This week has been the worst since being diagnosed is summer 2015. I have a headache that won’t go away, dizziness lying in bed, turning in bed and getting up to use bathroom. Fainting, tiredness that’s keeping me sleeping for 12-18 hours, at a time, then there’s the non stop palpitations, shaking, very cold feet even with heating and socks on. Plus I feel like **** which is really not helping. I don’t know what to do, not many people understand the condition, including my partner, friends, and family even after they have read about it.
If anyone can help, and suggest what I might to to get better, I would much appreciate it. I do take beta blockers for it. I have other conditions too, nearly complete list below.
PoTS - Bisoprolol
Kleinfelters Syndrome - Testosterone Injections
Myotonia - Diazepam and Mexilitine
Neuropathy (left leg and shoulders) - Duloxetine, Morphine Slow Release, Oramorph and paracetamol (as required)
Bladder emptying issues - Doxazosin
Acid Reflux - Lansoprazole
Anxiety and depression - no meds at present
Sleep Apnea - CPAP Machine
I also take Cyclizine, Ceterizine and various meds to help empty bowels for side effect control of morphine.
I think that’s an almost complete list.
An help appreciated.