Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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Hospice

Sharing that my daughter and I are meeting with hospice for in home hospice care this afternoon. I was going to wait for one more CT scan and oncologist...

Sharing that my daughter and I are meeting with hospice for in home hospice care...

NPmary

•15 hours ago

13 Replies

tumor marker levels

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think under 20 is normal.

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think...

Fiercelypink

•1 day ago

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Changing treatment drugs again …

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunately they didn’t work..my ANC is now at 0.6 ! So I need to wait before I start...

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunat...

Salmon4

•1 day ago

4 Replies

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Does anybody get severe cramps; legs,pectoral and feet?

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide,...

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I ...

1horse

•2 days ago

13 Replies

Normal range for tumor markers?

Does anyone know the normal range for tumor markers - for breast cancer? Does everybody (including people without cancer) have some in their body or should it...

Does anyone know the normal range for tumor markers - for breast cancer? Does ev...

Greatday2

•2 days ago

15 Replies

Oserdu and Increase Cholestrol

I was told Oserdu can increase cholesterol. I’ve been on it two months so far and, yes, my cholesterol is high! oncologist is encouraging getting on a...

I was told Oserdu can increase cholesterol. I’ve been on it two months so far a...

Elle713

•3 days ago

7 Replies

Have Ibrance mouth sores?

I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the...

I found something that works! I used a good quality tea tree oil (Do Terra meta...

NeverOutOfTheFight

•4 days ago

2 Replies

Rising T Bili on Xeloda

Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor...

Hi ladies!! my mom has been on xeloda and her T bili continues to go up last...

Flower1513

•4 days ago

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Need help with cancer pain

Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is...

Hello my fellow thrivers, May I consult with you all for advice on how to manag...

hopeoflife

•4 days ago

14 Replies

xeloda and radiation to liver mets

hi , anyone had radiation to liver mets while on xeloda ? Did you stop xeloda during radiation

hi , anyone had radiation to liver mets while on xeloda ? Did you stop xeloda ...

Pbura

•4 days ago

8 Replies

Ibrance and letrozole

Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are your side effects

Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are y...

2345678

•5 days ago

20 Replies

thanks for all the advice

I appreciate all the suggestions regarding reducing ANC and loved the chocolate, turkey tail mushrooms nd timing options. It appears my oncologist doesn’t love...

I appreciate all the suggestions regarding reducing ANC and loved the chocolate,...

jltorcz

•6 days ago

9 Replies

Clinical trial update

Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing...

Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (eve...

Trissh

•6 days ago

9 Replies

Ibrance dose reduction

I started out on Ibrance at 125. After a few months my neutrophils weren't terrible, but borderline. I convinced my oncologist to lower to 100. Now I am...

I started out on Ibrance at 125. After a few months my neutrophils weren't terr...

Suite1000

•6 days ago

17 Replies

Taking Meds in the AM vs PM

Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before...

Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedbac...

CatLoverinthe206

•7 days ago

6 Replies

I am wondering again, what do those of you on kisqali do when your ANC is lower than 1?

Once again my anc is below 1. It is .93 and they don't want me to restart my kisqali yet. Tomorrow I will hear from the doctor's assistant. It is so...

Once again my anc is below 1. It is .93 and they don't want me to restart my kis...

jltorcz

•7 days ago

21 Replies

Bad weekend!

The last few days have taken alot out of me! Wednesday afternoon I slided to the bathroom floor and couldn't get up! I was weak and confused and my husband...

The last few days have taken alot out of me! Wednesday afternoon I slided to th...

PJBinMI

•7 days ago

40 Replies

Any advice for sister with MBC

My sister was diagnosed with stage4 MBC in January that spread to the bones and possible spots on liver, after successfully beating DCIS more than 15 years...

My sister was diagnosed with stage4 MBC in January that spread to the bones and ...

Sjherm

•8 days ago

31 Replies

Thank you

Thank you all for you informative replies. What a God send this forum is as we try and navigate our way through this awful situation. I just didn’t want to...

Thank you all for you informative replies. What a God send this forum is as we ...

BritSammy

•9 days ago

2 Replies

NorhEast of England

I was just wondering if anybody is from Middlesbrough in the North East of England

I was just wondering if anybody is from Middlesbrough in the North East of Engla...

Liessie2014

•10 days ago

12 Replies

Ibrance - cycle number

dear all from a sunny England finally. I haven’t posted on here for a while, but wanted to see how long are patients being on Ibrance ? What cycle / years...

dear all from a sunny England finally. I haven’t posted on here for a while, b...

TE53_67

•11 days ago

68 Replies

Just saying hello as a new member

I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low...

I was just recently diagnosed with MBC in January 2024 but no stranger to breast...

CatLoverinthe206

•11 days ago

19 Replies

Pulmonary metastasectomy anyone?

HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours...

HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My ...

Kahe

•11 days ago

11 Replies

denosumbub

hello fellow thrives, I have not been seeing post from this group daily as for some odd reason they are going straight to my junk inbox? Anyway I just wanted...

hello fellow thrives, I have not been seeing post from this group daily as for ...

BritSammy

•12 days ago

15 Replies

Fulvestrant side effects and updates

After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those...

After 4yrs of silence and no medications against my oncologist advice, my breast...

JonaC38

•12 days ago

16 Replies

Question about tumor markers

Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver...

Hi there, happy spring to all!! My Mom’s been doing well with trial med in comb...

Pups2Cute

•12 days ago

3 Replies

Exemestane and Afinitor

Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the...

Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to...

Jhshl512

•13 days ago

22 Replies

Lizzietish

'Benign' cyst removed and has turned out to be in my bones and lungs and obviously in my skin. ER, PR + and HER-. All my research tells me I am doomed as...

'Benign' cyst removed and has turned out to be in my bones and lungs and obvious...

Lizzietosh

•16 days ago

21 Replies

Advice

Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with...

Good afternoon. Yesterday I visited my ancologist after a city scan, who showed ...

yevgeniakoretskaya

•16 days ago

25 Replies

Update: It has been a while!

I have missed you all. I do read your posts. I am feeling better and tolerating Abraxane! I am now on my fifth cycle. I have some tummy issues (trust me you...

I have missed you all. I do read your posts. I am feeling better and tolerating...

Hotlantaphatz

•19 days ago

24 Replies

Write a post or ask a question

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

Hospice

tumor marker levels

Changing treatment drugs again …

Does anybody get severe cramps; legs,pectoral and feet?

Normal range for tumor markers?

Oserdu and Increase Cholestrol

Have Ibrance mouth sores?

Rising T Bili on Xeloda

Need help with cancer pain

xeloda and radiation to liver mets

Ibrance and letrozole

thanks for all the advice

Clinical trial update

Ibrance dose reduction

Taking Meds in the AM vs PM

I am wondering again, what do those of you on kisqali do when your ANC is lower than 1?

Bad weekend!

Any advice for sister with MBC

Thank you

NorhEast of England

Ibrance - cycle number

Just saying hello as a new member

Pulmonary metastasectomy anyone?

denosumbub

Fulvestrant side effects and updates

Question about tumor markers

Exemestane and Afinitor

Lizzietish

Advice

Update: It has been a while!

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