Scleroderma specialist

[Browncow1]

Hi does anyone know a scleroderma specialist in Northern Ireland?. I am under rheumatologist in Craigavon Hospital.

Thanks Take care everyone

[Deby177]

Sorry I've really no idea hard isn't it I've mixed connective tissue, Raynaud's and IBS, lot of food related issues. Not easy

[castlewalks]

Hi, I’m from ni & under a rheumatologist at musgrave park hospital, he seems to know a lot about scloderma

[Browncow1 in reply to castlewalks]

Hi CastlewalksThanks for your reply, are you allowed to give me his name as I would be interested in changing rheumatologist.

Thanks

[castlewalks]

Hi, no prob, He’s Dr Wright, diagnosed me very quickly when I saw him in Dec & arranged various tests etc.

[Browncow1 in reply to castlewalks]

HiThanks for your help. You feel very alone with this disease.

All the best

[castlewalks in reply to Browncow1]

It’s a challenging journey, heard there’s about 500 with it in ni, not sure if that’s right.

[136824]

I'm also in NI. Was diagnosed 12 years ago. Like you I'm under a Rheumatologist in Antrim Hosp. I'm therefore not sure if there is a specialist. I remember one time seeing a female consultant in Dundonald Hosp - maybe she was specialist but she just said I was ok & to come off steroids which was a disaster. Unfortunately there are no support groups here either.

[Browncow1 in reply to 136824]

Hi thanks for your reply, hope your getting better care now