Sickle Cell Trait - HELP

[mssara]

I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait and I am looked at like I have two heads. I asked for a referral at her last appointment to a hematologist and was met with even MORE resistance and of course, was not given a referral. All her doctors say trait carriers are at no risk for any other health complications so I find it funny that I find so many things online to the contrary. Can anyone shed some light on this?

[amysassy]

I have had the same trouble with my doctors and they also refused to refer me to a hematologist. they asked me to bring in the research I had found and bring it in for them to read I don't know if it would be worth you doing this with yours. iam still waiting on a phonecall from them with the outcome and what they are going to do.

[sonr777]

Maybe allow her to for a blood test she may be anaemic. I wouldn't suggest anything like iron tablets as the do not have vitamin C. a daily dose of vitamin C with no preservative iron liquid floradix. I am taking from my own experience. I used to have periods lasting 2 months .I also cut out sugar.make the doctor read the level of your haemoglobin. normal one is between2 to 14.

Mine would always be 10.7 or 11. the doctor told I will never get any higher because of my sicklecell trait. rubbish it's now 12.3 good luck

[SCSZoe Partner Sickle Cell Society]

Hello, we've made a thread reviewing everything we know about the trait so far... healthunlocked.com/sicklece...

[RadiantSue]

The truth is that most doctors have been miseducated concerning SYMPTOMATIC sickle cell trait. Most are kind professionals who help many people lead better quality lives than they would without their assistance. The trouble is the accidental anguish and heartache they cause those of us who are susceptible to pain crisises and other caused by sickled cells in sickle cell trait patients.

While I wish to treat these doctors with honor and respect, I also wish to increase their understanding of our plight worsened by their ignorance. I recommend you try pediatricians and family medicine practicianers who serve large numbers of African-Americans. I have found them to be more likely to have learned from experience treating an entire family that some are family members with the "only" the sickle cell trait appear to never or almost never have any symptoms of sickle cell, while other trait patients have symptoms consistent with sickle cell disease symptoms in their siblings with SS sickle cell albeit either less frequently or more mild.