Sickle cell trait : I’ve been passing... - Sickle Cell Society

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Sickle cell trait

Kiarascott29 profile image
3 Replies

I’ve been passing lately I have sickle cell trait and honestly that’s the only thing I think it could be but I go to the doctor Monday so I’ll see.

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Kiarascott29 profile image
Kiarascott29
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3 Replies
nettevaw profile image
nettevaw

I have that also but have been diagnosed with interstitial lung disease my body aches all the time

LupusDiva45 profile image
LupusDiva45

Many doctors, or I should I say, most doctors do not believe that the trait cause crises. Keep "annoying" them until they pay attention. The trait can and does cause issues. Let me know what the doctor says.

tytydj profile image
tytydj in reply to LupusDiva45

THANK YOU! I've been suffering with severe leg/arm pain since i was 3 always after extreme cold/heat and overexertion even now in my late teens i still experience these intense pains till the point that it makes walking almost impossible, doctors said it couldn't be the trait and blamed it on my atrial septum defect up until i was 8 and were able to get it corrected.

Doctors need to stop dismissing SCT pains as it can cause more harm than good.

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