Losing my friends!

[jo19]

Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want to lose another friend but I know it will take a miracle for that to happen. Sickle cell anaemia is a torturous life and sometimes it feels so unfair! I am so scared of the future and what is going to happen next.

[Anzy]

I am so very sorry for your loss, you have my condolences. Sickle-cell anaemia is a very serious disease, I think because so many of us manage it so well that sometimes others and even ourselves forget that the disease can be fatal. But I don't think living in fear of the future is healthy or advisable. Everyday should be treated as a blessing, I'm not saying it's easy or that everyday is pain-free but it's another day that you've won and conquered your fear. I know what it means to lose someone to sickle-cell and it hurts like nothing else. So honour their memory, don't live in fear.

[jo19 in reply to Anzy]

Hi @Anzy thanks for your reply. I do understand that worrying is heathly. Its just so painful seeing your other sickle cell fighters going. It just hurts so much. I try my best to be positive. I have to fight this fight for everyone around me and myself. Keeping well is my number one priority everyday. I am grateful for how far I have come. I am thankful for everyone around me who give me the strength to look forward to tomorrow.

[Ladiflexxa]

Hey Keep Your Head Up. I Also have lost Many Friends to Sickle Cell and Yes Very Up Setting n Depressing.. Each Day You Wake is a Blessing. I Remember Back in the Early 80s When Doctors Used to Say 'People with Sickle cell disease Don't Live Past 30yrs n That Used to Have Me Living in Fear n Wanting to Do & Be So Many Things Growing Up But Hey I'm 43 This Yr n Give Thanks Every Day.

[scnews in reply to Ladiflexxa]

I was once told i wont live to 25. am over 54 now!

[onwa70]

People die everyday.EVERY SINGLE SECOND.SICKLE CELL OR NO SICKLE CELL PEOPLE DIE! Don't let death put you down.PRAY AND EAT WELL AND AVOID UNNECESSARY STRESS AND TAKE GOOD CARE OF YOUR SELF.POSITIVE VIBES ONLY NEVER FORGET THAT.

PS:REALLY SORRY FOR THE LOSS OF YOUR FRIENDS.

THEY ARE ALL IN A BETTER PLACE TRUST ME.

[PrettyNoona]

You had over 10 friends with sickle cell!! I though this was a somehow rare disease!!!....I never had a friend with it or met someone personally with it, so I always feel so alone, I have no one who I can relate with. Anyway that's not the point, I'm very sorry for your loss and I understand your fears but try not to think too much over the future, just believe in God. All will be well.

[jo19 in reply to PrettyNoona]

Hi Uniy, thanks for your message. Unfortunately sickle cell is not rare. Most of my friends are sickle cell disease because we all meet each other and become friends from the hospital. So it's hard when we lose a friend. You know them, their family and their children and its hard and scary. Most die in their 40s which makes it feel like so sad because they did everything to stay alive. You just look around and feel like who else? I can only try to be positive and keep myself in the best of health especially because of my children. I keep praying that if anything should happen to me at least let them be old enough to take care of themselves. It is a horrible disease and the face of suffering.

[PrettyNoona]

Fighting!.....I pray for you too, and your friends.

[tyina]

I am so very sorry for your loss of so many friends to this .I lost my daughter to sickle cell. So I know that pain and sorrow. I miss her every day .She can never be replaced. We had such a close mother daughter relationship together. I pray God's comforting Arms be up on you.