Good morning to the best team - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,597 members8,137 posts

Good morning to the best team

Alive-today profile image
23 Replies

Hi everyone, not feeling very positive today, i am on my 8th day Ibrance and Letrozole, feeling abit weak, my bones are hurting me but i have my best friend Max, my dog that keeps me company, hope you all doing brilliant, keep smiling

Written by
Alive-today profile image
Alive-today
To view profiles and participate in discussions please or .
Read more about...
23 Replies
Justme153 profile image
Justme153

Sorry to hear you are feeling down today. Glad you have Max to keep you company. I have Daisy a tawny colored cockerspaniel . She is the most loyal friend you can have. She is getting up in age though don't know how much longer she will be around. Some days you would never guess she is 14 but some days yes you can. I just take letrozole right now hoping to keep it that way for a long time. My husband and I have to watch the grand children today as schools and day cares have been shut down. They definitely ware me out. Take today and relax and rest hopefully tomorrow will be brighter with more energy!! 🌞🌈🌹🌷 HAPPY SPRING

Alive-today profile image
Alive-today in reply to Justme153

Nice name Daisy, they are good company. Unfortunately one day we are all leaving this earth, some early some the right time.

Love children, dodn't have any grand kids, i am sure they keep you busy.

I do hope tomorrow it will be a different day for me, more energy more alive.

Enjoy your day with your family and anything else you choose to do.

HAPPY SPRING TO YOU TOO

mariootsi profile image
mariootsi in reply to Alive-today

Hope you feel better. Tomorrow is a new day. Never know how we will feel day to day!

Phillipians4and6 profile image
Phillipians4and6

Hang in there. Think about your name. I love it. You’re alive-today. I’m sending good vibes your way. Xoxo

Alive-today profile image
Alive-today in reply to Phillipians4and6

Thank you so much

Hope you feel better tomorrow. Some days can get you like that, especially if you have overdone things.

Clare x

What a sweet pup! I just love those little little paws! :). My sweet "pup" Ellie, Australian cattle dog/border collie mix (we think) is sticking to me like glue these days! My constant companion and best friend! Glad you have the same! :)

SeattleMom profile image
SeattleMom

Hello!

I usually feel my worst at the end of my 3-week cycle of Ibrance; i.e the fatigue and the achy bones.

Like you, I have two little dogs who provide much comfort and company. Dogs are the best medicine! Hope you feel better soon!

Love and prayers! Linda

P.S. I have two children, a son, age 29; and a daughter, age 26. They are the best!!

hdhonda profile image
hdhonda

Max looks like he is taking a nap. I think Cocid-19 is affecting everyone. Not nearly enough tests, staff, hospital beds, ventilators, etc. is scaring everyone especially in the U.S. where we don't get the truth from the White House and probably everyone is stressed. Blessings Hannah

Red71 profile image
Red71

Some days are better than others. I tell myself that would be true even without MBC. I use the excuse of the bad days to read, watch TV or nap and not feel bad for doing it. I tell myself the essentials can get done on the better days! So I guess what I learned is to make the bad days better by doing something I would feel guilty doing if I had more energy! Hugs, Elaine

Andersl profile image
Andersl

I hope you feel better soon.

When we"re feeling low we can always rely on our four legged friends to comfort us.

Well done Max for looking after mummy .

Sunnydrinking profile image
Sunnydrinking

Hello

I love the picture of Max - thanks for sharing.

I found it took me a while to settle on the meds but eventually I seemed to tolerate them well. I hope thing improve for you soon.

We all have a wobble and the ladies on this forum are all so kind & supportive.

Take care

Jo xx

Justme153 profile image
Justme153

Hi just checking in on you. Hoping today is better then yesterday??

Tam-56 profile image
Tam-56

Thank you for sharing a pic of your lovely pup. When I first began taking Ibrance/Letrozole, I found the third week brought on fatigue. Maybe this is the med doing their work healing you. I found it hard to rest. Rest when you are tired, treat yourself to a nap or meditate.

