Sickle Cell Trait Pain Crisis.

[seamsbydeb]

I have the Sickle Cell Trait and I have pain crisis, stiff joint, shortness of breath, decreased quality of life because of the trait. But they say its not a disease. Really? I need a doctor in SC or GA who will treat a person with the Sickle Cell Trait. I want blood test so i will know why I am having pain crisis and exactly what is causing them. Any recommendations would be highly appreciated.

[Loulousicklefam]

Hi I have trait and my half sister is sickle ss. I have pain everywhere but stiff joints, fatigue, chest pain when walking, shooting pain in my limbs, ibs, depression etc. I have yet to be diagnosed with anything but my mum has haematuria of the kidneys because of the trait... However my daughter is not trait and has started having the fatigue and pain in her legs when walking. She 5.do you have anyone in your family with any kind of painful condition including sickle cell. And Have you heard of epigenetics look it up. I think trait predisposes you to these things pain and fatigue. But my symptoms fit fibromyagia. This runs in the women paternally. Look into family history.

[seamsbydeb in reply to Loulousicklefam]

Thank you. My mom has the trait and problems with her platelets. Eating greens usually helps. She tires but she is 85 years old. My niece has lot of cramping, muscle spasms and recently headaches. I've told her to get tested but she has yet to do so smh. One of my sons had headaches with no known cause when he was younger, tests revealed nothing. They went away after a few weeks. My other son suffers with cramps and muscle spasms. Both have the trait. My own aches and pains have increased as I've aged...I'm 56. I know my limits, take vitamins but I still tire easily, cramp when its cold and have pain crisis. I will look into the info you provided. Thank you.

[Pmade1]

If you find a Dr. In SC. Please post it. I have been trying to find one here since 2017 when I was dianosed. I had the same symptoms you have but unfortunately my uric acid level was high and my pain was attributed to that. I feel like the high uric acid is a symptom of SCT. Since I found out that staying hydrated help with pain I haven't been experiencing much. Now I am so sleepy I can't get out of bed or have energy to do anything. Try drinking as much water as you can it has helped me a lot at least 96 of of water plus other liquids daily.