Hello!! I'm new to this site. I've learned a lot from you all. My heart goes out to everyone as this can be a crueling journey.
My journey begins in October, 2016. I started experiencing constipation, and had pains in my abdomen that travelled down my hip and leg. Since I had total hip replacement in March, 2016, I thought it was my hip. Went to Orthopedic Dr and he said X-rays looked fine. Continued to have pain. End of October I discovered a hardened area in pelvic area. I really felt it when I tried sleeeping on my stomach. Fast forward to the Saturday after Thanksgiving, 2016. I had terrible pain in abdomen. So went to ER and they did some tests and discovered a cyst that was 8 cm in size. Most of it was liquid but there was some liquid. He suggested Oncologist to see within a few days. Which I did see Oncologist. She recommended total hysterectomy.
So December 8th, I had a total hysterectomy, with removal of appendix and omentum. He tumor was laying on part of my colon. At first they thought there rumor had attached to colon, but praise God, it had not attached. I was diagnosed with Stage 1c2. Thank God it had not spread.
Oncologist recommended having 6 treatments of Carbo/Taxol, once every 3 wks. My first chemo was on December 20, 2016. I was terrified and very anxious. I had to take Lorazepam to calm down. I also had a port put in as after my hysterectomy, my IV got infected and caused my veins to blow. I was very nervous about port access as well.
The first treatment went ok. When they started the chemo drug, I had a hard time breathing and it felt like my head was going to pop off. So they stopped the chemo and gave me more steroids for a bit. When the restarted the chemo, they went to a smaller drip. It worked. Christmas Day I was ok, which I was so happy about. However, the 26th, was totally different. Very fatigued, light headed and very achy. I also developed a painful stinging sensation down my lower leg to foot when I dangled my legs off the bed from sleeping. It was like while the blood was flowing down to foot, my lower leg and foot was on fire. It lasted for a bit. I was able to walk on it but it was kind of painful. I had a hard time putting my full weight on it when I was working in the kitchen. I also stated having neuropathy on my toes of the other leg. When I mentioned this to Oncologist, they just said let's just wait and see how treatment #2 goes. Treatment #2 brought major bone pain. Nothing helped, not even pain meds. It lasted days 3-5 then I felt ok. In the meantime, I went to podiatrist for the stinging on my ankle and he said it appears to be nerve damage likely from chemo. When I told my Oncologist, they said they would consider changing my chemo. They changed my Taxol to Taxotere and reduced the Carbo. But right before my 3rd treatment, they did the routine blood work. Found out liver counts were elevated and my WBC was 1.5. So we postponed #3 a wk.
Treatment #3-new chemo with reduced Carbo with reduced time in chair by 3 hours. (Went from 6 hrs to 4 hrs). Since I had a low WBC, they decided to have me have the Neulasta patch placed on my stomach. Day 5 I started having trouble breathing, couldn't walk up the stairs in our house without feeling I was going to faint, and pain in my left back area. So on Day 6th I was admitted to hospital being treated for a blood clot. However, the CT scan was inconclusive as there was still blood flowing ever so slightly in the affected area. Plan of attack, 2 shots a day for 6 months of Lovenox. Took about 2 wks to not feel light headed or out of breath. In the meantime, I was recommended to see Hemotologist Oncologist for blood work for liver and for lupus and other such things like blood coagulation. All came back within normal ranges. He recommend changing blood thinner to Coumadin. So we are in the process of changing that now .
Two days before Treatment #4. Liver counts still high. They recommend an ultrasound. So today when I went to Treatment #4, they decided to not give me Taxotere (Docetaxel) but just Carbo. Afterwards, I had an ultrasound done on liver. Turns out everything is fine. Still don't know what the plan is for #5. It might be a reduced level of Taxotere.
So that is my story. Yes, there have been very hard days, days where I wonder if this is all worth it for just preventative measures and feel like stopping everything. But I can still walk, I can still use my hands, and my hair will grow back. I have grown stronger spiritually and mentally through all of this so far. I am a better person for this. It has changed my life.
I don't think about reacurrence at this stage but I'm sure that will change when I am done with all of my treatments. But I'm going to choose not to worry about something that may or may not happen. I just want my life back and to live life.
That's my journey so far. Never thought my journey would be with a lot of bumps in he road. But I have gotten through them with Gods help.
Thanks for reading. I know this was a very long post. God bless you all as you walk through your journeys