Pulmonary sarc lung bleeding

Hi All, my boyfriend has had pulmonary sarc for 8 yrs . He got diagnosed when he had bad chest n they found lots of internal bleeding. He been on steroids (presodine) low dose ( after initial v high dose) n seemed to be in remission of some sort, until now.

Now he is going back to hospital for scans etc as he is having chest pains n shortness of breath again. Im very worried. What sort of questions shd i be asking to help understand the extent of his condition and outlook? i am feeling devastated and sick with worry. X thank u x