Minocycline: Hey guys So I have been... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Minocycline

Kc_1411 profile image
5 Replies

Hey guys

So I have been reading this book "scleroderma the proven therapy that can save your life" by Henry scammell

Well he goes on to say this lady has treatment of minocycline and it worked for her reversing her symptoms "clawed hands swelling loosing the skin etc"

Has any one heard of this drug ?

Is it even true?

I was literally in tears reading this book I can't believe it let me know any info you guys have

If u would like the book I will post it to u don't waste your money

X

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Kc_1411
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5 Replies
amd21 profile image
amd21

Sadly its not true. See rebuttal here

sclero.org/scleroderma/trea...

Kc_1411 profile image
Kc_1411 in reply to amd21

Thank u for your reply how annoying!!!! Very disappointing

lifeforce profile image
lifeforce

On the advice of my rheumy I tried it once a few years ago, it really messed with my stomach so I stopped. While on it I didn't see any difference.

Saphira54 profile image
Saphira54

Thank you for you post about minocycline.

I immediately looked it up on Web- Dr. David Tretham, who headed the study on minocycline for diffuse scleroderma from Beth Israel in Boston ,reported at a conference that there was no benefit to skin scores.

The minocycline study was only 11 patients, only six completed the study.

Also not double blind.

blue_reader profile image
blue_reader

If you haven't already, check out The Road Back website, roadback.org. There are many people on there who have had success in treating their scleroderma using the antibiotic therapy discussed in Henry Scammell's book.

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