Seriously I am ready to give up. I need ANY opinions.

[tkroll0027]

Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago.

I am a 19 year old female who has been diagnosed with Fibromyalgia. When I was 15 I noticed a lot of joint/muscle pain but never thought much of it because I never really thought anything was wrong with me. I was 15, you know? Well, at 17 I was diagnosed with Fibro. I tried various treatments — injections into my muscles to help the pain, lots of Tramadol, lots of Cymbalta, lots of natural remedies like Epsom salts and that kind of thing. I even went to physical therapy. That only seemed to make it (what this is) angrier. I ended up seeing a rheumatologist who tested my blood and urine for lupus. My first ANA tests came back literally ONE POINT under the "normal limit" so she retested to make sure there was a "fluke in the lab" and they came back LITERALLY ON THE BORDER LINE ONE POINT ABOVE WHAT THE ORIGINAL TEST SAID. So because of that she sent me home and told me to come back if it got worse. I switched care providers and have since sought a second opinion. I understand that this diagnosis is a year long process, I get that now. But I don't have the butterfly rash. I have little pimple like patches of red that itch EVERYWHERE on my body except my face. My join/muscle pain has gotten so bad that even a 4 hour shift at work leaves me wanting to take a narco that an ER doctor gave me because my chest hurt so bad one morning that it made it hard to breathe and then the migranes started and then the low grade fevers started. I hit my face on a pole the other day at work and wound up sweating profusely IN THE FREEZER at work. (I work at a deli.) Then the mirgrane from Hell came. My hips didn't use to hurt but now they do. I crack joints just by standing up or turning on my side. I cry from this pain on a day to day basis and fight not to take medication because of what the Tramadol did to me when I did take it. Lupus doesn't run in my family and the one doctor I saw thought it might be drug induced, which I have also read up on. I also am really prone to yeast/uti infections that I get at least once every 2 or 3 months. It used to be once every 6. I had to change my shampoo to some super organic stuff. It's not even shampoo. Its a cleansing conditioner. Any other one literally makes my hair fall out in clumps. I have to use eczema bath wash now from Aveeno because if I don't I get those red bumps that itch in HUGE quantities. They haven't gone away but they've gotten a little smaller. My kidneys and liver tests come back fine. I test negative for RA.

Does anyone know what the Hell is going on? I am so scared. I am 19 and I can't even live my life. I can't even work without coming home and feeling like I'm a 95 year old woman. My insides feel so sore from nothing. I can't even open a can with a can opener without crying. I don't know what to do or who to see. No one wants my HMO. Please. Anyone, someone, SOMETHING, please - answer me. I've been waiting too long.

[Bacardibabe76]

Hi Tiff

Welcome, I am sorry to hear you are having such a hard time at the moment. But you have come to a great place for people to give you pointers and support. You may want to join the lupus UK thread too as there are far more people around the world on that one.

I can't really give you any advice at the moment as my brain is not engaging as it should but there are plenty of lovely people here who can maybe point you in tbe right direction. I just didn't want to read and run.

Stay strong, you will get there

L 😀 X

[tkroll0027 in reply to Bacardibabe76]

Thank you for taking the time to reply, I really do appreciate it. Would you possibly be able to link me to the thread?

[Bacardibabe76 in reply to tkroll0027]

If you search for a new community on here it will come up under lupus uk, it has more members and the admin are brilliant and knowledgeable

[Bacardibabe76 in reply to Bacardibabe76]

Copy and post your post into a new one there and you will get lots of response 😀

[Riachez]

Hi tkroll0027

Sorry you are going through so much pain i was diagnosed with fibrmyalgia 7 years ago and have experience all the symptons you have described. The only thing i would like to ask have you had your vitamin D levels checked. Ive recently been told i am vitamin D defficient. Before my blood test i had new symptoms of loseing clumps of hair, skin rash allergys. But with that you having said youve had bloods taken already they could have checked them. Turns out my skin rash problem is chronic spontanious uticaria and Angiodenema, also having breathing difficulties. I am awaiting for my appointment with the rheumatologist for futher test i was diagnosed having fibromyalgia by my GP and was never referred to the rheumy 7 years ago. I hope you find some answers soon.

Take care