Epoprostenol Infusion

[Dancingc21]

Does anyone have the epoprostenol infusion? When do you begin to see improvements? How long does the infusion last for?

[zenabb]

The epoprostenol infusion, also called Iloprost, dilates your blood vessels. So it is good per se. You don't see result as such but you notice that your fingers dont seem to have so many ulcers any more and that the ones you had are healing (because of the improved blood supply). It can also make you feel tired and a few days later you feel a little better. I have it every two months in the winter.

[Rp321]

For me it makes a huge difference to the frequency and severity of my raynauds attacks. It improves the skin on my hands (which is otherwise dry and cracked). It makes the swelling and pains in my fingers go away also. My whole body feels different when i have had an infusion as i no longer feel so tired and lathargic.

It lasts around 3 months ish (i would say full benefits for 2 and a half), and i have an infusion every 4 months.

I only have primary raynauds though so it maybe different in me to those people who have raynauds as a secondry condition.