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Advice please...
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
YMEPLEASE
in
Fibromyalgia Action UK
1 month ago
PBC and nails / gel polish / acrylic
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
Deemum
in
PBC Foundation
1 month ago
Question on tapering
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Kiwisufferer2019
in
PMRGCAuk
3 months ago
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More red spots on nails
Still don't know what these are. Anyone else get them?
Still don't know what these are. Anyone else get them?
Brychni
in
NRAS
4 months ago
Is Low Dose Naltrexone (LDN) effective for Lyme disease?
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Shewulf
Administrator
in
LDN Research Trust
2 months ago
ulcers and boils ???
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if you’ve got a constant cold with PmR ? I go through boxes and boxes of tissues !
Hi Can anyone inform me please , do you get mouth ulcers , sores & boils up nose & a runny nose , as if you’ve got a constant cold with PmR ? I go through boxes and boxes of tissues !
TedTheMaineCoon
in
PMRGCAuk
9 months ago
Presentation by Dr Yusuf (JP) Saleeb on LDN, Long Covid, and Chronic Lyme Disease
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Shewulf
Administrator
in
LDN Research Trust
5 months ago
November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
20 days ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
2 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
2 months ago
cellulitis
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
Janann25
in
PMRGCAuk
2 months ago
Chickenpox
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
NicoJono
in
Pregnancy and Parenting Support
5 months ago
Hand rash/chicken pox
Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I had burning red spots on my hand then started getting patchy rashes on hands then spots over my body and face -, chciken pox. Docs said hands are different to face ( my renal consultant). Done lots of blood tests and all they
Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I had burning red spots on my hand then started getting patchy rashes on hands then spots over my body and face -, chciken pox. Docs said hands are different to face ( my renal consultant). Done lots of blood tests and all they
Shine54
in
LUPUS UK
5 months ago
OK, I'm starting from the beginning!
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Over60sRunner
Graduate
in
Couch to 5K
1 year ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
6 months ago
Foot/mouth hand or something else??
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Shine54
in
LUPUS UK
5 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
16 days ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
19 days ago
Follow up from my post about cellulitis
Sorry should have said that I am on 10 mg of Pred.
Sorry should have said that I am on 10 mg of Pred.
Dobermanlover
in
PMRGCAuk
9 months ago
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