Just a quickie: Just a quickie Is... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Just a quickie

kel87 profile image
9 Replies

Just a quickie

Is Systemic scleroderma linked with or at risk of developing MS?

Thanks

Kelsey

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kel87 profile image
kel87
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9 Replies
zenabb profile image
zenabb

No it isn't.

LucyJean profile image
LucyJean

Hi Kelsey, No. They are both autoimmune conditions, but they are not linked.

Lucy x

Thelma profile image
Thelma

Geez Kelsey, that is a good question. Would have to do some online Google research, or probably visit the MS website. I have a few friends that had MS for years, one has had it since 1988, however, I've never heard a link w/Sclero. There are a few similarities, as these two and Lupus are all autoimmune diseases. MS affects the mobility and brain muscles more and Lupus and Sclero affects the internal organs and engage on the breakdown of the underlining tissues into disconnectivity. Each one requires being as in tune with our bodies, practicing healthy living and what our bodies requires as best as possible. It is absolutely with these conditions to keep our stress levels as low as possible. I learned quite a bit about MS in 88 when one of my friends was stricken - I helped with her Caregiving and by 2005 she was helping to care-give for me - she's 10 years older than me. She was hit hard with complications at first and a few years later won a dance contest with a fellow about 10 or 15 years younger than she was, and still drives a 5 speed . . . she's 71. I get encouraged and stay inspired from the Winners. Stay positive, Kelsey. We're gonna beat the odds as long as possible. Yes, Live - Love and Laugh through it all. Amen! :-)

MEW53 profile image
MEW53

I was told by my Consultant ( a scleroderma expert) that there is no link between systemic sclerosis and MS. I asked the question as I have 2 sisters who developed MS over 40 years ago within 6 months of each other. I was checked at the time but did not have the disease, strangely enough I was diagnosed with Rheumatoid Arthritis a couple of years before but it disappeared within 10 years.

Strangely enough I developed systemic sclerosis 3 years ago, bit of a strange jigsaw!

All Autoimmune diseases can overlap or come along like buses for some. I have primary Sjögren's which is sometimes misdiagnosed as MS. Mine showed up in a lumbar puncture and my symptoms have been very MS like. I was initially misdiagnosed and treated for RA. About 20% or more with Scleroderma have Sjogren's as well and some people have MS and Sjögren's. But I've never read of any specific connection between Scleroderma and MS. hopkinssjogrens.org/disease...

kel87 profile image
kel87

Hey everyone Thank you all so much for replying I seen my specialist nurse y.dy and posed the question and she said there is no direct link to MS. it`s more than likely to be Lupus to be closer to MS then Sclero.

It`s lovely when I`m anxious about something or don't understand it I can come on here and ask the question, so thank you again it`s much appreciated.

Best Wishes

Kelsey

LisaCl profile image
LisaCl

I go to an MS specialist as part of a follow up to some very early symptoms, including neuropathy. I went for a re check and told him about my scleroderma diagnosis. He said he has only met 2 patients with that diagnosis, and one was a false positive. He supposedly only sees MS patients, although I was only suspected of that diagnosis due to some things they saw in the brain.

kel87 profile image
kel87 in reply to LisaCl

That's interesting,, has seeing him helped with your symptoms?

kelseyx

LisaCl profile image
LisaCl in reply to kel87

I see him only because of some brain images that one neurologist said was MS then sent me to the MS specialist. There are different manifestations of MS. For this specific thing in my brain, lesions would have to also be on the spine. At the time, they were not. I'm having a repeat MRI today so we will see. But he told me that this particular type would not be the cause of my neuropathy. My rheumatologist offered to send me to do a nerve study and I said no. I tend to want to try one thing at a time. Plaquenil and eating well have helped. I did or ate something two Saturdays in a row and had major pain and neuropathy on those Sundays. When I go back to my Rhumatologist I am going to start tackling the neuropathy. I do know someone with MS that has lost feelings in her legs. She says it doesn't hurt and she can still walk. Her neurologist also has MS and had the same thing happen. How I wish there was no nerve pain. Maybe "tomorrow" (eventually). What symptoms are you having?

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