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NovoThor
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Onlymeandyou
in
Fibromyalgia Action UK
7 months ago
Calprotectin at 146 and panicking
Hey everybody. I’ve been experiencing constant abdominal discomfort for 10 weeks now. I wouldn’t say it’s pain but it’s definitely annoying, like my intestines are sore. It’s mostly lower abdomen but can be upper too. Sometimes food makes it better, sometimes worse. It happened to me 3 years ago
Hey everybody. I’ve been experiencing constant abdominal discomfort for 10 weeks now. I wouldn’t say it’s pain but it’s definitely annoying, like my intestines are sore. It’s mostly lower abdomen but can be upper too. Sometimes food makes it better, sometimes worse. It happened to me 3 years ago
CalebC
in
IBS Network
7 months ago
Incontinence
He has now almost entirely lost control of his bladder and, although he can still just about take himself to the bathroom, he really needs assistance to change his pads and there have been a lot of
accidents
.
He has now almost entirely lost control of his bladder and, although he can still just about take himself to the bathroom, he really needs assistance to change his pads and there have been a lot of
accidents
.
JAK63
in
PSP Association
3 months ago
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pmg, tapering and feeling low
hi there, I have had pmg since last September, I think bright on by the death of my partner of over 30 years, and I have been slowly tapering down to now on 2mg from 15mg, with a slight hiccup of chest infection six weeks ago when I was on 30mg for just a week. I have been ok mentally since then,
hi there, I have had pmg since last September, I think bright on by the death of my partner of over 30 years, and I have been slowly tapering down to now on 2mg from 15mg, with a slight hiccup of chest infection six weeks ago when I was on 30mg for just a week. I have been ok mentally since then,
Guilluame
in
PMRGCAuk
8 months ago
Week 9 run 3 and thank you
So decided that today was the day for the final run . Did the run with Laura who has been with me throughout (thank you) and then kept running until I completed the 5K ( very slowly) in 51 mins. Reflecting on how far I have come with C25K , you have been with me through the first year of retirement
So decided that today was the day for the final run . Did the run with Laura who has been with me throughout (thank you) and then kept running until I completed the 5K ( very slowly) in 51 mins. Reflecting on how far I have come with C25K , you have been with me through the first year of retirement
Cassandra61
Graduate
in
Couch to 5K
8 months ago
Aha - Highs & Lows
Hello peeps. I have recently between 1&2 months ago increased my levothyroxine from 75mg to 100mg.Thing is I've started having days where I'm extremely high and very excitable (euphoric) followed by very low days (feel sad & tearful) and exhaustion. The low mood days take me by surprise almost and it's
Hello peeps. I have recently between 1&2 months ago increased my levothyroxine from 75mg to 100mg.Thing is I've started having days where I'm extremely high and very excitable (euphoric) followed by very low days (feel sad & tearful) and exhaustion. The low mood days take me by surprise almost and it's
Totoro25
in
Thyroid UK
8 months ago
Disabled rail card application
Hi there. Among other things I’ve had to accept that my driving days are now severely impacted by fibro etc and am looking at getting a disabled rail card. The website says I need to provide a PIP award letter dated the last 12 months. My original letter is over two years old. I’m in the process
Hi there. Among other things I’ve had to accept that my driving days are now severely impacted by fibro etc and am looking at getting a disabled rail card. The website says I need to provide a PIP award letter dated the last 12 months. My original letter is over two years old. I’m in the process
Fibrofreak
in
Fibromyalgia Action UK
8 months ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
8 months ago
Chronic constipation
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
Liv12b
in
IBS Network
8 months ago
TW: TFMR and loss
Hi, I've just recently had a TFMR for Trisomy 18 at 13+4. It was really traumatic and ended up with surgery and blood transfusions. My egg collection gave me 2 embryos, my first which resulted in this pregnancy and one that is frozen. I'm nervous about the frozen embryo having the same issues but I'm
Hi, I've just recently had a TFMR for Trisomy 18 at 13+4. It was really traumatic and ended up with surgery and blood transfusions. My egg collection gave me 2 embryos, my first which resulted in this pregnancy and one that is frozen. I'm nervous about the frozen embryo having the same issues but I'm
Molliemoo85
in
Fertility Network UK
8 months ago
Modafanil experiences?
