Sore knees for Christmas!

[weathervane]

I have sjogrens with all the muscle and joint pain. I have now got sore knees which started 4 weeks ago and get sore in bed at night. My question is- is this sjogrens related ?

[wsjkcj1]

Hi there! Yes it is. I also get the muscle/joint pain and sometimes skin becomes sensitive in different places. Since it's a connective tissue inflammation that pretty much means everywhere. Hope you feel better!

[weathervane in reply to wsjkcj1]

Thanks for that , itsvery much out of the blue so I thought it was probably the sjogrens! Im with the rheumy next Friday so will check with her. How are you ? Did you have a good Christmas?

[wsjkcj1 in reply to weathervane]

I did. How about you? other than the aches and pains of course. The only good thing about all of the odd aches, pains and symptoms I have is I know it's bound to end at some point but I still become concerned if it's just a sjogren's flare or actually unrelated.

[weathervane]

I have been so busy i wasnt sure if the increased pains was tiredness, but maybe this is a flare as well . It had been a while since i had one so maybe this is the cause . I might be getting more rituximab next week si the timing will be good. Wishing you a painless 2017 xx

[stringstudio]

Are u in Sydney? I am , and the extremely hot weather we've had the last two days has knocked me around terribly. This usually causes a flare in me . Happy new year fellow Sjogrens buddies !

[Roswitha in reply to stringstudio]

Hi I live in Melbourne, but used to live in Ireland. I am now Irish/ Australian with both passports. I have recently been diagnosed with Sjogrens, and after getting over the initial shock of this lifelong syndrome, I have now adjusted and accept with relief that someone believes all the bazare symptoms I have that I never knew were related to one syndrome.

All the best for 2017.

[weathervane]

I wish i was on sydney , Iam in cold Ireland !! Abit of hot weather might help but would probably start to suffer with it as well 😐 HAPPY NEW YEAR X

[Roswitha]

I think the warm nights we have here are very difficult to cope with, especially when the joints are aching and feet are burning I crave an ice pack to cool the feet and anclles down.

[stringstudio in reply to Roswitha]

I have psoriasis but on the soles of my feet so I have to wrap them in plastic so they don't dry up and wake me itching all the time . Do you get cramps across the top of your feet ?

[weathervane in reply to stringstudio]

I get burning feet dispite it being cold here and for some reason i have been getting more cramps in lower legs since my knees have been bad! Is there a connection??

[Hidden]

weathervane you can get this with sjogren's but RA is usually linked with it besides.

[FoggyMoggy]

I am getting physio for my painful knees (pain especially walking up stairs). Had this for six months but haven't stuck at physio as wasn't helping. I am not diagnosed with SS but am hoping to have it investigated more since rashes and ANA positive. I have FM and ME

[weathervane in reply to FoggyMoggy]

Hi Foggy, i get pains inmost joints, large and small when i have a flare . I just try to keep moving or will stiffen up . I do find voltarol 12hr gel helps , best wishes 🌸

[FoggyMoggy in reply to weathervane]

Thanks weathervane . I must keep at the Voltarol and nurofen but don't like to take the latter all the time and with Christmas forgot usual routine (although I am quite forgetful at the best of times!) XX