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Experiences with
Acalabrutinib
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I don’t know what to expect or do 🤦🏽♀️
I am 9 weeks on
Acalabrutinib
1/2 dose. My starting labs 4/17/23; Hgb 10.8, Plts 76,WBC 81 & ALC 78 & today 7/17/23; Hgb 11.2, Plts 72 (max 118 -> lowest 40), WBC 32 & ALC 30. So the Hgb is stable but not normal, WBC/Lymph are dropping like we want but what’s up with the Platelets Dropping???
I am 9 weeks on
Acalabrutinib
1/2 dose. My starting labs 4/17/23; Hgb 10.8, Plts 76,WBC 81 & ALC 78 & today 7/17/23; Hgb 11.2, Plts 72 (max 118 -> lowest 40), WBC 32 & ALC 30. So the Hgb is stable but not normal, WBC/Lymph are dropping like we want but what’s up with the Platelets Dropping???
CoachVera55
in
CLL Support
9 months ago
Flecanide or Propafenone when on ALCALABRUTINIB
For 6 months with [u]
+ Bisoprolol5mg +Apixaban25mg.[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate.
For 6 months with [u]
+ Bisoprolol5mg +Apixaban25mg.[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate.
unairdefamille
in
CLL Support
10 months ago
What next after Acalabrutinib
I am interested to learn what second line treatment options are available, in the UK or elsewhere, following
Acalabrutinib
as first line mono therapy. From CLL diagnosis and starting W&W in 2014 , I commenced
Acalabrutinib
in April 2021 following recovery from AIHA.
I am interested to learn what second line treatment options are available, in the UK or elsewhere, following
Acalabrutinib
as first line mono therapy. From CLL diagnosis and starting W&W in 2014 , I commenced
Acalabrutinib
in April 2021 following recovery from AIHA.
Hammerkev
in
CLL Support
1 year ago
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For Blood and Money: Billionaires, Biotech, and the Quest for a Blockbuster Drug -- interesting book
Here is a link to cllsociety.org's article: For Blood and Money: Billionaires, Biotech, and the Quest for a Blockbuster Drug: An Interview With the Author About the Development of Ibrutinib and
Acalabrutinib
https://cllsociety.org/2023/04/for-blood-and-money-interview/ I read the article then ordered
Here is a link to cllsociety.org's article: For Blood and Money: Billionaires, Biotech, and the Quest for a Blockbuster Drug: An Interview With the Author About the Development of Ibrutinib and
Acalabrutinib
https://cllsociety.org/2023/04/for-blood-and-money-interview/ I read the article then ordered
mdsp7
in
CLL Support
1 year ago
Oh Happy Days - New Oncologist🎉🎉🎉
She said 1/2 dose of
Acalabrutinib
was a very wise decision since my numbers dropped so low 76->50 Hgb 10.8->9.2 WBC 81->55. Well today My Plts 94 Hgb 11.1 WBC 61. She said we could see how things look in 2 weeks & if we decide to increase the dose then she’ll see me weekly.
She said 1/2 dose of
Acalabrutinib
was a very wise decision since my numbers dropped so low 76->50 Hgb 10.8->9.2 WBC 81->55. Well today My Plts 94 Hgb 11.1 WBC 61. She said we could see how things look in 2 weeks & if we decide to increase the dose then she’ll see me weekly.
CoachVera55
in
CLL Support
10 months ago
ER visit after 13 days on Zanubrutinib (Diagnosed 13yrs 8mos b4 needing treatment)
Then
Acalabrutinib
100mg po 1X per day to monitor side effects. Should I wait to resolve this condition before restarting BTK Therapy with the
Acalabrutinib
???
Then
Acalabrutinib
100mg po 1X per day to monitor side effects. Should I wait to resolve this condition before restarting BTK Therapy with the
Acalabrutinib
???
CoachVera55
in
CLL Support
1 year ago
CLL is a lymphoid stem cell cancer so why are my myleloid stem cell products falling so much?
It seems to make
Acalabrutinib
less targeted than I had hoped ! Ron
It seems to make
Acalabrutinib
less targeted than I had hoped ! Ron
CaptRon1976
in
CLL Support
11 months ago
Hubby is in remission but still needs to take his A&V for an additional 8.5months.
His Dr stated that at a microscopic level there is CLL and by taking his
Acalabrutinib
and Venetoclax for the remaining cycles (8.5 months more) there will be absolutely no CLL in his bone marrow. He also stated he hopes that my hubby will be in a long and deeper remission.
His Dr stated that at a microscopic level there is CLL and by taking his
Acalabrutinib
and Venetoclax for the remaining cycles (8.5 months more) there will be absolutely no CLL in his bone marrow. He also stated he hopes that my hubby will be in a long and deeper remission.
spi3
in
CLL Support
1 year ago
Anyone experienced debilitating fatigue when going off Acalabrutinib?
After going to ER a couple of times because of hypertension, irregular heartbeats, and fast pulse, my oncologist recommended stopping the meds I had been taking for CLL, until he finds a more suitable treatment. Previously I was on Ibrutinib.
After going to ER a couple of times because of hypertension, irregular heartbeats, and fast pulse, my oncologist recommended stopping the meds I had been taking for CLL, until he finds a more suitable treatment. Previously I was on Ibrutinib.
unairdefamille
in
CLL Support
11 months ago
Voriconazole interaction with Acalabrutinib
Hello All, Any leads on the interaction of voriconazole with
Acalabrutinib
? My father had been diagnosed with Cryptococcosis fungallung infection on November 2022. since then he was in voriconazole . Now he was about to start
acalabrutinib
?
