Face Swelling

[goodymommy]

Does anyone get a lot of face swelling ? If so what do you do about it ?

[weathervane]

Before i was diagnosed i had facial swelling because of a blocked parotid gland , i can now keep that under control by massaging the glands . I also had swelling in my lymph nodes all over my body, when I started on rituximab this has be less of a problem. Do you know what is causing the swelling in your case ?

[goodymommy in reply to weathervane]

I think i had Sjogrens syndrome since i was a teenager. I had signs of dry lips , slowly getting dry eyes , feeling lazy like and getting a red skin discolor on my neck and arms. When i had my stroke , it was discovered i had Fibromuscular Dysplasia . The Doctor said some kinda disease that once invaded my body but they didn't no what . . Anyway several years passed , my body was just so tired . A Rheumatologist diagnosed me with Sjogrens Syndrome . He basically said to loose weight and exercise . He said he could give me a steroid but it would be to risky for me . I lost my health insurance when i got divorced.. If i get upset then i get tired the next day. I can't stand when my face puffs up . I can actually hear my face start to blow up like . I will start massaging my face and hope it works . Thanks for the reply .

[weathervane in reply to goodymommy]

sjogrens.org/files/brochure...

I hope this helps xx

[goodymommy in reply to weathervane]

I will read it tomorrow . It's now 1:12 am in Alabama . I will reply later to you . Thank you for your kindness !!! Off to bed .

[goodymommy in reply to weathervane]

I have been massaging my face nightly . I can see some change but it looked like one side went down and the other slightly . I am going to message twice a day . How often do you message your face ? I appreciate all of your help . When i saw the diagram on how to message ones face , i just got so excited !!!! Thanks so much .: ) x

[weathervane in reply to goodymommy]

Thats great Goody , when it helps it is such a relief 😀 i was referred to an oral surgeon as i had massive swelling on the left parotid with several infections he did a scan with dye that showed i had some damage due to the infections . He showed me how to massage and i do it 5-6 times a day when things are bad , i can tell now when it’s happening as my face and jaw feel different. Beware of infection if the jaw gets very painful and hot or you have a temperature and go to your dentist. I also use high floride toothpaste which I get on prescription. Good luck with it and keep massaging!!! Xx

[goodymommy in reply to weathervane]

So far i have never had pain in my jaws . It sounds like you have a really good Doctor , lucky you . I had great Military Doctors but once i got divorced that was the end of the Military . These Civilian Doctors where i live don't seem caring . Oh i was on You Tube and i ran across this woman with Sjogrens , she said garlic makes her feel better . This was the title in case you want to check it out .

Raw Garlic for Sjogren's symptoms-brain fog/headache/swelling/fatigue. It was interesting . I am still messaging . Thanks X

[Blauer in reply to weathervane]

Hi from Europa!!

I have SS and at times I get my face swollen around the mouth, especially upper part towards the nose. Also top of the cheeks.

Also both sides of the upper neck.

As soon as I get attacked by it I take cortisone tablet.

Helps a bit.

I mostly wake up early in the morning with this dilemma.

It takes about 2 -3 days before it is all back to normal.

My skin also is extremely dry and I have all the symptoms SS brings along with it.

learned not to eat sour fruit, vegetable at all. it makes it worse.

Wish everyone the best.

[goodymommy in reply to Blauer]

Hi from USA, Years ago i had a stroke so i can't take steroids . You are so lucky you can . The way you described your swelling is the same as mine. I look like a mess some days but messaging my face has helped .

[Blauer in reply to goodymommy]

Sorry to hear about your stroke. Wish you the very, very best.

I take one day at the time. Can't plan much for the time to come. But you are aware of this for sure. Warm greetings from Germany

[goodymommy in reply to Blauer]

Greetings from the USA and thank you for your kindness .

[goodymommy in reply to Blauer]

Goodness , no vegetables ??

[weathervane]

Ps love your wee dogs 🐶

[goodymommy in reply to weathervane]

Ah thanks for that . My Black Dog is half Spaniel and Aussie Shepherd . The White one is a Pure Great Pyrenees. He is just a puppy but will be a giant !

[Blauer]

I have SS and repeating face swelling above my mouth.

[goodymommy in reply to Blauer]

Do you do anything special for facial swelling ?

[Blauer in reply to goodymommy]

Well, I finally got on a prescription cortisone. I take when I am attacked.

helps a bit. takes 2 - 3 days though.

Pain in joints and burning in the eyes can drive a patient nearly out of the mind.

there are days I can not leave my apartment.