Rhwright12 profile image
Rhwright12

Hope your days get better. It’s hard getting used to some of these drugs...praying you’ll feel back to normal soon.

Totheriver profile image
Totheriver

I had issues when I first went in ibrance. I tried it on and off for 3 cycles. It turned out I could not handle the dosage. Dropped to the lowest dose and seem to be tolerating it. Hope when I have my scans it will show that it is working. Always something to think about.....

Eliactida1955 profile image
Eliactida1955

Hello Alive!! It will get better . There are days where I feel better and I’m on the same treatment. It’s rough but you will get thru it. Exercise helps but rest as needed . Max to keep you company . For the bones I took Zometa infusions but stopped them recently for a break. I was taking them every theee months. I just had my Pet scan and it’s not lightening up and stable. I was diagnosed Sept 2018. Hang in there-it will pass!!!🙏❤️🌹

Buffwright profile image
Buffwright

Hang in there! Allow your body to adjust. It gets better. I started with 125 Ibrance for three months and experienced dizziness, so we went to 100. It was much better. Healthy wishes.....

Zackary8 profile image
Zackary8 in reply to Buffwright

I too had this experience. I am reduced to 100mg and this is working well!

Sweet picture to make all of us 😊! Thank you for sharing! ❤️🙏❤️

When my bones hurt and I’m short of breath I tell myself the drugs are working and think of nice things I have done. I’m 70 now. It was hard when I first started taking Letrozole and Ibrance. I was tearful, moody, negative about everything. I’ve been on it a year now and it has been much easier. I’m on my 4th week of the cycle so no Ibrance. It’s due with my Denosumab jab on Wednesday. I can feel discomfort now but I know why. Take care and tell yourself your meds are working. Cheryl

viennagirl profile image
viennagirl

You are lucky to have that wonderful little dog. He or she looks like such a sweet being.

Please stay positive and you will get results from your Ibrance and Letrozole. It takes time to feel normal on the drugs but you will eventually feel okay again. Keep taking it and eat a very healthy diet while you are doing the drugs. I am almost a vegan but a vegetarian most of the time. I also have a big cup of miso soup every day with fresh garlic. Miso is a powerful food. It was studied in Japan after the war when so many Japanese people suffered radiation sickness from the bombs. The people who ate or drank lots of Miso didn't suffer nearly the same level of radiation sickness as people who didn't drink it. So I think Miso is a good food to include while you are taking your cancer drugs. All the best to you and the little dog. Hugs Marlene

viennagirl profile image
viennagirl

Hi there. You will likely adapt to the Ibrance Letrozole treatments. I have been on that combination for over a year and I feel quite good. I do sometimes feel the bones in my back but that might be from two compression fractures. Keep your spirits up and try to do some fasting. IF is good for you - or so I believe - it sure gives me extra energy. I also really try to eat nourishing foods. No more junk food for me. Max is very cute and I think he will be very good for you. I am sure he feels your sadness and wants you to feel better.

Sometimes I have more energy now than the few years preceding my diagnosis of mbc. I think I was getting sick for a long time. I really had no energy. Now I feel better than I did before. Except I am losing some hair but like you I am still alive and enjoying many things and people. My husband and I run a vacation rental business 8 months of the year. We haven't had many guests this year but I am optimistic that our business will be better next year. I actually don't mind the break. We are wearing our masks and practicing distancing and just trying hard to stay safe. Hugs Marlene

You may also like...

Best Time to Take IBrance? Morning or Evening?

better at night. Does anyone have experiences you can share? Thank you!

Joining the Xeloda team next week

grateful for all the information here. How many of you are on this? For how long? Do you still...

Best Medicine There Is!

blessing! I forgot to feel bad all day! So much fun with lots of \\"I wuve you Nana\\" from the...

Good end to a long year…

and I know how hard it is at times to keep the faith and have hope. ❤️

best treatment after Xeloda?

Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex,...