Hello All, Any leads on the interaction of voriconazole with
Acalabrutinib
? My father had been diagnosed with Cryptococcosis fungallung infection on November 2022. since then he was in voriconazole . Now he was about to start
acalabrutinib
?
Hidden
in
CLL Support
1 year ago
Vaccination under Acalabrutinib?
I read that vaccinations under a therapy with
Acalabrutinib
(Calquence) do not work well. How do you do it with booster vaccinations for COVID, for example? Will the drug then be paused? Thank you for answering!
I read that vaccinations under a therapy with
Acalabrutinib
(Calquence) do not work well. How do you do it with booster vaccinations for COVID, for example? Will the drug then be paused? Thank you for answering!
joerg
in
CLL Support
1 year ago
Effectiveness of Acalabrutinib dosage halved?
My question: is it quite common for those on
Acalabrutinib
to develop resistance and to have regular full dosage halved whilst continuing to offer better tolerated cll maintenance therapy with fewer side effects? And if taken off
Acalabrutinib
what alternatives have been offered?
My question: is it quite common for those on
Acalabrutinib
to develop resistance and to have regular full dosage halved whilst continuing to offer better tolerated cll maintenance therapy with fewer side effects? And if taken off
Acalabrutinib
what alternatives have been offered?
Jevotchka
in
CLL Support
1 year ago
Bruising and rashes
I've been taking Calquence (
Acalabrutinib
) for CLL for 4 months now. So far few side effects apart from fatigue. I developed a kaleidoscope of bruises on my lower legs, accompanied by lumps, that have now faded, but with a few new ones reappearing.
I've been taking Calquence (
Acalabrutinib
) for CLL for 4 months now. So far few side effects apart from fatigue. I developed a kaleidoscope of bruises on my lower legs, accompanied by lumps, that have now faded, but with a few new ones reappearing.
balconygirl
in
CLL Support
2 months ago
Acalabrutinib and covid vaccines
I have been on
acalabrutinib
for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking
acalabrutinib
?
I have been on
acalabrutinib
for 2 months and doing very well. It has been about 6 months since I have had my last covid vaccine , and I am due for another. My question is will the covid vaccines work while taking
acalabrutinib
?
Rrriver
in
CLL Support
1 year ago
A simple life with Acalabrutinib?
I’m soon going to start
acalabrutinib
medication along with prophylactics etc. Does anyone know what percentage of folk being treated with
acalabrutinib
(Calquence) live nice undisturbed lives without side effects which require emergency hospitalisation during their treatment period?
I’m soon going to start
acalabrutinib
medication along with prophylactics etc. Does anyone know what percentage of folk being treated with
acalabrutinib
(Calquence) live nice undisturbed lives without side effects which require emergency hospitalisation during their treatment period?
Fogey
in
CLL Support
3 months ago
Haemosiderin Staining Lower legs
My GP thinks this may not be a vascular problem, but that there may be a possibility of this discolouration being a side-effect of
Acalabrutinib
which I have been on for three years with great success.
My GP thinks this may not be a vascular problem, but that there may be a possibility of this discolouration being a side-effect of
Acalabrutinib
which I have been on for three years with great success.
Drago1941
in
CLL Support
1 year ago
Holding Calquence (acalabrutinib) for epidural injection.
Recommendations seem to vary about the length of time to hold calquence for an epidural injection (L3-4 facet joint for my right sided sciatic pain) or other minor procedure. I know there is a bleeding risk even without procedures such as this one, but I do not wish to discontinue a highly effective
Recommendations seem to vary about the length of time to hold calquence for an epidural injection (L3-4 facet joint for my right sided sciatic pain) or other minor procedure. I know there is a bleeding risk even without procedures such as this one, but I do not wish to discontinue a highly effective
Bluesinthenight
in
CLL Support
20 days ago
update
i informed in my last post about my father advised to start
acalabrutinib
soon . but it was paused for some time as we admitted him in hospital last to last week due to sudden onset of fever and cough . after a 5 days course of amoxicillin followed by first IVIG the fever went down & it took 4-5 days
i informed in my last post about my father advised to start
acalabrutinib
soon . but it was paused for some time as we admitted him in hospital last to last week due to sudden onset of fever and cough . after a 5 days course of amoxicillin followed by first IVIG the fever went down & it took 4-5 days
Hidden
in
CLL Support
1 year ago
Venetoclax for dummies
I tolerate
acalabrutinib
just fine. While many, if not most people, tolerate venetioclax very well, when I added it I had stomach problems and neutropenia.
I tolerate
acalabrutinib
just fine. While many, if not most people, tolerate venetioclax very well, when I added it I had stomach problems and neutropenia.
cajunjeff
in
CLL Support
10 months ago
Do you experience new lymph nodes after starting Acalabrutinib? + Issues with Plavix
Greetings Everyone, I want to share our latest experience with CLL and the treatment we started with
Acalabrutinib
. My mom started getting severely worse by the hour with huge lymph nodes in her neck and abdomen, so we started
Acalabrutinib
.
Greetings Everyone, I want to share our latest experience with CLL and the treatment we started with
Acalabrutinib
. My mom started getting severely worse by the hour with huge lymph nodes in her neck and abdomen, so we started
Acalabrutinib
.
paula_dae
in
CLL Support
1 year ago
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