Systemic sclerosis and secondary rayn... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,824 members5,405 posts

Systemic sclerosis and secondary raynauds and sun

Sylviaherring profile image
5 Replies

Hi guys. I was diagnosed with systemic sclerosis and secondary raynauds Christmas time and am very lucky as my husband booked a few days away in the warmer climate for me. (It's snowing at home right now!) The question is should I (Do you guys) burn easier in the sun? I have been out for about 1 hour 15mins , it's only 13° but I am sunburnt ?

Written by
Sylviaherring profile image
Sylviaherring
To view profiles and participate in discussions please or .
Read more about...
5 Replies

Put on lotion!

Sylviaherring profile image
Sylviaherring in reply to

Haha I had factor 30 on !

SherrySanford65 profile image
SherrySanford65

I have read that with autoimmune disorders you need to be careful in the sun (especially those with Lupus ) as these disorders all involve the skin. The sun can cause you to overheat and promotes swelling. Medications as well can change how your skin reacts to the sun. Wear sunblock and limit direct exposure to the sun! Take care.

cobr1 profile image
cobr1

be careful, I wear factor 50 and still burn, swell and become really uncomfortable :)

fairy56 profile image
fairy56

Hi Sylviaherring, when I went to Tenerife 2yrs ago my GP suggested I use factor 50 sun cream, and advised me to stay in the shade during the hottest part of the day, in fact I took the oppurtunity to go back to my room at that time of the day to rest. During the rest of the day I wore a wide brimmed hat and sat/laid under a parasol. I enjoyed the holiday immensely it was so nice to be in a warm climate, in actual fact at one time it got too hot, it was in the mid 30s! Again on those occasions I went back to the room and sat on the balcony in the shade. Enjoy your holiday, sending you hugs.

You may also like...

Limited cutaneous systemic sclerosis, secondary Raynauds and IEM versus COVID-19

Hello Reading confusing reports about this, should we who have this be self isolating? I have no...

Recent bloods show elevated creatine. Systemic sclerosis and secondary Raynauds sufferer.

Hi all I suffer with Systemic sclerosis and secondary Raynauds with GI issues including dyspagia,...

Butterfly rash with systemic sclerosis/Raynauds?

Hi all,I was diagnosed for sure with scleroderma (limited) and secondary Raynauds in June via nail...

Charity systemic sclerosis

weeks ago after being diagnosed with systemic sclerosis and secondary raynauds in December. I am...

Systemic sclerosis and exercise

marathons last year before I was diagnosed with systemic sclerosis. However I can't seem to get...