Could the genetic variation MTHFR be ... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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Could the genetic variation MTHFR be behind many of these weird problems sjorgrens

Aquamarine88 profile image
6 Replies

Raynauds torticullis dystoniam blue toes I won’t keep going on!

Anyone had luck with naturopathy Chinese medicine or other alternatives .

Interested to hear

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Aquamarine88
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6 Replies
Emmijen profile image
Emmijen

I dont have anything useful but i am curious. I been studying herbalism and Traditional Chinese Medicine is part of the courses, but I have been too scared to attempt anything that isn't a safe or mild herb. and definitely nothing has changed my raynauds. Circulation stimulation and not staying still for long periods of time seems to be only thing. well the sports socks that hug the instep of foot make feet comfy... nothing tight on legs. occasional foot soaks - but that might be in my head and just feels good to pamper once in a while.

Aquamarine88 profile image
Aquamarine88 in reply to Emmijen

thank you i have Raynouds badly in my hands - an tossing up going down the chinese medicine route

Xxxxxxx profile image
Xxxxxxx in reply to Aquamarine88

Have a good look at what goes into Chinese medicine. Personally I wouldn’t touch it.

Rayney profile image
Rayney

I tried Chinese medicine for multiple things sjogrens being one. It did not help me but I had lyme unknowingly. And have it still. And hashimotos. A successful local natural doc treatment me for pcos we thought i had and sjogrens i guess one is damp " and one dry chinese terms. Harder to treat. Ever hear about low dose naltrexone? Or change diet to antiinflammatory?

Aquamarine88 profile image
Aquamarine88 in reply to Rayney

Rayney im going to look into anti inflammatory i did that when i was first diagnosed 6 yrs ago and gradually let a lot of it go boiling up bone broth gluten free, a good reminder thank u

Mimi1900 profile image
Mimi1900

I use acupuncture and have had cupping done to relieve joint pain. In addition I take ginseng to help with the fatigue.