Ground glass appearance on CT scan - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,799 members5,388 posts

Ground glass appearance on CT scan

6 Replies

Hi,

My GP has just informed me today that my last 2 CT scans have shown ground glass appearance on the right lobe of my lung. Glad someone told me, no-one else has bothered!! Has anyone else have this with their Scleroderma, and if so what has been the outcome? Thanks!

6 Replies
SandraMarie profile image
SandraMarie

where does it come from, have they given you any suggestions?? It sounds very worrying! x

rjericks profile image
rjericks

sounds like ur GP meant "round mass"...perhaps!

Lorna profile image
Lorna

Is this just not the speckled effect that show with lung damage caused by scleroderma? My scans show that my lungs are all speckled.

Steph profile image
Steph

Hi,

My CT Scans also show what they call "ground glass" which indicates some lung inflammation caused by the Scleroderma but not as bad as fibrosis. They refer to my lungs as being stiff.

The good news is that mine has shown this for the last 15 years and has not deteriorated. I just have yearly lung function tests to keep a check on things and the occasional CT if they think it necessary. I have no significant loss of function as a result as long as I stay fit and healthy. If I put on too much weight (which I am prone to do) I get a bit breathless on exertion. I find exercising as much as possible also helps as the more fit I am the more efficient my lungs are.

I hope this helps

Thanks all, I think it is inflammation as my lung function tests are declining, hopefully like Steph it will remain stable, scary condition this Scleroderma

BarbJ profile image
BarbJ

Don't be too scared even if you develop fibrosis - I have some fibrosis but it has been stable for at least 4 years now. I hope it will remain so, and statistically (as I have limited cutaneous systemic sclerosis) it should at least progress slowly. I am 56 and was diagnosed in 1987 (although the fibrosis wasn't diagnosed until approx 2009) but I still work full-time and live alone - looking after myself, two cats, my home and my car. I do manage to get out and about a bit, have some good friends and do enjoy life even though I get terribly tired and at least once a week feel that it is all just too much. But it is always worthwhile and someone somewhere will benefit from our experiences and the knowledge that the experts gain from having us as their patients.

You may also like...

ct abdominal scan with contrast

effect kidneys . Your advice appreciated thank you I have scan for 28 dec 2023 xx

CT scan and stress echocardiogram

would like further tests done - CT scan, lung function etc. Had lung function done which shows a...

problems wearing glasses?

ferociously dry eyes. Has anyone else experienced this problem and do you have any tips? Thanks!

Rash appears overnight

you but overnight my face often flares up ,anyone else get this

Has anyone had a High Resolution CT scan of chest

I live in Spain and have been told I need a TAC AR test. From what I can tell on the internet it is...