First diagnosed in December 2005. PSA 760, extensive mets and given 18-30 months to live. Changed oncologists and much more positive outlook. Zoladex for five and a half years, TRAPEZE trial - docetaxel and zoladronic acid. Abiraterone (had to come off for toxicity reasons), Enzalutamide and now cabazitaxel.
Through my involvement as a trustee with Tackle Prostate Cancer, I have been a patient representative on NICE committees foe abiraterone (pre chemo and chemo naive) enzalutamide (pre chemo and chemo naive), degareix, radium 223 and successfully appealing the withdrawal of cabazitaxel from the CDF being it passed for mainstream NHS use.