Sarcoidosis - I'm new: Is anyone using steroid... - SarcoidosisUK

SarcoidosisUK

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Sarcoidosis - I'm new

Melek56 profile image
3 Replies

Is anyone using steroid creams on the face to deal with sarcoidosis outbreaks upon the advice of their GP? Can sarcoidosis be found on the scalp? I have had eczema previously but unclear how do I recognise the difference between sarcoidosis and eczema?

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Melek56 profile image
Melek56
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3 Replies
unbreakable profile image
unbreakable

No - I don't have any facial skin conditions however I do have scalp skin problems where I use a steroid shampoo daily.

Not working though....

Been on it a week - and no change yet - I will give it another three weeks and if it isn't any better- discontinue use.

hypermobilecat profile image
hypermobilecat

Hi Melek56 , I cant believe it, for some years well decades had skin problems, even told I had skin cancer on my face by my nose it was removed and it wasnt cancer just big and bled a lot. This year had ct scans on lungs showing findings consistent with sarcoidosis, have not had any cameras or biopsies done , my gp is annoyed, but it is not him having it done. I was told it isnt cancer. Getting back to the skin problems i use anti biotic gel called clyndamycin,it doesnt get rid of them but helps. sometimes I have to go on oral anti biotics , have fucidin cream for hands , caneston cream for other areas. my scalp gets itchy a lot, my bellybutton gets infected ,need anti biotics. I am 58, I use concealer a lot on my face ,rio do a good one,it has mixers to do it properly. I dont know whether to use steriod cream on my face, find it helpful in other areas but worried about using it on face.

Aromessence profile image
Aromessence in reply to hypermobilecat

I have sarcoidosis on my face as well as other areas. I was given steroid creams but decided not to use them. I have heard from others that it can cause thinning of the skin and other side effects. I use the creams on my arms and legs but not my face. I use naturally acting oils to soften them on my face and use a good concealer (green then skin colour) .

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