Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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Recently diagnosed

Hi - This is my first post - I was only recently diagnosed with scleroderma after what feels like an eternity of basically figuring out and chasing most of it...

Hi - This is my first post - I was only recently diagnosed with scleroderma afte...

Pippa222

•3 days ago

20 Replies

Raynaud's in dark skinned patients

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the...

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfort...

CarerEdi

•6 days ago

12 Replies

Tinnitus

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus is getting worse and was reading up on it. So it seems it can affect people with...

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus i...

LuckyLucy007

•6 days ago

6 Replies

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Nifedipine/blood pressure

it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus...

it’s been a long time since I posted . I do however read other people’s stories...

creditcrunchie

•7 days ago

3 Replies

Elimination of symptoms through change of diet (such as AIP) - has anyone tried it?

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet to get rid of symptoms of auto immune diseases? I have been speaking with the...

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet ...

hunkyd0ry

•8 days ago

6 Replies

Constant, crippling nausea: gastroparesis

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been on for about a year. My symptoms are generally under control after I began...

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been o...

Nw6London

•11 days ago

6 Replies

Tofacitinib

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have diffuse systemic sclerosis) but as it’s a rare side of dSSc I have had very...

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have d...

Eden1234

•12 days ago

8 Replies

Sclerosing Mesenteritis

hi folks this is my first time posting here, I have lupus SLE and recently been diagnosed with sclerosing Mesenteritis which is extremely rare - I have ended...

hi folks this is my first time posting here, I have lupus SLE and recently been ...

svfarmer

•16 days ago

7 Replies

really itchy legs

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months I’ve been loosing hair on my calves badly. Now on one of the calves I have an...

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months ...

james87

•18 days ago

3 Replies

Change of rheumatology consultant! 😬

Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results...

Hi guys, so I was diagnosed with Scleroderma two years ago and have regular year...

Natalie1982

•18 days ago

1 Reply

Finger nails and raynauds

Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed...

Hi ..I have raynauds and limited schleroderma and was wondering if anyone has th...

Tmontana

•19 days ago

4 Replies

What creams are good for skin thickening? What do you use?

Hi All, I am noticing the scalyness on my hands is going worse and it is going down to my wrist now which is causing the tightening and stiffness around there....

Hi All, I am noticing the scalyness on my hands is going worse and it is going d...

KI2024

•19 days ago

2 Replies

Diagnosis

Has anyone been diagnosed with a differential: Eosinofillic Fasciitis /Diffuse Scleroderma/Pan Sclerotic Morphea. I was diagnosed in 2011 with diffuse...

Has anyone been diagnosed with a differential: Eosinofillic Fasciitis /Diffuse S...

Loobyloo12

•20 days ago

Be the first to reply

Bursitis of toes & Steroid Injection

I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can...

I've had pain from between the second & third toe since last May. It hurts to st...

sarahsch

•21 days ago

11 Replies

Sjogrens Syndrome

Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I...

Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 2...

Juanburr1950

•25 days ago

3 Replies

Has anyone been prescribed Fluoxetine for Raynaud's?

I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3...

I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine cause...

lynntregaron

•26 days ago

2 Replies

Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?

I have limited scleroderma and have been taking Hydroxychloroquine for 10 years. 2 years ago I developed corneal lesions which worsened over the next year. 1...

I have limited scleroderma and have been taking Hydroxychloroquine for 10 years....

lynntregaron

•26 days ago

17 Replies

Need help

Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency...

Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 1...

Grammi5

•26 days ago

1 Reply

Raynaud's in nipples?

Anyone else get this?

Brychni

•29 days ago

9 Replies

Telangiectasias

Hi I have developed telangiectasias on my face and neck due to my schleroderma.. has anyone had treatment for this and did you have to pay private .. another...

Hi I have developed telangiectasias on my face and neck due to my schleroderma.....

Tmontana

•1 month ago

6 Replies

vitamins

Having scleroderma is there any vitamins that we should stay away from

Maxamillions

•1 month ago

7 Replies

Dorsal Sympathectomy

Did anyone have a Dorsal Sympathectomy for Raynaud’s. Did it help?

Dermatray15

•1 month ago

Be the first to reply

Life Insurance

Hi, Been diagnosed with ltd systemic sclerosis and fibromyalgia Jun 23, has had Raynaud's for a good 10+ years. I'm currently looking at getting life insurance...

Hi, Been diagnosed with ltd systemic sclerosis and fibromyalgia Jun 23, has had ...

beaglemum22

•1 month ago

8 Replies

Experience of minocycline?

The Royal Free consultant has suggested I go on minocycline for 3 months, to reduce the size of some calcinosis lumps. Has anyone had experience of this?...

The Royal Free consultant has suggested I go on minocycline for 3 months, to red...

LadyTrundle

•1 month ago

3 Replies

chilblanes

I have developed chilblanes on one toe and possibly on another any ideas on treatment's or remedy

I have developed chilblanes on one toe and possibly on another any ideas on trea...

fingers

•1 month ago

4 Replies

Fillers

Has anyone had fillers? I have scleroderma…I have done Botox and I have had mild chemical peels. If you have what kind of filler did they use? thank you

Has anyone had fillers? I have scleroderma…I have done Botox and I have had mild...

Maxamillions

•1 month ago

4 Replies

collagen

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m not sure if anyone with scleroderma is able to…does it hurt us more ? thanks...

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m...

Maxamillions

•1 month ago

4 Replies

Raynauds and Hypermobility

Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative....

Hello, I've been diagnosed with primary Raynauds which is getting worse. I've h...

Boudica78

•1 month ago

8 Replies

Outdoor working

Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change....

Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned abo...

ApusApus

•1 month ago

2 Replies

Secondary Raynauds , haemorrhaged capillaries near fingernails

I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaroscopy and thermology (just told bluntly that my capillaries are abnormal) I've...

I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaros...

andy7551

•1 month ago

5 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Recently diagnosed

Raynaud's in dark skinned patients

Tinnitus

Nifedipine/blood pressure

Elimination of symptoms through change of diet (such as AIP) - has anyone tried it?

Constant, crippling nausea: gastroparesis

Tofacitinib

Sclerosing Mesenteritis

really itchy legs

Change of rheumatology consultant! 😬

Finger nails and raynauds

What creams are good for skin thickening? What do you use?

Diagnosis

Bursitis of toes & Steroid Injection

Sjogrens Syndrome

Has anyone been prescribed Fluoxetine for Raynaud's?

Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?

Need help

Raynaud's in nipples?

Telangiectasias

vitamins

Dorsal Sympathectomy

Life Insurance

Experience of minocycline?

chilblanes

Fillers

collagen

Raynauds and Hypermobility

Outdoor working

Secondary Raynauds , haemorrhaged capillaries near fingernails

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