Sleeping with raynauds : Hi, My names... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,835 members5,407 posts

Sleeping with raynauds

Matty662 profile image
9 Replies

Hi,

My names Matt and I’ve been suffering with raynauds for around 8 years now. Just wondering how are people sleeping with raynauds during the summer?? I wake up around 2-3 times if it’s hot and the first time I wake up, it a,ways takes me 2 hours to cool down before I can get back to sleep.

How are people dealing with this and what methods do you use? I’ve tried buying a mattress with a gel layer on top which is designed to keep you cool, however I still woke up hot. Do people just sleep with the fan on all night?

Written by
Matty662 profile image
Matty662
To view profiles and participate in discussions please or .
9 Replies
Jacko37 profile image
Jacko37

Found your post really interesting. People would think that raynaurds is only a problem when it's cold but it's not as simple as that. I hate the heat and my hands really burn and swell up and I've got a permanent heat rash on my legs! For bed I've just got one of those cold gel things not that it's much use and even that gets hot! Good luck

in reply to Jacko37

I wake up all the time last few days it's been 4.45am watdafck's all that about like a silent alarm clock! often get up pad around then go back to sleep mid morning once Sunday's Pee'd off higher as like this morning at 6am it's at window Grinning at me!

Poppy221 profile image
Poppy221

We live in a cool place these days - high on a hillside with breezes and it cools off most nights. However we used to live in a big city and the only way we could be cool at night was a ceiling fan above the bed. We found it a lot quieter than a tower fan and it was a gentle waft of cooling air, rather than a brisk breeze.

LadyTrundle profile image
LadyTrundle in reply to Poppy221

A good tip I picked up years ago when I travelled to hot places was: get a piece of thin cotton - tea towel, sarong, muslin baby cloth, whatever. Wet it and squeeze it out then lay it over your body in bed. The moisture keeps it cool and takes the heat out of your skin. Of course, best if no pjs and without the bedcovers on!

Hi Best is Real proper decent quality COTTON bedware no poly cotton or other crap high TPI likes of Egyptian cotton/hotel type sheets and pillow cases.

John Lewis do a lot plus others and we have a Warehouse place that resells ex hotel/trade things cheap get my sheets.towels and more there even those glass marked tea towels.

If anyone would like info for place PM me think they also post for people that are too far from London to visit there in East London near Brick Lane open Sunday mornings also.

GGhere profile image
GGhere

I sympathise with you Matty. I just say that my thermostat is bust. Winter I'm all hot water bottles and bed socks and in summer cold when I first get in bed but wake up with wringing wet pyjamas. The flipping disease is as erratic as our weather. Best of luck with your thermostat. 👍

Sanmateogirl107 profile image
Sanmateogirl107

ok try crushing a branch of rosemary under the tap of a warm bath before bed the smell will help lull you into a nice sleep. sweet dreams love julie

Bkart profile image
Bkart

Reply to Marty662

Thank you for posting this question, thought that Raynauds was just about being cold! With this hot weather my finger tips are really swollen, red and sore

too. This morning I put together a fan to help keep the room cool, I haven’t knocked, cut or damaged my thumb in any way but on completing the task I noticed my right thumb tip appeared to look a little dirty. Within minutes it went to a dark purple colour and has spread down my thumb, which is now quite swollen. The dark purple colouring extends around the base of my nail but not down the back of my thumb, neither does the swelling go down the back.

It now feels quite hard but tender to touch. Just wondered if this could be anything to do with the Raynauds as I definitely haven’t damaged my thumb in the normal sense using it. Has anybody else experienced this with Raynauds, as not sure if I should be worried.

Thanks for any help.

Matty662 profile image
Matty662

Hi,

Sorry for the late reply. I want to thank all of you for your suggestions and tips. I will try all of them to see if it helps.

@ Bkart I’m not sure if you’ve resolved your problem now, but if it turns purple it suggests a lack of oxygenated blood to your thumb. This is a symptom of raynauds and perhaps you should get it checked out.

You may also like...

Raynauds disturbing my sleep

wrong, but i am waking up serveral times during the night and feeling hot or cold, mostly hot...

Raynauds

Does anyone with raynauds know how I can keep my legs abit warmer when I go out as the cold seems to

Raynaud's

forgot how the convo came up between us but she told me her story and told me about Raynaud's. I...

Raynauds

I'm also on Nifedifine 5mg does anyone know how many times a day it should be taken as I've forgot...

Raynaud's

silly saying I feel cold all the time as my symptoms :-( Thank you Lisa