Need Understanding: I just want to know... - Sickle Cell Society

Sickle Cell Society

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Need Understanding

ErikaSutt profile image
6 Replies

I just want to know are there anybody looking further into sickle cell trait. I have the trait and there are times (usually during weather change) where I'm in unbelievable pain. Where every each of me is hurting. My skin my scalp everything to the point where I can barely move.

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ErikaSutt profile image
ErikaSutt
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Luvnuallways profile image
Luvnuallways

Unfortunately SCT can present with symptoms similar to SCD crisis. When this happens you must aggressively hydrate, rest and take high dose NSAIDs on a schedule. Like 800 of ibuprofen every 8 hours. Unless you have an allergy. Green Herb (any health food store) and Only Natural Inc brand of Noni juice (online) can help a lot. If you have a doctor who is up on the latest , they should know it’s poss and if so may be willing to give you OV fluids and Oxygen during these very painful episodes.

There are many of us out here suffering with you. And many facing denial of our experience which can make you feel crazy. What you are experiencing is more common than recognized in the medical community. Many others have symptoms with season change possibly because season changes means the pressure gradients change which impacts blood cell and oxygen carrying capacities. As well as delivery.

I hope this helps. Be well

ErikaSutt profile image
ErikaSutt in reply to Luvnuallways

Thank you for your help. I will try what you said.

321Peace21 profile image
321Peace21 in reply to Luvnuallways

Hello Luvnuallways, thanks for your tips. I also have sickle cell trait and I have symptoms similar to disease. I have a question what is Nsaids? And is this medicine effective when it comes to sickle cell crisis? I have been having a lot of pain and sickle cell pain in my arms and chest. Oxygen is very important and there are portable oxygen bags you can buy online for a reasonable price I am looking into buying me a portable oxygen bag because with sickle cell trait sometimes my oxygen level is low and it would be nice to have one at home. God bless

Luvnuallways profile image
Luvnuallways in reply to 321Peace21

NSAIDs mean anti inflammatories like ibuprofen or naproxen. You get them at the pharmacy over the counter

Have you tried the Noni Juice?

321Peace21 profile image
321Peace21 in reply to Luvnuallways

No I haven't tried the Noni juice. I haven't heard of it. Is this juice good? Thanks for telling about it.

321Peace21 profile image
321Peace21

Wow sorry to hear about your pain. God will keep you ErikaSutt, and Jeshua looks out for his children.💯

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