My daughter has the SCT: If someone have... - Sickle Cell Society

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My daughter has the SCT

Blacbatz2 profile image
5 Replies

If someone have the trait can they ever experience a crisis

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Blacbatz2 profile image
Blacbatz2
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5 Replies
bluebug profile image
bluebug

Yes but it mostly depends on the circumstances.

JOI90 profile image
JOI90

I have rhe trait and i feel like it vauses me crisis but my doctors keeep telling me im crazy

Journey2HM profile image
Journey2HM in reply to JOI90

You're not crazy at all! Don't let them tell you no. They told me the same about my daughter for years and then they apologize... "I'm so sorry, we didn't know." smh

Get ultrasound yearly and get a doctor that understands your concerns, otherwise they won't treat SCT with care.

Journey2HM profile image
Journey2HM

Yes, yes they can. I've been researching a lot after having lost my daughter last summer to a cancer associated with the sickle cell trait, Renal Medullary Carcinoma. There are more positive stories of those with SCT, so I don't mean to scare you, but we need to be more aware of health concerns of those living with SCT. Please join my webpage to stay informed... journeytohappinessmovement.... Facebook: Journey to Happiness Movement, Inc.

Medical community doesn't tell us the truth.

Chevi profile image
Chevi

Please dnt always listen to the dr... listen to ur baby..she's living with the pains...Do ur research..I myself and my mom have SCT, my mom had to have a blood transfusion due to sickle...and bfor she did the docs kept telln her it's was due to sumthin else..until her specialist came and educationed them..he told thm tht some people with SCT do have serious complications and tht there isn't enough testing being done to determine if SCT patients go threw the same illnesses as SC patients and thts true!!!

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