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Scleroderma & Raynaud's UK (SRUK)

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link between raynauds & chronic fatigue syndrome?

chrissie1971 profile image
4 Replies

I have been diagnosed with raynauds after recurrent numbness in fingers & toes, blood tests showed no underlying illness. I have had a few bouts of flu like illnesses this year which last about 5 days when i feel utterly exhausted & unable to work, but no temperature...does anyone else suffer these or know of any links?

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chrissie1971
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sylviagreenhalgh profile image
sylviagreenhalgh

I had a similar experience to yours and the GP referred me to the ME clinic but they first wanted to do tests- these are specialist tests to check you auto-immune system. they decided on the basis of the results that I have mixed connective tissue disease so I have raynauds affecting my feet, lossof sensation from knees down which means I am always tripping up, sjogrens disease , and problems swallowing. I have several tests each year but no treatment and I always pick up coughs and colds. I believe that the Roayl Free Hpl in London is the main centre in the UK but any decent rheumatologist should be able to help you . at least we had a good summer now the cold is a real pain. hope you get some answers soon

roseter profile image
roseter

I also suffer with fatigue and have been diagnosed with pbc (primary biliary sclerosis) and sjogrens. So I would get your auto immune system checked x

littlemo profile image
littlemo in reply to roseter

Hi Roseter think you mean Primary Bilary Cirrhosis as I too have this is and fatigue is a big symptom of this. Agree with you though Chrissie would need to get further investigations carried out fatigue can also be caused through simple things such as low iron etc.

chrissie1971 profile image
chrissie1971

Thanks so much for all your replies xx

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