Sjogren's ab-nd Ear Oain: Anyone else... - The Australian Sj...

The Australian Sjögren's Syndrome Association

2,430 members779 posts

Sjogren's ab-nd Ear Oain

GrammyTweetie profile image
5 Replies

Anyone else have ear pain, ringing and hearing loss? My left ear hurts all the time. The pain is sharp and often severe. I have high range hearing loss and the ringing can be very, very loud. If someone is behind me theirvspeech sounds garbled. Hearing on the phone has become challenging. It's also impacted my balance. I researched it here in the US but there seems to be no treatment and going deaf is very likely. Every time I think this disease has finished with the weird symptoms something appears. Curious if there is any treatment outside the US?

Written by
GrammyTweetie profile image
GrammyTweetie
To view profiles and participate in discussions please or .
Read more about...
5 Replies
GrammyTweetie profile image
GrammyTweetie

Clearly too tired to type. It's Ear Pain. Sigh!

Spice profile image
Spice

Don't know if this will help. I recently had my ears tested for high ringing (tinnitus) as there are 4 reasons that this can happen. Had a hearing test with some tones reduced. Mobile phones make my ears ache if I am on them too long to do with higher frequencies. I am in New Zealand and also have a landline which is ok with no aching in my ears. When I have attended SS seminars at our Auckland hospital I have heard of other SS people having grometts fitted in their ears to relieve pressure. They do work their way out sometimes I believe and have to be replaced. You may be able to question some of these ideas for yourself. Good luck

in reply to Spice

I have had constant high pitched tinnitus for a year or so now. I sometimes can't hear well but other times hear too much. The oral consultant and audiologist think it's probably arthritis in my jaw but I haven't had x-rays to confirm. I have a very widespread small fibre neuropathy so it may well relate to this I think. My profoundly deaf sisters sent me this link this morning: antinitus.com/product/antin...

Persiankiwi profile image
Persiankiwi

I get tinnitus, I can hear it fizzing now at 5pm but it's really noticeable at night that I have to put headphones & music on. It comes & goes

in reply to Persiankiwi

Mine is constant high whine - I notice it all the time if I want to, but try hard to ignore it!

You may also like...

Sjogrens and outdoor work

take Plaquenil, which helps my sore joints but I am very light sensitive, and have virtually no...

Burning Mouth Syndrome From Sjogrens

of suffering and after 3 docs, I went to my ENT ( ear, nose, n throat she found me help! Some kind...

Sjogrens or not?

positive antibodies Ro and La i have had joint heat and pain with morning stiffness , irritable...

Sjogren's or kidneys?

had to see my GP as I was getting really weird dents appearing in my skin (it looks like a finger...

Sjogrens or allergies ❓❓❓