I have suffered with chronic pain for as long as I can remember maybe 5 or 6, my little crisis always begin with mid/lower back and leg pain from my bones. My legs, my back, my stomach ( my stomach daily but especially if I forget to eat), usually much worse when I would exercise or when I'm pregnant (which i am now). At one point, 9 years ago, I had a rotating Rx for both Vicodin and Percocet, which I stopped taking because it made me sick and I couldn't care for my children.
Here I am 33 years later and medical "professional" are still trying to tell me my pain is not related to SCT. I'm in over all good health and other than SCT they can't find a cause for my suffering.
Over all I eat well, more fruits and veggies than starch and meat, I drink roughly a gallon of water a day sometimes more. Tylenol and Motrin do nothing for my pain. I take 6 sometimes 8 pills at a time (as I refuse to take anything strong or deadly) I consume marijuana and that helps SOOOOOOOO MUCH, almost killing the pain completely from an 8-2 on the pain scale, hands down.
Are there any doctors out there taking us less severe SCT carries seriously. I'm tired if living in pain. I'm tired of my bones and muscles feeling like "aaaaaghhhhh 😨😨😨😨😵😵😭😭". I'm tired if needing to "take my medicine" every 2-4 hours (depending on level of pain) I have 6 children 7th on the way and I spend half my time telling my children "mama can't play she hurts today." I want to be free of this pain. Are there any studies to help us SCT patients out all the focus is on SCD and I don't think anyone realizes how much some of us SCT patients suffer daily, too.
I'm tired of hurting. Can anyone help?