Hair loss

[Nousernames]

I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have some).

I've take biotin, I use rogaine. I don't wash it as often.

I have to vacuum daily. I just walk across the room and hair is falling out. When I get up from the couch or car, I have to pick the hair.

It's bad enough to be sick everyday, but bald too?

[Hidden]

Sorry to read ofyour hair loss. I’m sure you will have thought of this already but just in case not I thought I’d ask - has your thyroid been tested lately or, if you are Hypothyroid, has your dosage of thyroxine been checked recently?

My hair fell out from alopecia aerate when I was a kid again, post gestationally about a year after my 3rd son was born. Fifteen years or more ago I was discovered to be Hypothyroid - then more recently - found to have Sjögren’s. It’s never fallen out since the former was treated, even when I took Methotrexate.

[Hidden]

Hi NUNames - I have had SS since about 1992 or so, and my hair thinned at the time. I believe it was due to a hypothyroid issue that showed up and the same time. My hair is still relatively thin compared to what it used to be but it is much better than it was. I take folic acid every day and that has made a huge difference... Best luck in figuring it out!

[kiphlthy]

Hi,

I used to have really bad problem with hair fall. I was losing a considerable amount of hair. First i would strongly recommend you to see a dermatologist.

After a lot of research and recommendations, I got to know Biotin helps to improve hair strength and stop hair loss. Bananas, eggs and milk are great sources of Biotin. I started eating a lot of these and after seeing changes. I also started taking vitamin supplements.

I can personally attest that this helped me a lot and am all good now. no more hair loss. let me know if you need more info

[snowlee]

Yes, and if you take Plaquenil it can make it worse. Most of my hair loss occurs at the temples, right and left.

[Nousernames in reply to snowlee]

Hi, thank you for your experience.

I've been on plaquenil for at least 9 years.

I quit taking it for about a year, but realized that it was helping my joint pain.

My hair has been falling out in handfuls for the past 3 years and also much worse at my temples.

I am so afraid if I don't find a resolution I will end up with no hair at all.

I saw a dermatologist and have used Rogaine, take biotin vitamins, but they didn't help me.

Someone else suggested I have a thyroid test. I will definitely be having that checked.

I hope this doesn't sound ridiculous worrying about my hair, but on the rare occasion I do leave my house, I don't feel like myself. I purchased a few hat's, but I look ridiculous and uncomfortable.

I have had this disease for so long and have almost every part of my body affected.

Now I am going bald and losing my teeth.

No one understands but other people like you who suffer with the disease.

I will let you know if I can find something that helps.

For now, I'm looking at hair pieces, but they are really expensive like all of the dental procedures.

I appreciate having a place to ask others how they deal with it and knowing I'm not alone.

Sometimes it feels that way.

[snowlee in reply to Nousernames]

I use a product now called Toppik. It is a keratin spray that comes in about 6 or 7 different hair colors. My hair is light brown so I use that color. Before I go out, I spray it on the temples. It fills in the area pretty well. Looks natural. Have also been thinking about a wig and/or a hair piece. I just hate wearing things on my head. I think it would be hot in the summer.