just got my copy of the latest 'hot n... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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just got my copy of the latest 'hot news'

Barnclown profile image
6 Replies

feeling silly cause i got it late due to forgetting to send in my sub to the R & S assoc. really upset me cause ever since joining last year the issues have been fantastic. i've put a note on my calendar so i don't forget my sub next time!

well, this issue is just as grrrrrreat as the previous ones. i am so glad to have it!

the article on digital ulcers answers all my questions and more (especially about osteomyelitis and flucloxacillin: i've just come through 5 months treatment! fingers crossed my osteom is gone....

prof denton's Q & A is incredibly helpful: every single ? gave me info i need. i feel much better informed now on things that really matter to me, like ....nonsymmetrical symptoms in my hands & feet need to be brought to my specialist's attention e.g. like pins & needles how my erythromelalgia & raynauds connect...why i have always had so much upper GI trouble and how the meds i've been prescribed try to help with this

and Janette Bond's story helps me a lot to come to terms with my own experiences.....

so, just want to say thanks again to the team who put the issues together, including all those who contribute pieces: it's a lot of work and seems to me you're doing a wonderful job! i get several organisation's mags, and 'hot news' is still the best of all

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Barnclown
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6 Replies
dex1 profile image
dex1

I also forgot to renew my sub and only got my mag last week as well. I agree with you, the magazine is great. The personal stories are always so touching and the people so courageous. It makes me feel very humble whenever i read them. Thanks to all the people who have put in the hard work to make it possible. Look forward to the next issue.

zenabb profile image
zenabb

I open it as soon as I receive it. It's very good. We should all contribute to the million.

BIGI profile image
BIGI

What is "hot news"?

Barnclown profile image
Barnclown in reply to BIGI

Hi

Hot news is the publication members of the raynauds & scleroderma association receive several times a year. The association is also behind this forum we're on now via healthunlocked.

dex1 profile image
dex1 in reply to BIGI

Hello Bigi, Hot News is the magazine from the Raynaud's and scleroderma association here in the uk. If you join the association, they send you out the magazine.

RSA_Hannah profile image
RSA_Hannah

Thanks to everyone for their kind comments about Hot News - we're glad you enjoy reading it. If anyone would like to contribute a case study or suggest an idea for an article, we are always looking for ideas. Everyone's experience of Raynaud's and/or scleroderma is different so it's always good to tell as many stories as we can. Any suggestions can be sent to hannah@raynauds.org.uk.

Thanks, Hannah

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