Hi, ladies. I’d like to post my update to give us all hope! 9 years in with this disease. I was diagnosed Stage 4, to the bones. Sept 22, 2011. Started with Avastin, Femara. 2 years in, near death, removed the Avastin. Stayed on Femara. I was getting scans every 9 weeks. My last scans were July 13, 2013. My body recovered from Avastin in about 2 years. I see my oncologist approx every 6 months. My tumor markers have been rising. I had scans Monday. I was prepared for new treatment of Ibrance and Faslodex. My oncologist called yesterday, I was out in a public place, and he tells me, my scans look better then did 7 years ago. No sign of cancer anywhere. Tumor markers are going up, so yes something might be going on, but isn’t showing up yet. So, no treatment change. In my 9 years I’ve never heard, no active sign of cancer. I started shaking and crying. I’m incredibly blessed. Yes, I know Stage 4 is uncurable. I know it will awaken. But truly I’m learning to live day by day. Today I’m ok again. I go back in September. Stay hopeful. I give all glory to God. I’m undeserving of his graciousness. Today, again, I’m ok.
My Update: Hi, ladies. I’d like to post... - SHARE Metastatic ...
Dawn53094, typically doctors do not switch treatments based upon increasing TMs unless scans support that there is progression. TMs can rise for a number of reasons, some of which are not progress-ion related. If your TMs tend to be reliable and continue to rise for several months, more frequent scanning may be done. Hoping yours are just a blip!
Hope the scan goes ok ,and I am glad the rules were relaxed for covid , allowing you to go back on Ibrance .
I’m fine thanks , just starting cycle 33 of Ibrance and hoping I get somewhat longer on it , as I tolerate it well . I’m still mostly ‘shielding ‘ and look forward to the relaxation of the lockdown for ‘vulnerable’ groups ! Been enjoying the heatwave , but a bit too hot today ! Take care ! x
I have been going out every day for a cycle ride in the countryside near to my home and have been to the local garden centre and farm shop ...but I am looking forward to a day out to Chatsworth House early July ( my 30 th wedding anniversary ) . Looks like beaches are jam packed this week ... despite government advice , but I am avoiding these ! Take care but enjoy the good weather with your family x
Yes it’s one of my favourite stately homes ... fabulous walks ! I think it’s only an hour from my side too ! Just need to pre -book at present and then hope for a good weather day ! We are not going abroad this summer either ( apart from my daughter , who is going to Mykonos late August with a friend !) ... maybe a trip over to Northern Ireland by boat to see my father -in - law ... we love the coastal route over there too . Hope you get something booked as they are saying many UK sites are getting snapped up just now . X
So happy for you! This is very encouraging for the rest of us. I was diagnosed with MBC In my bone marrow in April of 2019. I’m on faslodex and Ibrance. Just had my monthly shots and asked my oncologist how long the average person has on these drugs and she said two years. Since one year has already gone by I wasn’t thrilled to hear that. It wasn’t until I started crying that she started saying but there are other options out there. My oncologist really doesn’t have the best bedside manner. Anyway I’m choosing to have a positive attitude and it it so great to hear that you are doing well after all these years! With God all things are possible! 🙏❤️
Thank you for the encouraging words. I have been on Ibrance/letrozole/zometa since May 2017. Stage 4 right out the gate with one bone met to the right hip. Last scan in March showed no active cancer. I never had surgery so still have the tumor. The only side effects I have are hair loss and fatigue, and when I'm only on letrozole the site where my tumor is gets sore and feels like a pulled muscle. Other than that I feel blessed.