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Hi all. I am hoping to hear from people who have taken modafanil (Provigil) or armodafanil (Artvigil) for profound daytime sleepiness and fatigue associated with RLS. I am at the end of my options for RLS having taken pretty much everything except dipyridamole with limited success and I continue to
Doctorplacebo
in
Restless Legs Syndrome
8 months ago
Having Bladder or Bowel Challenges??
with
accidents
before starting Medtronic therapy.
with
accidents
before starting Medtronic therapy.
ByeByeMS
in
My MSAA Community
8 months ago
Disimpaction - what to expect from here?
The pants
accidents
are wayyyyyy too regular, she still massively withholds and I absolutely cannot imagine her choosing to poo at school OR tell anyone if she's had an accident. I can't imagine her being at school unless she is no longer having runny poo. Please send reassurance.
The pants
accidents
are wayyyyyy too regular, she still massively withholds and I absolutely cannot imagine her choosing to poo at school OR tell anyone if she's had an accident. I can't imagine her being at school unless she is no longer having runny poo. Please send reassurance.
sosie16
in
ERIC
5 months ago
sectioned
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
T-88
in
Headway
8 months ago
ankle fusion
Hi I’m just wondering if anyone has had an ankle fusion as I’m having one soon and I’m wondering how long I will be off my feet for, I will try and keep my story short, I fell off a door step 18 months ago and broke three bones in my ankle and leg, I was in hospital for a week and had pins and plate
Hi I’m just wondering if anyone has had an ankle fusion as I’m having one soon and I’m wondering how long I will be off my feet for, I will try and keep my story short, I fell off a door step 18 months ago and broke three bones in my ankle and leg, I was in hospital for a week and had pins and plate
Moonshine15
in
Pain Concern
8 months ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
8 months ago
Could these symptoms be CANVAS
Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed more towards CANVAS. Is anyone familiar with it? Stands for Cerebellar Ataxia (CA), Neuropathy (N) and Vestibular Areflexia (VA). There is a genetic RFC1 type and one without a genetic type. I have positive Rhomberg and loss
Diagnosed with Large fibre polyneuropathy in 2021 but symptoms have progressed more towards CANVAS. Is anyone familiar with it? Stands for Cerebellar Ataxia (CA), Neuropathy (N) and Vestibular Areflexia (VA). There is a genetic RFC1 type and one without a genetic type. I have positive Rhomberg and loss
rideabike
in
Ataxia UK
8 months ago
3 weeks into disimpaction and no elusive rusty tea.
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Twim_mamaSA89
in
ERIC
8 months ago
Sharp pain in arm
recently I have had intermittent sharp pain in left lower arm ….bit like a nerve pain … wonder if it’s anything to do with tapering off steroids ?
recently I have had intermittent sharp pain in left lower arm ….bit like a nerve pain … wonder if it’s anything to do with tapering off steroids ?
shella
in
PMRGCAuk
8 months ago
19th July: Today is THE day….
….that back on May 1st I did not want to reach from a couch position. I wanted to complete C25K by today and had a margin for repeating weeks/injury etc which luckily I didn’t need. I didn’t care about the distance and didn’t even identify what it was – just wanted get to the “run” for 30 mins status
….that back on May 1st I did not want to reach from a couch position. I wanted to complete C25K by today and had a margin for repeating weeks/injury etc which luckily I didn’t need. I didn’t care about the distance and didn’t even identify what it was – just wanted get to the “run” for 30 mins status
farsouthwest
Graduate
in
Couch to 5K
8 months ago
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