Intro

[menemspaul]

Hi All;

Happy new year, hope you had a fantastic break, I have sickle cell and new to this community. Anyone out there????

[JPraize]

Hi, you are welcome here. Here, you can get to talk to people, learn from others experiences new developments and trends in the managements. Also, you can share you experience from which others could learn or seek support and advice on bothering issues..all the best. JPraize is a 36 year old hbss patient.

[menemspaul in reply to JPraize]

Hi JPriase;

great to hear from you, hope you had a fantastic break, thanks for the advise.

[JPraize in reply to menemspaul]

You are welcome, yes I had a good one and yourself?

[menemspaul in reply to JPraize]

Great, currently in India with warm weather but lots of mosquitoes, trying to be careful though

[menemspaul in reply to JPraize]

I know its cold I the UK, hope you are warm

[jo19]

Hi welcome to the group. I hope you are well. Like Jpraize said people share their experiences here. We would love to hear about your experiences with sickle cell.

[menemspaul]

Hi there jo;

thanks for replying, pretty much, my experience has been severe crises up until when I commenced on hydroxyurea in 2003 then blood transfusion in 2005 and lastly on exchange transfusion in 2014, of all the exchange transfusion has really given me a lot of well-time to be able to pursue my career as mostly my non-s level is kept above 60-65% before transfusion which then achieves a non-s level of over 90% post transfusion.

[Omie11]

Hi,

So glad you found this site!