I thought I should report a good one. Last night, just as the death of the Queen was announced, my husband was taken ill with acute abdominal pain. I phoned 999, got a quick reply and a sympathetic response and an ambulance crew arrived
There has been so much comment about bad hospital experiences that I thought I should report a good one. Last night, just as the death of the Queen was announced, my husband was taken ill with acute abdominal pain. I phoned 999, got a quick reply and a sympathetic response and an ambulance crew arrived
Buffafly
in
AF Association
2 years ago
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The Danger of Falls and the warning signs and equipment to prevent them.
The next day I have low energy and a more prone to having
accidents
or falls. Understand what triggers your problems to arise and know when it's time to take A-day off and simply kick back and take it easy. The same goes 4 days that you start new medications on.
The next day I have low energy and a more prone to having
accidents
or falls. Understand what triggers your problems to arise and know when it's time to take A-day off and simply kick back and take it easy. The same goes 4 days that you start new medications on.
Fancy59
CommunityAmbassador
in
My MSAA Community
1 year ago
Reaching out
Hi all I recently posted about me bagging a one to one with a community support worker well this aft I went to see her with my son and it went really well my BIGGEST PROBLEM I face is the health n safety with the private rental I'm in.. I don't have anyone in my house other than family due to my chaos
Hi all I recently posted about me bagging a one to one with a community support worker well this aft I went to see her with my son and it went really well my BIGGEST PROBLEM I face is the health n safety with the private rental I'm in.. I don't have anyone in my house other than family due to my chaos
Survivor37
in
Headway
2 years ago
How common is bezoar in PD?
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
kaypeeoh
in
Cure Parkinson's
2 years ago
Moviprep colonoscopy with IBS constipation
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Bluemon75
in
IBS Network
2 years ago
Adventures in anal probing...
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
kaypeeoh
in
Cure Parkinson's
2 years ago
I have a wonderful Solicitor
hi everyone, it’s been a while since I last posted my updated news. My divorce has been put on hold for whatever reason which I do not understand. I payed out 600 pounds for flights and accommodation but had to cancel due to the above. I am feeling so much better than before as I was in a mess physically
hi everyone, it’s been a while since I last posted my updated news. My divorce has been put on hold for whatever reason which I do not understand. I payed out 600 pounds for flights and accommodation but had to cancel due to the above. I am feeling so much better than before as I was in a mess physically
1949liz
in
Headway
2 years ago
Understanding Palliative Care
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
Gcf51
in
Cure Parkinson's
2 years ago
Ruined nose job
I had a nosejob 2 weeks ago, and it ruined everything. I had a very average nose before the surgery, but i wanted to correct my bump on my side profile. Now i look bad from the side and also from the front, i look like Michael Jackson after all those surgeries and i hate it, i cry every hour, cant sleep
I had a nosejob 2 weeks ago, and it ruined everything. I had a very average nose before the surgery, but i wanted to correct my bump on my side profile. Now i look bad from the side and also from the front, i look like Michael Jackson after all those surgeries and i hate it, i cry every hour, cant sleep
Naja21
in
Changing Faces
2 years ago
Having a Bad Week
Another painful flare up and couldn't get out of the bathroom when I was due to go out. Happens so often it must be a trigger. Starts with cramps and I have a few seconds to make it to the loo. Then in and out all day with D. Had many tests, colonoscopies, SIBO etc. Tried various meds, CBT, hynotherapy
Another painful flare up and couldn't get out of the bathroom when I was due to go out. Happens so often it must be a trigger. Starts with cramps and I have a few seconds to make it to the loo. Then in and out all day with D. Had many tests, colonoscopies, SIBO etc. Tried various meds, CBT, hynotherapy
Katerina1
in
IBS Network
2 years ago
Amgevita / Adalimumab side effects
Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimumab. The side effects are now appearing which are not that good at all and hoping they will pass but my mood is up and down, feeling anxious, nauseous and tired on and off, my guts do not feel good at all, sometimes after
Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimumab. The side effects are now appearing which are not that good at all and hoping they will pass but my mood is up and down, feeling anxious, nauseous and tired on and off, my guts do not feel good at all, sometimes after
Frankiefocus
in
NRAS
2 years ago
New and need help. Sorry for long post
On Friday after his first dose he had 2 little
accidents
but has done nothing since is this normal?
On Friday after his first dose he had 2 little
accidents
but has done nothing since is this normal?
Zubbs
in
ERIC
2 years ago
So Many Things
Good morning, Everyone! It has been a lovely weekend and I was able to take my beloved husband out for a wheelchair ride. He does so enjoy being able to be outdoors. He is in probably the final stages of CBD. His speech has recently become mostly slurred yes and no. His right side is now, for all intents
Good morning, Everyone! It has been a lovely weekend and I was able to take my beloved husband out for a wheelchair ride. He does so enjoy being able to be outdoors. He is in probably the final stages of CBD. His speech has recently become mostly slurred yes and no. His right side is now, for all intents
Indiana-Girl
in
PSP Association
2 years ago
Alternatives to nappies at school
He regularly has fecal
accidents
in school and so for past few months any day he doesn't do a poo before school or if we feel he is constipated he wears a nappy to school.
He regularly has fecal
accidents
in school and so for past few months any day he doesn't do a poo before school or if we feel he is constipated he wears a nappy to school.
Kath10
in
ERIC
2 years ago
2nd recurrence 😢
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Doglover1410
in
My Ovacome
2 years ago
Zolpidem users: a debilitating surprise awaits at 65
What’s apparently scaring the doctors off is stats building up about
accidents
(at home and on the road) for the elderly – reported memory problems (for the great majority, including me nothing especially severe) and reports of strange behaviors (e.g., sleep driving) on Zolpidem.
What’s apparently scaring the doctors off is stats building up about
accidents
(at home and on the road) for the elderly – reported memory problems (for the great majority, including me nothing especially severe) and reports of strange behaviors (e.g., sleep driving) on Zolpidem.
Patrickk
in
Sleep Matters
2 years ago
Has anyone used Butyric acid for PD?
Just read something on Parkinson's News that butyric acid eliminated tremors and symptoms of Parkinson's. Sounds to good to be true. Your thoughts.
Just read something on Parkinson's News that butyric acid eliminated tremors and symptoms of Parkinson's. Sounds to good to be true. Your thoughts.
Smittybear7
in
Cure Parkinson's
2 years ago
ERFA Vs. Thyroid - S
Hello all. I would like to return on ndt or ndt + levo, I still don't know, I'll see. My body doesn't like synthetics, I've tried in every way. Last time I couldn't find ndt and I jumped back on levo and t3. I'd like to find a ndt like nature-throid was. In the meantime, I've been getting some Thyroid-S
Hello all. I would like to return on ndt or ndt + levo, I still don't know, I'll see. My body doesn't like synthetics, I've tried in every way. Last time I couldn't find ndt and I jumped back on levo and t3. I'd like to find a ndt like nature-throid was. In the meantime, I've been getting some Thyroid-S
hipolion
in
Thyroid UK
2 years ago
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