Hello to anyone reading 👋
Bit of background, Raynauds sufferer for 11 years which got progressively worse the last 3-4 years. Doctors always thought it might have been primary even though bloods always came back slightly positive for ANA’s, but after testing positive for the anti centromere antibody in Feb 2017 they now think I have Limited cutaneous systemic sclerosis, other symptoms include broken blood vessels on face and heartburn.
I wonder, can anyone explain what they mean by swallowing problems associated with ssc? Does the problem occur with the actual throat? When I eat (not always) it feels like the food is gathered and gets stuck in my, what I assume to be my oesophagus part way down my chest. It does pass, but feels uncomfortable as it does?!? Could this be associated?
Another question id like to ask my fellow sufferers is and I know it will be different for everyone, but how are people’s symptoms say 5-10 years after diagnosis? I had such a panic the other night just thinking where will I be in 10 years in terms of symptoms and thinking of my young son. I know I shouldn’t think that way, and I don’t usually, just got the better of me on that occasion. The fab news is my echocardiogram and lung function tests came back fine, long may that continue. My last rheumy appointment was all very rushed (she was running an hour late) and felt my questions weren’t answered, it was pretty much, yes, you do have ssc, here’s some drugs and a leaflet and I’ll see you in 6 months 😮
I’ve rambled on so much, I do apologise, but really do appreciate any response.